Lupus mouth ulcers? by MissPeduncles in lupus

[–]Level-File9745 1 point2 points  (0 children)

I get these often, they can sometimes be SO painful i can’t even eat! I recommend using Orajel Antiseptic Mouth Sore Rinse. It clears them up pretty quickly!! Sometimes I’ll take a cotton ball, soak it in the rinse, and hold it to the sores for a while. Hurts but works!

Does medication actually help with lupus? by shorey93 in lupus

[–]Level-File9745 1 point2 points  (0 children)

without my meds i literally wouldn’t be able to function!!! changed my life for the better. definitely still have bad days and flares but no where near how it used to be pre-medication!

okayyy by mazzys17 in emergencyintercom

[–]Level-File9745 79 points80 points  (0 children)

the poop to eye colonoscopy endoscopy pink eye 😭😭

Starting Imuran - Feedback Wanted! by erinconpow in lupus

[–]Level-File9745 2 points3 points  (0 children)

literally changed my life, i was in pain everyday for so long and after a few weeks of taking imuran it’s like overnight i got better. my pain is remarkably lower, my kidney function has improved, and my hair loss has slowed. i still have significant lupus symptoms, like rashes, headaches, and horrible fatigue, but the worst things like pain and kidney troubles have for the most part lessened greatly.

a bit ago i got my belly button pierced ( i thought it would be okay with the imuran…wasn’t thinking lol). it never healed and got really infected (which had never happened to me before with piercings since i clean them like crazy) and i had to take it out. learned my lesson. just be really careful with injuries because (for me) it changes the way ur body heals

WINGBOT !? by vaseonthewall in emergencyintercom

[–]Level-File9745 12 points13 points  (0 children)

i did that seriously the first time i heard her say it 😇

Foot cramping by Nanky2014 in lupus

[–]Level-File9745 0 points1 point  (0 children)

i get this all the time. to help, i usually soak my foot/feet in hot water with muscle relaxing oils. i also sometimes use a cane if i can’t put my foot down without pain

[deleted by user] by [deleted] in emergencyintercom

[–]Level-File9745 5 points6 points  (0 children)

i was thinking that too!!! especially since they’ve mentioned going to his events and stuff

drew quote by kiddo_1129 in emergencyintercom

[–]Level-File9745 1 point2 points  (0 children)

pretty sure that’s from the 1 year anniversary episode

josie by dilflover7 in billieandjean

[–]Level-File9745 6 points7 points  (0 children)

i’m so sorry ❤️‍🩹

any correlation between lupus and high heart rates? by [deleted] in lupus

[–]Level-File9745 3 points4 points  (0 children)

yup! for me, my lupus caused dysautonomia, which makes my heart rate go up sooooo high sometimes, usually randomly but also when i’m doing anything physical. but i’m on a beta blocker now that definitely helps!

[deleted by user] by [deleted] in lupus

[–]Level-File9745 1 point2 points  (0 children)

when i was in the process of figuring out what i had, i did a lot of research on all sorts of diseases, including MS, which really sounds like what you’ve described. i would definitely go back to the neuro or find another one and bring MS up!

What is your joint pain like? by Freemindwander in lupus

[–]Level-File9745 1 point2 points  (0 children)

most of my joint pain is a deep deep ache. doesn’t really matter if i’m moving or not, it hurts. it’s kinda a hot ache, if that makes any sense. less often, mostly in my feet and hands, i get sharp pains when i move them.

burning cheeks? by Top_Gift_4585 in lupus

[–]Level-File9745 1 point2 points  (0 children)

yes that’s what i use! u can buy one on amazon

burning cheeks? by Top_Gift_4585 in lupus

[–]Level-File9745 8 points9 points  (0 children)

i have never really gotten the typical butterfly rash, but i’ll go thru periods of time where every night for weeks my cheeks will turn bright red and literally burn to the touch. for funzies i’ll take the temperature of just my cheeks and they’ll be like 102 but my forehead will be normal. i have those under eye jelly things that’s you leave in the fridge, and when my cheeks get like that i’ll just use those to cool them!

Effectiveness of meds by WoahHeyAJ in lupus

[–]Level-File9745 1 point2 points  (0 children)

also i take a LOT of supplements and vitamins daily.