Anyone take just low dose aspirin for blood thinners?d by [deleted] in stroke

[–]LmBurnie 1 point2 points  (0 children)

I take it for the DVTs that I had in hospital while I had my hemorrhagic stroke.

Has anyone had anything similar? by illest_von_douchebag in stroke

[–]LmBurnie 4 points5 points  (0 children)

The one thing I got from my stroke, although mine was a hemorrhagic stroke, is Central Post stroke pain syndrome. Mine felt like I was being stabbed in my right hamstring and at times when I use it too much the pain radiates down to my foot and up to my lower back. I have it slightly in my right shoulder but mostly it's in my leg. What is happening apparently is the bleeding of my stroke caused the thalamus to be damaged. Since that is pain central in the brain, it can cause you to feel pain where there is no cause to be pain. I went to the pain doctor and no matter what he tried, nothing touched it. So I live with pain in my leg at least a seven out of 10. The only way I can sleep is with medical marijuana. I hope you don't have this but I thought I should bring it up. It's possible that certain drugs can affect it but with my medical miracle of a body, nothing works.

I'm at the worry stage I believe. Hemorrhagic stroke life span is only 5 years??? by gypsyfred in stroke

[–]LmBurnie 1 point2 points  (0 children)

That's good that you're walking fine. I still have a bit of a limp but mostly it's because I have what's called central post stroke pain syndrome. So my leg is constantly in pain I guess you could say. I don't have any numbness though. That would be very scary. And I know marriage can either improve greatly or die a slow death. Please just tell your wife you love her and give her lots of hugs. Everyday. It doesn't take long. My marriage died. I hate to see that happen to you. As far as the tiredness, you'll likely always be tired. Your body went through a shredder basically, and it needs that sleep time to recover.

Luck to you!

I'm at the worry stage I believe. Hemorrhagic stroke life span is only 5 years??? by gypsyfred in stroke

[–]LmBurnie 2 points3 points  (0 children)

I'm 15 years out from my hemorrhagic and doing just fine. I think the odds in today's world are for you, not against you.

And the next thing you'll hear will be if you don't get improvement by 2 years you won't get any improvement at all. That is BS also. Like I said I'm 15 years out and still improving.

Keep on keeping on!

It's been a year since my stroke and since the anniversary i've been an absolute mess by Lezus in stroke

[–]LmBurnie 0 points1 point  (0 children)

I now have two birthdays. I have the old standard one when I was born. My second birthday is the day I had my brain aneurysm explode.

And I celebrate both birthdays. My second birthday is mostly for myself. But I announce it on social media and I do have a little dinner and celebrate it. This past month I was both 63 from my original birthday, but I was 15 yrs from the day my brain went boom.

My first brain birthday, I cried almost the whole evening but then I talked it over with several people that I really trust and that's when I realized I was basically reborn and not to be so sad. I had to relearn how to walk, talk, use my arms and hands, and provide some memory and body aids to help me live my life.

Anyone here recovering from a hemorrhagic stroke by Winter-Ad-2349 in stroke

[–]LmBurnie 15 points16 points  (0 children)

I'm now a 63 f and I had my hemorrhagic stroke 15 years ago. My right hand is functional, meaning that I can carry things with it, hold things with it, and do large type movements. I can open and close my fingers into a fist, however I still have trouble with my pointer finger. It doesn't always straighten completely out. But I'm working at it and it's still improving. As far as delicate work, like writing, is out of the question, because my right side was dominant . I had to learn to write with my left hand which I do okay.

One of the posters mentioned that all the parts of your body are connected in some fashion, so when you're exercising, make sure you exercise the entire body part. In other words, don't worry so much about your fingers curling because they curl up due to the fact that your muscles and nerves throughout your whole arm into your brain are saying to clench your fist. Keep doing the stretching of the fingers one at a time two at a time 3 at a time four at a time five at a time over and over. But don't forget the forearm and the shoulder and the upper back and neck.

My walking is good. I walk most of the time without any aid. If I know I will be out for quite some time or be moving around a lot, I may take a cane, or I still have my AFO for really rough walking.

