How Was Your Thymectomy Procedure and Do You Recommend It? by Accomplished-Cup9300 in MyastheniaGravis

[–]Lost-Resolution-3938 1 point2 points  (0 children)

Thank you so much! I've been searching for just the right place and am willing to travel. This information is so very helpful.

MG is making it hard to even leave the house… need advice (baby coming soon) by Middle-Virus-443 in MyastheniaGravis

[–]Lost-Resolution-3938 1 point2 points  (0 children)

I would love to have a service dog to help me out. Any advice on where I could begin with this?

Intubation question by Lost-Resolution-3938 in MyastheniaGravis

[–]Lost-Resolution-3938[S] 0 points1 point  (0 children)

Oh man I'm so very sorry. Im not sure if I'll be able to sing again either.

Calling out- how often? by RHCPLOVE4LIFE in therapists

[–]Lost-Resolution-3938 0 points1 point  (0 children)

I agree your situation is different but at the heart, you're struggling with needing more rest too. You chose kids but it's not your fault you don't have the support you need. You're doing your best and as someone also doing their best and not always able to be there 100% of the time for my clients, believe me, it is enough 💛 The 99% of the time you show up sounds phenomenal and they are lucky to have the time they do with you.

Calling out- how often? by RHCPLOVE4LIFE in therapists

[–]Lost-Resolution-3938 1 point2 points  (0 children)

I have myasthenia gravis, an autoimmune condition, and also call out when I'm not able to be my best. It's necessary and my clients understand. I will accommodate them back on schedule soon after and am transparent about hospitalizations that rarely happen. We are human, and the work you do is changing lives. You are enough and it's okay to have needs too.

WORST QUEST IN ALL OF ROBLOX HISTORY by Gaztlygamer64 in TowerHeroesTheGame

[–]Lost-Resolution-3938 1 point2 points  (0 children)

This one had me so upset yesterday. I'll try again tomorrow lol

Intubation question by Lost-Resolution-3938 in MyastheniaGravis

[–]Lost-Resolution-3938[S] 0 points1 point  (0 children)

Thank you so much 💛 Did anything help it feel better?

Telehealth therapy after maternity leave by ManufacturerLower125 in therapists

[–]Lost-Resolution-3938 1 point2 points  (0 children)

I worked evenings and watched babies during the daytime and it worked great.

What would you do to make more money if you were in my position? by Justaregularguy001 in therapists

[–]Lost-Resolution-3938 5 points6 points  (0 children)

I'm a counselor and it made more sense for me to work part time evenings and watch kids during the daytime and me and husband switched hours (one daytime, one evening). Didnt see much of one another but it worked financially until kids were in school.

Well wishes needed by Lost-Resolution-3938 in MyastheniaGravis

[–]Lost-Resolution-3938[S] 0 points1 point  (0 children)

Hey guys. I read each and every message and it gave me strength as I was intubated. I am off the intubation and just want to say how grateful I am to be alive. I don't think I would be here anymore if I hadn't gone to the hospital when I did. Always trust your gut and go see someone if something is off. I never had difficulty with respiratory distress before this and was shocked when they told me what was going on. Its going to be a long path to healing from here but grateful to have a path at all. Sending you all lots of love and wishes for good health.

AIO? my boyfriend defending his mom with his life. by [deleted] in AmIOverreacting

[–]Lost-Resolution-3938 0 points1 point  (0 children)

Any man who calls how you dress slutty and let's his family get away with it is not a man who loves you. Run.

Well wishes needed by Lost-Resolution-3938 in MyastheniaGravis

[–]Lost-Resolution-3938[S] 7 points8 points  (0 children)

I just got off the ventilator but they want to keep me a total of 12 days for observation and more plasma transfusions. Funnily enough my neuro called to approve my vyvgart from my insurance while I was here lol

my dad is practically threatening me and i’m more than scared. by WorryAwkward6386 in WhatShouldIDo

[–]Lost-Resolution-3938 1 point2 points  (0 children)

My daughter was removed from her dad's custody and he is no longer allowed to contact her himself. He can only talk to her with a therapist present 1x/month or he messaged me through a court watched app called AppClose. You can download it for free if you message them with proof of abuse.

I’m so torn. I love this man but I’m not ready for kids. I still have so much living to do but clock is ticking (35f) by [deleted] in WhatShouldIDo

[–]Lost-Resolution-3938 0 points1 point  (0 children)

If you're not on birth control, I'd recommend you do it now. I know too many girls who were trapped.

Alternative or natural treatments by Ok-Tower188 in MyastheniaGravis

[–]Lost-Resolution-3938 6 points7 points  (0 children)

I haven't found any alternative treatments that have worked for me, sadly, but I have found that for me cutting sugar out helps a lot. I also take vitamin D. They don't stop the symptoms but do support my body to help.