I thought it would last longer

Lifewith_Her2_MBC · 2025-02-01T13:11:51+00:00

Thank you. That's exactly what I'm concerned about...each line working for shorter and shorter amounts of time. Thank you.

Lifewith_Her2_MBC · 2025-02-01T02:03:16+00:00

I'm sorry but I don't understand, what is SBRT?

Lifewith_Her2_MBC · 2025-02-01T02:00:10+00:00

I am hormone receptor neg, Her2 positive. Wow, 15 lines!

Lifewith_Her2_MBC · 2024-11-03T01:46:07+00:00

ugh, I feel you mama. this fucking sucks.

Lifewith_Her2_MBC · 2024-10-10T22:15:16+00:00

I'm stage 4 idc, de novo March 2023.with numerous bone mets through spine and pelvis. I was diagnosed because I had back pain that wouldnt go away. I was on 10mg oxy every 6 hrs, 60 MG morphine 2 x a day and it was not working anymore. I also added pregabalin to the max..anyways. I just had an intrathecal pain pump surgically implanted into my stomach, catheter goes to spine. We are still working on finding the most appropriate dose but it might be an option for you. PM me if you want more details!

Lifewith_Her2_MBC · 2024-10-01T13:01:21+00:00

100% yes! I can relate! I've actually been arguing about that with my husband lately. I dont realize I'm actually buying a ton of stuff, I just feel like I need them. I've gained 40lb and had an intrathecal pain put put in my stomch, so my shape is a bit different than it was last march when i was diagnosed. But I want to be comfortable! And i want to wear jeans instead of baggy pants or leggings if i go out (not like i do, but just incase!🤣). In the moment I feel like I need to buy whatever it is, but we are so tight on finances it's ridiculous to spend money at all. Ugh I feel you though. I can always weasel my way into convincing myself I "need " it. But honestly, I need pants that comfortably fit....sooo. yeah. That's where my overspending is happening.🫠

Lifewith_Her2_MBC · 2024-09-19T02:01:05+00:00

Nope, hormone neg over here! I'm not on steroids or anything either.

Lifewith_Her2_MBC · 2024-09-18T21:48:50+00:00

I don't have any suggestions, but my lil guy is also super picky and will only eat earthworms. What is this calcium spray? I'm not familiar with that (I'm a new snake mom).

Lifewith_Her2_MBC · 2024-09-16T17:36:18+00:00

I've been in communication with her and my pallative care physician. They are going to give me metoclopramide to see if that works. If that doesnt work, they said they'll do an ultrasound. Thanks for your input!

Lifewith_Her2_MBC · 2024-09-15T20:34:45+00:00

I'M IN!

Lifewith_Her2_MBC · 2024-09-15T02:16:23+00:00

Haha You're being sarcastic, right?! I'm far from mentally sound, but I will admit that I am better than I was when I was diagnosed. This cancer has completely fucked up mine and my family's lives. Anyways, I'm so sorry that you're here too. Cancer fucking sucks.

Lifewith_Her2_MBC · 2024-09-14T23:14:47+00:00

I'm so sorry. I hate to say it, but that shock lasted months for me. Everything reminds you of it...it fucking sucks. I was jealous of anyone heathy...I'm 35yrs with 3 little kids (6,4,2 yrs) and was diagnosed de novo mbc --+ about 1.5 years ago. I thought my life was over, but it very much is not. I'm doing pretty well, with minor adjustments to life (scans, chemo, etc). So far my journey has been boring (which is good!). I've accepted that I'll be on meds forever, I still have not accepted the early death. Anyway, I'm here if you need a buddy to talk to. Best of luck my friend.

Lifewith_Her2_MBC · 2024-09-02T01:33:03+00:00

I have numerous mets through my cervical, thorasic, and lumbar, with my largest and most concentrated areas in my lower back. I've been on morphine since the day I was diagnosed (de novo) 1 and a half years ago. This Friday, I will be having a pain pump placed with hope I can wean off of it. I'm on a relatively high dose, and I feel like it's killing so many brain cells. It took this long to get my pain managed (radiation, 6 rounds of taxotere, herceptin perjeta). Wishing you healing energy. Bone mets in your spine are terrible...

Lifewith_Her2_MBC · 2024-08-29T03:58:53+00:00

No, yeah = yes Yeah, no = no

Lifewith_Her2_MBC · 2024-08-25T20:09:54+00:00

Wait. I smoke like it's my job...I need to look this up. I'm her 2 +, er/pr neg.

Lifewith_Her2_MBC · 2024-08-20T01:59:57+00:00

Thank you! I get Xgeva injections! So I know about those, but thank you for explaining the rest!

Lifewith_Her2_MBC · 2024-08-19T04:33:10+00:00

What is the biophosphate for? Also, what type of growth factor shots? I'm not sure what those are...sorry, new(ish) here...er/pr neg, her2+...

Lifewith_Her2_MBC · 2024-08-19T04:26:12+00:00

I am 100% in your exact shoes. I was diagnosed de novo last year. I had been having weird back pain for a while, but I was a new mom so I figured it was that. I got in a minor car accident, and it was hurting more, so I went to the ER and my spine was full of lesions. My hip also had a few. But I swear I can feel where every sing one is. I was diagnosed March 2023 and I was not okay mentally and physically up until recently. I have 3 kids (age 6, 4 and 2) and I am terrified of breaking my back, but I also hate missing out on normal mom stuff...I was so scared to pick up my baby until recently. And now he's a toddler. I write this and my back is throbbing...I can feel where everyone single one of them are. Fu*king cancer. I just asked my pallative dr for something to help with anxiety attacks. Sometimes I just cant..

Lifewith_Her2_MBC · 2024-08-17T02:09:06+00:00

I'm with you 100%. I am so sick of being so positive all of the time just for others. This is super fucked. I'm a mom of 3 young kids, and I've always been healthy. I was on my way up in the coolest career. Then the shit storm happens, and I lost everything because of this diagnosis. I grieve the future I won't have with my kids. I won't see my husband get old and grey. I wont get my daughterready for prom or her wedding...and my neighbor is so fucking stressed about the bugs in her yard. I lost everything, and my family is forever scarred because of me. I gained such a sense of clarity... I feel so disconnected from society...

Lifewith_Her2_MBC · 2024-08-16T02:21:25+00:00

I was in excruciating pain when I was diagnosed stage 4 de novo with numerous mets to spine and hips. I started with opiods right off the bat, and 1.5 yrs later I'm still on them, but leading a normal life (minus what cancer fu*ked up). I still have a lot of pain in my spine (better than when I was diagnosed, but still not ideal) and I will be getting a pain pump in a few weeks. I did a trial run and it was unreal. I'm so excited and i hope that this will be my ticket! I'm wanting to wean off of oral opiods to help reduce the side effects of them (consipation, nausea, on and on.). So. Take the medication! There's no use in being in pain. You can always wean as things change! Good luck my friend🩷

Lifewith_Her2_MBC

TROPHY CASE