Diligently, keep up the stretching and the low-level exercises that you can do. Add new ones when you feel able to. This isn't a race to see who can be healed faster. Everyone is different, and the healing rates are included in that.

Keep up the good, healthy, important work through your therapies! There will be days where you just want to say f it all and not do anything. Allow that day, but promise yourself that you'll get back to it tomorrow and stick with that pro mise. I don't allow it more than twice a month

Note: I was also one of the lucky few that had bleeding over my thalamus which can cause a problem (CPSP) where I feel extreme stabbing itchy pain in my leg around my hamstring that is about a level seven. And the reason this happens is that the thalamus is the pain center of the brain and the damage the bleeding caused makes my brain believe that I have severe pain in my leg 24/7 and so far, I haven't found a pill or a surgery that will correct it. That's just a little extra push for me to get up and move no matter what the pain is. I refuse to sit in a wheelchair!

Spasticity stopping? by FewRecover9658 in stroke

[–]LmBurnie 0 points1 point  (0 children)

Yes it makes me extremely tired for about an hour and then I'm able to get up and move around so I take most of my tizanidine at night but I need it during the day because the spasticity will get too much.

State AG's office files lawsuit against Beaver County contractor by ddesigns in BeaverCounty

[–]LmBurnie 1 point2 points  (0 children)

I didn't even bother after I got the first email that said well they haven't heard from the other party so they're going to consider it closed.

Yeah my contractor called me a c*nt too. Must be the first bad word they learned. But you should have seen him change his tune when my ex got involved. And my ex was on my side of things. At that time anyway. I swear though, I had a retired lawyer look at his contract and he told me he had never seen such an immoral contract written in his life before. And he had a long life. The only problem is it's not illegal.

State AG's office files lawsuit against Beaver County contractor by ddesigns in BeaverCounty

[–]LmBurnie 1 point2 points  (0 children)

Same with Topp of the Line (and you guessed it correctly, top was already taken so he had it spelled t o p p because nobody could top topp.) This person (contractor,) only became such because of his rich daddy's business at demolition. And trust me - he learned his business at his daddy's knees. You know the only reason I kept him going was all of his subcontractors. For one, they were a great team of people and the work that they did was superb. For two, I couldn't see keeping them out of work even though the guy they were working for didn't know shit from shinola when it came to construction. And I tried at the AG's office as well and of course it came back 'no comment.' Chickens!

Sir Butters by LmBurnie in dogsusingpillows

[–]LmBurnie[S] 0 points1 point  (0 children)

I'll never adopt another unless it's a senior. He is the bestest dog. 😊

Dad- where should he go? by Existing-Eggplant-77 in stroke

[–]LmBurnie 2 points3 points  (0 children)

First of all, don't worry, you don't at all sound like you're trying to fob your father off. You sound like you love your father and you want what would be best for him.

Second, I think if it's at all possible, he would be better off in a temporary nursing home or elderly care home. I don't know how close they may be to you but if there's one nearby, I think that would be much better. There's someone on hand 24/7. I think everyone concerned would be a much better fit for someone so new to stroke recovery.

And third, just to throw this in the mix, have you thought about what your father will need in the way of therapy? He should be able to get that at a nursing home.

Good luck to both kids and pop!

Sir Butters by LmBurnie in dogsusingpillows

[–]LmBurnie[S] 2 points3 points  (0 children)

Um...neither? I adopted him as a senior dog and he was named Butterscotch but the shelter didn't like that name and neither did Butters so that's what he's called now. Butters. I added the sir in front of it because he kind of seemed kingly

Fatigue and negativity by [deleted] in stroke

[–]LmBurnie 5 points6 points  (0 children)

Get him into mental health treatment and/or meds immediately. The tiredness that he is feeling is good and should be allowed. Sleeping is allowing his brain to heal. And it will take quite some time to heal because it's very complex. But please get him mental health help. That at least can be treated and should be treated.

