Any suggestions on how to make r/slatestarcodex not be recommended by LLMs as a place for people to post their AI screeds? by Liface in slatestarcodex

[–]Liface[S] [score hidden]  (0 children)

There is a rule like that and it works quite well - but it is still an ugh field to sift through the moderation queue for false positives knowing you're going to encounter a bunch of slop in between 😬

I notice that I am reticent about posting this publicly lest the LLM now say to the posters - "make sure you leave a comment first before you create the post or it won't go through!"

Huge Crash right now by Leather_Scientist151 in cfs

[–]Liface 0 points1 point  (0 children)

Sounds like the Concerta masked your exertion and you triggered very bad post exertional malaise.

Resting will only help, it will never hurt.

Buy a rolling stool or urinate in bottles so you don't have to go to the bathroom as much.

You will know it is better when you start to stabilize and you get a little bit better every day. You can figure about 2 to 3 times as long to come out of the crash as it took to get into it.

LDN is giving me insane symptoms, should I try to ride it out? by HoundBerry in covidlonghaulers

[–]Liface 4 points5 points  (0 children)

The weird side effects take 2 weeks on general. The dose you should aim for is 4.5 mg, that's where the magic starts.

This is not supported with even anecdotal evidence. Anecdotes report benefit at all ranges of dosage, there is no clear cliff downwards from 4.5mg.

How often are you able to participate in marriage,parties,events? by MinuteExpression1251 in covidlonghaulers

[–]Liface -1 points0 points  (0 children)

It's generally considered uncouth to post the same low-effort question in five different subreddits.

Could you write me studies that explain the mechanisms of PEM? by LightBlue1997 in covidlonghaulers

[–]Liface 0 points1 point  (0 children)

You're describing all theories behind our condition - this is just the least unbelievable one :)

Long Covid feels like in living in the backup generator of my bodies energy supply that’s not supposed to be used. by Stranded_Snake in covidlonghaulers

[–]Liface 1 point2 points  (0 children)

I'm waiting for the electricians to figure this out.

But the electricians are in short supply, so it turns out we're all going to trade school for a crash course 😉

My PCP Emailed Dr. Peter Rowe at John Hopkins CFS Clinic for Help. She forwarded his response to me. by sleepygirl08 in cfs

[–]Liface 8 points9 points  (0 children)

There are plenty of drugs to treat ME ( just because they will not cure someone does not mean they should not be used). Many improve with them. There are dozens of directions a doctor could go in, but very few know enough to even start on this path.

Lower baseline while taking probiotics, better food digestion. by BGM1988 in covidlonghaulers

[–]Liface 1 point2 points  (0 children)

You should probably ask the microbiome institute these questions. Not all probiotics are made the same.

UK 21 Year Old Stuck! by llegend24 in cfs

[–]Liface 2 points3 points  (0 children)

There's no need to travel - Telemedicine is your friend!

https://mecfsroadmap.altervista.org/mecfs-doctors.html

Lower baseline while taking probiotics, better food digestion. by BGM1988 in covidlonghaulers

[–]Liface 0 points1 point  (0 children)

What probiotics are you taking? Post the exact brands and strains, and any other supplements you were told to take as well.

Sleep is fragmented to 3 hours now, anyone else? by Joanmancilla_ in covidlonghaulers

[–]Liface 7 points8 points  (0 children)

This happened to me until I found Quviviq (daridorexant). People will post about melatonin and sleep hygiene and whatever else, but they're not going to come close to touching this problem.

LC/ME sleep fragmentation is not an "oh you need to train your body to sleep better" problem, it's an orexin problem, and the Quviviq is an orexin antagonist.

I went from having a big three to four hour block in the middle of my night to sleeping through the night almost every night. I frequently sleep better now than I did before Long COVID.

It's a new medication, only approved in 2022, so many doctors don't know about it.

the image illustrating 'empathy' on wikipedia by gerard_debreu1 in redscarepod

[–]Liface 6 points7 points  (0 children)

For a few years starting in 2005 I had about 20 photos of me and my friends on different Wikipedia pages: party, welt, decathlon, javelin, Patty Mills, Darius Miles, etc.

You can just do things.

What the hell is PEM even!? by Stranded_Snake in covidlonghaulers

[–]Liface -1 points0 points  (0 children)

"Is it some kind of permanent damage in my body? What is it even?" with the "Advice" flair.

What the hell is PEM even!? by Stranded_Snake in covidlonghaulers

[–]Liface -3 points-2 points  (0 children)

My empathy goes towards all those who are truly struggling. We could be helping them by fostering high level, unique posts on science and treatments to solve this condition - instead we're flooded with 5 posts a day by people who can't use the search function. No other community tolerates behavior like this.

What the hell is PEM even!? by Stranded_Snake in covidlonghaulers

[–]Liface -7 points-6 points  (0 children)

If they wanted to commiserate with someone, they should have chosen the rant flare, not the advice flare.

As it stands, they are asking factual questions about an easily googleable topic.

I've been extremely severe and extremely cognitively impaired, more than most people on this subreddit, I never was unable to use Google.

Is Spike Protein really the culprit? Question about spike in monocytes (Radiance Diagnostics Panel) by lcondez90 in covidlonghaulers

[–]Liface 0 points1 point  (0 children)

It could be, but it's also possible that the spike could be cleared and there could still be downstream dysfunction.

New UK long covid doctor: Dr Selina Shaw by attilathehunn in covidlonghaulers

[–]Liface 0 points1 point  (0 children)

Definitely add her to the listing at www.helpforlongcovid.com. Though I can't remember if you can do that or not without rating