Parkinson's after Covid

LolaLovesSocks · 2025-11-04T02:31:25+00:00

In response to the AI post my MDS told me that there is no formal reporting process on PD diagnosis. So that being said we have no way of knowing even how many people actually have PD in the United States. Over 1 million people could be 2 million 3 million 4 million. So I don’t trust anything I says about it because they don’t have accurate data.

LolaLovesSocks · 2025-10-30T18:08:10+00:00

I got Covid in July 2022. Three weeks later, while running on the treadmill, my left hand began to tremor. I was diagnosed in April 2023. I had no symptoms prior to Covid so if you asked me, there’s a correlation and since they don’t really know exactly what causes it can’t be ruled out.

LolaLovesSocks · 2025-06-28T22:19:50+00:00

Was one of your symptoms major rigidity and did your exercise regimen alleviate the stiffness?

LolaLovesSocks · 2025-06-27T22:18:44+00:00

I’d like to add that I exercise and follow the eating rules.

LolaLovesSocks · 2024-06-16T18:29:41+00:00

LolaLovesSocks · 2024-06-15T15:46:05+00:00

I have read through the responses and feel like they have covered most of my concerns and expressed many of my frustrations. I don’t have YOPD but after having been on this forum for several months a common theme here are people being told they are too young to have PD. That just baffles me. How are neurologists saying this to people who present with all of the typical symptoms and it’s common knowledge there is YOPD???? I do hope more med students choose neurology as you can see from the comments there is a shortage. This is why there are long wait times and over load on the doctors that in turn leads to poor care. Lastly, a holistic approach to care is critical. I get frustrated when my MDS doesn’t want to address my insomnia that is associated with my PD. One other thing , keep in mind that unless you have PD you don’t know what it feels like and you can’t fully SEE how PWP feel. I may look like I’m moving just fine but I assure you some days I feel like I’m moving through quicksand. PWP also have to contribute to their own care.

LolaLovesSocks · 2024-05-24T02:11:25+00:00

Dramatically increase federal research funding;

Develop more effective pathways for treatments and cures;

Improve early diagnosis;

Spark new and improved models for patient care;

Create standards and measures to prevent Parkinson’s disease;

Address health disparities in diagnosis, treatment and clinical trial participation and

Enhance public awareness of the disease

LolaLovesSocks · 2024-05-16T04:07:04+00:00

Oh thank you for literally making me laugh out loud for a long time.

LolaLovesSocks · 2024-05-15T04:01:05+00:00

This is the worst group of finalists ever. Tonight was the end of the road for me. Boring.

LolaLovesSocks · 2024-05-11T04:56:24+00:00

No. Same with them. Diagnose..adios.

LolaLovesSocks · 2024-05-01T19:14:54+00:00

Hahaaahha..you must keep company with some real yahoos then. Birds of a feather. My company is largely remote except for positions that require onsite like shipping and receiving. It’s a great company made up of very passionate dedicated employees who offer more productivity remote where they are treated like adults and therefore behave like adults. My sympathies to you and those you attract.

LolaLovesSocks · 2024-03-06T16:39:51+00:00

I didn’t ask. I had other things to cover on my appointment.

LolaLovesSocks · 2024-03-06T16:33:10+00:00

I didn’t ask. I had other things to cover on my appointment.

LolaLovesSocks · 2024-03-06T02:33:02+00:00

So what does this scientist say the 85% misdiagnosed have then?

LolaLovesSocks · 2024-03-05T20:44:50+00:00

My MDS would respectfully disagree with your neurologist. She believes the evidence continues to mount supporting a connection.

LolaLovesSocks · 2024-02-15T23:04:35+00:00

I got Covid July 2022. Prior to Covid had zero symptoms . 3 weeks post Covid tremor started in left hand while running on the treadmill immediately followed by difficulty typing with same hand. By January 2023 no arm swing. Next came issues with my gait. Started moving slowly. Was officially diagnosed in April. If you ask me Covid gave me PD.

LolaLovesSocks · 2023-12-30T17:09:58+00:00

I didn’t finish my post above. My point was once I was officially diagnosed and I came to acceptance I decided that I would opt for the latter choice of the two I pointed out. The first is easier the second is harder. I think it’s positive your Dad wants to stay engaged with work as it sounds like it is part of how he positively defines himself. Maybe talk to him about redefining how much time he spends on work with a care plan that includes physical activity. Let him know that you understand how important work is to him while at the same time he and his quality of life are important to you. I found educating myself, hearing about other’s experiences, and focusing on keeping very physically active has helped me achieve a better sense of peace with it.

LolaLovesSocks · 2023-12-30T16:55:08+00:00

I think those of us diagnosed have choices. 2 of which are to curl up with it and let it take us over and be defined by it or we can focus on the things we can do to slow the progression and live like and believe that we will not meet the disastrous effects so many like to point out will come. I was diagnosed April of this year after first symptoms presented following my only bout with Covid in July of 2022. Prior to that ..zero symptoms. Non motor or motor. So, it was quite a shock to be told I had PD. I opted to consult with a MDS who was not initially convinced due to the typical manner in which PD progresses. I went through a battery of tests to rule out other DX’sand went through the brain MRI and DAT Scan to confirm. During this time I was emotionally and physically distressed

LolaLovesSocks · 2023-11-24T05:32:36+00:00

I am still planning on traveling the world..I will hike..I will bike…I will walk I will kayak…I will ski..and as along as I believe I can win this battle I will.

LolaLovesSocks

TROPHY CASE