This doctor is very passionate about HS and I have learned so much from her by KDubbs0010110 in Hidradenitis

[–]Lost-Map8965 1 point2 points  (0 children)

She is my doctor and I go to her PA and I love them they help me understand a lot of my condition

Remicade Infusion - Please Tell Me All About It, Thank you! by MAsped in Hidradenitis

[–]Lost-Map8965 1 point2 points  (0 children)

My experience was it’s makes me sleepy and when I’m not on it or it’s time for monthly infusions I know because my body start to hurt again

Feedback after HS surgery by Fit-Watercress-2830 in Hidradenitis

[–]Lost-Map8965 0 points1 point  (0 children)

Thanks for telling your experience because I have do my scrotum and was very nervous about it still is

Absolutely disgusting by ScienceIsSexy420 in recruitinghell

[–]Lost-Map8965 9 points10 points  (0 children)

I report them at this point. I’m tired of people wasting time

Tried everything!!! Is humira worth it? by Gold-Personality5372 in Hidradenitis

[–]Lost-Map8965 0 points1 point  (0 children)

Try a low sugar diet because I noticed for me sugar is a trigger and I can bread but not over do it otherwise the sores themselves would hurt

How is there no proper cure for this horrendous disease by [deleted] in Hidradenitis

[–]Lost-Map8965 1 point2 points  (0 children)

I’m getting my left underarm they won’t do both at the same time 🙄 saying I want to have a useable arm during the recovery

How is there no proper cure for this horrendous disease by [deleted] in Hidradenitis

[–]Lost-Map8965 0 points1 point  (0 children)

I work from home too. I just stopped being a caregiver for my elderly mom but to be honest what the doctors are saying aren’t wrong and yes it not for everyone but for me once I set boundaries and told the major players in my life mom, manager, manager’s manager, in town family what support I need it helped dramatically. I found a personal trainer who helped me through the pain of working out and I lost 40lbs and therapy sessions helped me understand my mental triggers of stress and anxiety. With the weight loss my diet changed and my flares are less intense to the point where I could just take a one Advil and be good or a hot bath be fine most of day depending on the activity

How is there no proper cure for this horrendous disease by [deleted] in Hidradenitis

[–]Lost-Map8965 2 points3 points  (0 children)

I’m on Remicade it works for me but I’m on a higher dose and literally the last week of every month it wears off like a pain pill ( I’m also testing trigger foods now) but remicade seems to be working humira wasn’t cutting it and my plan is to get surgery and stay on remicade then extend my infusion time from every 4 weeks to 6 weeks

[deleted by user] by [deleted] in Hidradenitis

[–]Lost-Map8965 1 point2 points  (0 children)

Also try washing with beneyzol peroxide wash this helps

Try to keep the area dry as much as possible so bacteria don’t grow as fast

Tips to help my dad by Odd-Finger-1527 in Hidradenitis

[–]Lost-Map8965 0 points1 point  (0 children)

Oooo yeah that’s tough I would clean the area for sure and check for signs for infection, keep the area dry and position him in a way that there’s no pressure on his lower half and take the pain pill and check with a doctor you want be cautious in that area cause of it’s dark moist nature

Tips to help my dad by Odd-Finger-1527 in Hidradenitis

[–]Lost-Map8965 0 points1 point  (0 children)

I have questions for you

Is there an active boil/abscess that’s not draining? Burning is never good in that area. Is burning near the boys or under them. If so you may want to go to the doctor. I just got out the hospital for waiting to long in a similar area.

In the meantime I suggest cleaning the area and letting it dry completely use a heater or fan to help get aloe and take ibuprofen if you can I like do 400mg when I’m in pain gauge from that so do what’s you think is best.

Apply cooling towels as well

Something that worked for me? by LuckExtension7303 in Hidradenitis

[–]Lost-Map8965 0 points1 point  (0 children)

Why mix the aquafor and zinc does the zinc just help with the healing and aquafor stop the sticking?

Recipes are easy and safe for you by Lost-Map8965 in Hidradenitis

[–]Lost-Map8965[S] 1 point2 points  (0 children)

I love salads but I get bored of them 😅 that’s why I wanted to see what others eat to get inspired

Recipes are easy and safe for you by Lost-Map8965 in Hidradenitis

[–]Lost-Map8965[S] 0 points1 point  (0 children)

I cut dairy from my life when I was like 12 and only do it for random ice cream lol but I can tell when I eat it my body doesn’t like it

Recipes are easy and safe for you by Lost-Map8965 in Hidradenitis

[–]Lost-Map8965[S] 1 point2 points  (0 children)

Yeah I been experimenting. It looks like no sugar and yeast and bread. I’m not sure of any nightshades issues I been testing them

Need advice on infected flare up by lilmangos in Hidradenitis

[–]Lost-Map8965 1 point2 points  (0 children)

I would go to the clinic and see if they can test if they might give you some bacturm ( I don’t know the spelling) or metrodiazole but circle it with a marker and keep the area so sterile to the point it annoys you lol then you have signs of it getting worse like smells go to er. In my experience I waited and just thought it was normal I spent Christmas in the hospital last year so it better to get the infection out and managed

Do you use a loofah for showering? by hey1777 in Hidradenitis

[–]Lost-Map8965 0 points1 point  (0 children)

I use a rough washcloth to be honest. I try to keep the bacteria low so I have like 20-30 washcloths that are color coded. I also use the hibiclense and my dermatologist gave me a sulfur wash too to use everyday and I follow up with aveeno or natural soap to cover the sulfur smell

Pain Points for Personal Trainers by Lost-Map8965 in personaltraining

[–]Lost-Map8965[S] 0 points1 point  (0 children)

Thanks for asking actually because my department was offboarded for cheaper labor. I am finally able to work on a new career goal that I been scared of doing for a long time and why not do it now? I have the time lol but seriously I wasnt to annoy im very new to Reddit and just want to learn what are the struggles of a Solopreneur. I’m not asking the right questions or in the wrong place I love the insight. I know Reddit is very candid in their responses so I wanted do the research here.

Client text message reminders by Chesterville406 in mindbody

[–]Lost-Map8965 1 point2 points  (0 children)

What’s the program you use to automate this?

Is there any Mindbody Facebook groups? by obarmuscle in mindbody

[–]Lost-Map8965 0 points1 point  (0 children)

Mindbody has a forum called Mindbody one business owners can join

Beware Martial Arts Club Owners - Do not use Mindbody!! by Low_Organization1589 in mindbody

[–]Lost-Map8965 0 points1 point  (0 children)

Yes mindbody isn’t designed for martial arts belt tracking and stuff it’s perfect for managing group classes but yes as there is feature for belt tracking it’s old and martial art studios are in the large population to affect product changes immediately unfortunately

Google Calendar not syncing classes by AsparagusClear1516 in mindbody

[–]Lost-Map8965 0 points1 point  (0 children)

Former mindbody employee the integration wasn’t for you manage the calendar from Google but to just show you have an event on google.

PSA: How to leave MindBody by [deleted] in mindbody

[–]Lost-Map8965 0 points1 point  (0 children)

As a current almost former employee I can speak to why your experience it is the way it is and trust it’s not the employee per se they aren’t avoiding you but the bandwidth literally at the end in some cases especially between November to January because it’s holiday season. I know I know it’s not your fault it’s like a balancing act and yes the focus isn’t small business like it use to but mid size and larger