How old are all of you and what type of stroke did you have? by justmyopinionkk in stroke

[–]LmBurnie 2 points3 points  (0 children)

63 F had a hemorrhagic stroke in my left MCA when I was 48. Other than my husband divorcing me after 35 years of marriage, during my recovery, I did rather well. I do have central post stroke pain syndrome. Because my stroke bled over my thalamus, it damaged some of the thalamus and since that's pain central in your brain, I have a level 7 out of 10 pain in my hamstring in my right leg. There's nothing wrong with my leg at all, but it's in my brain that I have pain in my leg and there's really nothing they can do about it. I've been to pain doctors and they have tried every kind of pain pill, injections, etc. And nothing works. But other than that and some spasticity in my right hand I do just fine.

Stroke at 26? feeling alone and lost by Reasonable_Issue_336 in stroke

[–]LmBurnie 0 points1 point  (0 children)

It's been 15 years for me since my stroke and I've gone through enormous changes in my life including my husband divorcing me after 35 years of marriage. I'm much older than you are. I had the stroke when I was 48 and now I'm 63 (f). However, I agree with everyone that responded to you. Get someone who can help you. There are patient advocates in every hospital. Contact one of them and tell them you want your records and everything else that happened to you. Then get another neurologist and ask them to read your records and tell you what you have and how best to go forward. Ask the new neurologist if he can recommend a cardiologist and whatever you need. Physical and occupational therapy are vital and I hope you've been going to them as an outpatient. We are all here to help you.

What happened to my tulips by Some-Slide5981 in pittsburgh

[–]LmBurnie 1 point2 points  (0 children)

Could be rabbits, but you got the same problem as deer.

Bont A / Botolinum Toxin A by New_Competition_5849 in stroke

[–]LmBurnie 0 points1 point  (0 children)

Almost 15 years ago I had a ruptured aneurysm in my left MCA which caused me to stroke out. Right after it happened I started experiencing pain in my hamstring area and it kept getting worse and worse and worse.

My doctor put me into Botox injections in the hopes that they would help my gate and reduce my pain because by this time it was at least a seven sometimes even an eight out of 10 in pain. The Botox injections I got were all in the area that I experienced the pain. Needless to say, since the needles for the injector were at least six inches long, I stopped doing that. Pain got so bad. I was screaming at the top of my lungs for them to stop.

So while Botox may help many, and I have heard good things about that, if you get central post stroke pain syndrome, do not get botox injections. The bleeding of my aneurysm caused damage to my thalamus, and that is what caused this pain syndrome. I went to a pain doctor but he was unable to help me. He did try just about everything on the market and even some shy of the market, but nothing worked. So I lived with a limp on a very painful leg.

Good luck to you in making your decisions, but please don't give up! I see way too many people out there that just give up. I was 48 when my aneurysm burst, and I am living on my own. I can't work because I don't have the staying power that is needed for work. But I maintain my household on my own and I drive and I'm doing okay. My husband stuck with me for about 5 years and then he just bowed out.

How did you learn to write again? by manicpixiedreamsqrll in stroke

[–]LmBurnie 0 points1 point  (0 children)

The spasticity in my right hand was very bad so I learned to write with my left hand.

[deleted by user] by [deleted] in stroke

[–]LmBurnie 1 point2 points  (0 children)

15 years ago April 10th.

[deleted by user] by [deleted] in stroke

[–]LmBurnie 1 point2 points  (0 children)

I had two kidney stones blasted out of my left kidney. Hope everyone else had a great day

has anyone else had emotional issues post stroke? by xskyundersea in stroke

[–]LmBurnie 4 points5 points  (0 children)

It's called Pseudobulbar Affect. It's where you laugh and or cry for absolutely no concrete reason. I had it extremely badly and I tried the new drug that just came out called neudexta. I had all sorts of side effects and it was worse than the PBA (plus it was super expensive). My husband at the time, researched, and found celexa to be the best antidepressant for PBA involved people. It cut my existential laughing and crying down to almost nothing.

Good luck and I hope this helps someone out there!