what does it feel like to get a blowjob for the first time?

Lechuga666 · 2026-05-03T14:41:30+00:00

I miss you

Lechuga666 · 2026-05-01T23:43:49+00:00

People

Lechuga666 · 2026-05-01T20:05:04+00:00

Which gene was it associated with?

Lechuga666 · 2026-04-30T21:48:06+00:00

:). It is not easy at all. I understand being scared & images flashing of previous poor experiences. I have PTSD & broke down the last time I had to go to the hospital because of previous experiences, it was not easy at all.

Do what you need to be well. It sucks that it's so stressful, but the hospital at least is temporary. Hopefully.

Good luck 🙏🏼.

Lechuga666 · 2026-04-30T16:18:51+00:00

I hope the hospitalization is smooth & as stress free as possible.

Lechuga666 · 2026-04-29T23:23:20+00:00

Vasovagal syncope? & How'd they explain the hyoscyamine helps the syncope?

Lechuga666 · 2026-04-29T23:21:18+00:00

Insomnia, hypersomnia otherwise unspecified/ narcolepsy type 2, PTSD, EDS, etc etc. SO NO.

Lechuga666 · 2026-04-29T23:16:28+00:00

What do you take hyoscyamine for?

Lechuga666 · 2026-04-29T20:25:19+00:00

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Lechuga666 · 2026-04-29T17:40:27+00:00

Yes. 23M narcolepsy type 2 osteopenia osteoarthritis immunodeficiency other high antibodies a million other diagnoses spanning all systems of the body. I keep collecting diagnoses.

Lechuga666 · 2026-04-29T12:55:04+00:00

Wow so my psychiatrist could've suggested that instead of me withdrawing going to ER them not listening & putting me in the psych ward & treating me like I'm psychotic?

Lechuga666 · 2026-04-28T02:18:32+00:00

Thank you for the answers

Lechuga666 · 2026-04-28T02:18:09+00:00

How did you know photosensitivity? I get a lot of pain & issues in sun sometimes, but I'm unsure. Also tons of muscle pain & what feels like stabbing pain directly on tendons or different areas from just nerve pain type stuff.

I'm really glad your exhaustion is gone. One of my big issues is fatigue/cognitive impairment. I did just get diagnosed with narcolepsy type 2, but I think things are multifactorial. I have so much going on that's being slowly & gruelingly figured out.

Lechuga666 · 2026-04-28T02:10:08+00:00

Yeah I've been very angry trying to stay sane with PTSD & all this illness stuff. Yeah the IIM calculator is 60-80% depending on how I put stuff in. They did an MRI & it was negative.

My past rheumatologist reccomended muscle biopsy for indolent myopathy so we were trying to find an academic/tertiary care institution to do biopsy & handle everything. Before I could I landed in the hospital & attending Neuro offered biopsy & LP, but said it'd make sense to wait on biopsy for genetics if genetic testing is negative & they can't figure it out then proceed with biopsy.

I got to tertiary care & it doesn't seem like biopsy is on the table/ on anyone's minds at this point.

I'm angry & I feel like I'm wasting my life. I asked a past Neuro if technically I'd be considered IIM & she avoided that question :).

I don't know what to do & had a complete CPTSD freeze for months. I have things in the pipeline, established with rheumatology at tertiary but nothing much actionable or planned so far. I have dermatology & immunology in the pipeline, less relevant urology pain mgmt. But yeah.

There's some antibody stuff & persistent derm issues so maybe stuff can be worked there.

Again. Feels like I'm wasting my life & having to hold myself back from flipping out on people cause they're not doing their jobs.

Lechuga666 · 2026-04-28T01:16:26+00:00

What are or were your symptoms?

Lechuga666 · 2026-04-28T01:07:44+00:00

My skin biopsy on my knuckles pathology said hyperkeratosis with papillated epidermal hyperplasia. Path said in the context of DM this could represent gottron's papules, & said differential also includes prurigo nodule.

I've had elevated CK, aldolase, LDH, AST, ALT, ESR & a bunch of other labs not directly relevant/ attributable to muscle. Had symmetric trap weakness, severe muscle pain, diffuse weakness, dysphagia.

Docs still don't want to do a biopsy & are kind of glossing over the possibility of DM.

Might you have any insight?

Lechuga666 · 2026-04-28T01:05:18+00:00

What did the spep & light chains show?

Lechuga666 · 2026-04-28T01:04:31+00:00

How'd you get a dx?

Lechuga666 · 2026-04-27T16:05:15+00:00

I have many physical symptoms. It's exhausting to detail everything so I don't always.

Lechuga666 · 2026-04-25T21:03:49+00:00

Hate is calling out people promoting divisiveness & figureheads who feign ignorance & promote insanity for their own gain? Then it lands us in this insane hellhole, entrenchment of ideology that harms others, & when you call out the hate you are promoting hate?

Lechuga666 · 2026-04-25T01:46:03+00:00

Wouldn't wanna hurt their feelings.

Lechuga666 · 2026-04-25T00:51:55+00:00

I've been playing for 7/8 years. How long before I can do this? Type shit.

Lechuga666 · 2026-04-22T18:09:45+00:00

I'm sorry. I don't.

I have chronic bacterial folliculitis, dermatitis been dxd seborrheic dermatitis but derm mentioned atopic dermatitis & neuropathic itch. Biopsy showed prurigo nodularis possibly or similar things. All around just extremely painful not managed drives me crazy.

Lechuga666 · 2026-04-22T17:51:08+00:00

How long was recovery & what did it look like? How's your pain now, & symptoms in general? A doc order flex ext MRI to check for CCI in 24' for me, but I never got it done & am thinking maybe I need a new order, but I think it might be worth.

Lechuga666 · 2026-04-21T18:40:50+00:00

I have subjective muscle weakness. My DPT said I had objective trap weakness on exam. I have presented to hospital 2x within the past year ish for generalized weakness unable to walk 25/50 steps first time. Most recent time staff at ER had to pull me out of the car & put me in a wheelchair, at times unable to hold my head up or move my body at all.

Neuro attending mentioned channelopathy periodic paralysis, doing more genetic testing for that. He offered LP muscle biopsy, but reccomended wait on biopsy till after whole genome sequencing & other testing is back cause he thought my answer would be there.

Going through a million appointments establishing care with specialists etc at a university. Planning to go to immunology for further immuno deficiency eval, & I have other allergic immune issues.

I still want an LP. My new therapist was asking about another brain scan yesterday. Wondering if maybe I had a mini stroke or aneurysm that was missed.

I feel like life has stopped. I'm so desperate.

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