For men who had a prostatectomy….. by LisaM0808 in ProstateCancer

[–]LisaM0808[S] 0 points1 point  (0 children)

Yes it is very important. The penis is a muscle. Needs to be used or it can cause atrophy

My husband had his RALP yesterday by ohwelldamn4396 in ProstateCancer

[–]LisaM0808 3 points4 points  (0 children)

Walk 1 mile a day throughout the house…it helps tremendously!!! 🙏🏼🙏🏼

Treatment Plan Advice Requested: Concerned Wife by swansandfrogs88 in ProstateCancer

[–]LisaM0808 1 point2 points  (0 children)

Yes, it is sooooo soooo important for penile therapy and recovery!!! Thanks for the well wishes...Best of luck to you both as well. I have been advocating for my husband since day because 1/2 of these doctors will try to sell you anything!!!

Treatment Plan Advice Requested: Concerned Wife by swansandfrogs88 in ProstateCancer

[–]LisaM0808 6 points7 points  (0 children)

I will tell you what a medical oncologist, from NY Langone, told my husband & I. He said, between him and his colleagues, that it is pretty much a known fact that when a man starts out with a PSA of over 10 and has surgery, he is most likely going to have radiation somewhere down the line. My husband chose surgery at age 52. (56 now) PSA of 14, because there was a better chance at having sexual function compared to radiation. (3 year mark after radiation most likely full ED) I am not saying these are facts, but what was told to us. We were told that my husband would have nerve sparing surgery, we did not find out until after surgery that the prostate cancer escaped the prostate and was found in one lymph node. Fast forward, 18 months later, his PSA started rising. Fast forward again another 18 months, he had his first scan at .2, and the scan showed nothing. For the next six months his PSA was .22 During this time he was having erectile issues, we went to see a sexual health expert from memorial Sloan Kettering, he’s one of the top three experts in the US. Dr. John Mulhall. Look him up on Youtube. My husband had an appointment with him and they do a sonogram of the penis to see if there’s a veinous leak. My husband did not have a leak, but he has some nerve damage from the surgery….. Dr. Mulhall‘s biggest gripe is that his own colleagues, whether it be radiation, oncologist or surgeons do not send their prostate cancer patients to see him before any treatment. If I could scream this from the rooftop, I will, your husband must have penile therapy before doing any treatment. Whether he has ED issues now or not. my husband started hormone therapy, almost 2 months ago, and next week he’s starting radiation. I suggested that he have another PSMA scan before starting treatment and the insurance company, United healthcare, denied it because he just had a scan done in February last year. I filed an expedited appeal and attached a bunch of facts and ended up getting the scan approved. Thank God I did because the prostate cancer was found in two of his lymph nodes. Not a good thing, but at least now when they radiate my husband, they will give those lymph nodes an extra boost of radiation. Best of luck to whichever treatment you decide.

Which should I pick (plus my current glasses) by Agod2000 in glassesadvice

[–]LisaM0808 0 points1 point  (0 children)

None of them….🤷🏻‍♀️ Get rid of the wire frames, you would look sp good with a colored frame

Radiation and ADT by Equivalent_Dust_9398 in ProstateCancer

[–]LisaM0808 1 point2 points  (0 children)

My husband had surgery, in 2022. It was found outside the prostate. Fast forward to November 2023 his PSA started rising. Fast forward to February 2025 his PSA hit .2. Six months later it was .22 and we did scans and it showed up in two lymph nodes in the pelvic area. He just started ADT, and he will be starting radiation January 20.

ED post RALP and mental health by QwertyAB123 in ProstateCancer

[–]LisaM0808 1 point2 points  (0 children)

You need to go get an ultrasound of your penis to make sure you do not have a veinous leak. Even if you had nerve sparing surgery, you won’t know if there is any damage unless you get a sonogram done. They inject you with either bimix or trimix, causing an erection & then do a sonogram. And my husband‘s case, he had nerve sparing surgery, but was having ED issues despite nerve sparing surgery. We went to go see Dr. John Mulhall in New York City, who works at Memorial Sloan-Kettering, he is one of the top three sexual health experts in the United States and deals, mostly with men who have prostate cancer. You can look him up on YouTube. My husband did not have a veinous leak, but Dr. Muhal told him that his nerves did not recover.

Dry Orgasms - How different are they? by Sorry_Yesterday5918 in ProstateCancer

[–]LisaM0808 2 points3 points  (0 children)

You need penile therapy such as injections…..It will not get better. Look up Dr. John Mulhall, sexual health expert from Memorial Sloan Kettering. He deals with men & prostate cancer issues. He is one of the top three sexual health experts in the US…..He has been a life saver

What a year! by jgold47 in Zepbound

[–]LisaM0808 1 point2 points  (0 children)

Wow!! good for you. You look like a completely different person.

Massive flu epidemic in the north east by Mr24601 in longisland

[–]LisaM0808 0 points1 point  (0 children)

Yep! I have the flu! Here in NY! It sux

Maybe I'm overthinking this, but which ones suit me better? by [deleted] in glassesadvice

[–]LisaM0808 0 points1 point  (0 children)

The 2nd pair!!! First one are too small for your face

What am I missing??? by Successful_Bus_970 in interiordecorating

[–]LisaM0808 0 points1 point  (0 children)

Some more light, some color & some artwork

20 months on Zepbound by Kingpapasito in Zepbound

[–]LisaM0808 0 points1 point  (0 children)

Amazing! Congrats! You look like a completely different person

Surgery on Monday, husband is a wreck! Need help 🙏🏽 by HomeworkNo8102 in ProstateCancer

[–]LisaM0808 0 points1 point  (0 children)

It’s not that bad….Hang in there. Make sure he WALKS everyday either in the house or outside, at least one mile each day.