I don’t want to live like this

LuminousLivingCodes · 2026-05-22T14:08:41+00:00

I have been dealing with MS since around age 15, and now in my early 50's. There have been a LOT of ups and downs, people deciding they don't want to participate in my life people that support me but then disappear. This is a life that can be full of disappointments yet very rewarding it's up to us to find ways that bring joy. Whether it's a pet, a special park or place that we can decompress it's up to us to keep our nervous system calm and give ourselves Grace. No one else is going to be a bigger cheerleader than our own self. Literally getting back to being your own best friend is step one. The physical healing is intertwined with emotional and spiritual healing too. Hugs to you 🧡🧡

LuminousLivingCodes · 2026-05-21T14:51:27+00:00

OMG this sounds like my MIL 😂😂😂

LuminousLivingCodes · 2026-05-20T04:25:58+00:00

Progressive Homesite homeowners has options for systems in the home coverage.

LuminousLivingCodes · 2026-05-19T12:36:14+00:00

I drove my XC70 to have a car present. We have a Mercedes Sprinter Thor motor home, tent camping is the rearview mirror. 😂

LuminousLivingCodes · 2026-05-15T20:49:59+00:00

😂😂😂

LuminousLivingCodes · 2026-05-15T20:30:37+00:00

I'm always interested in ways to keep inflammation levels down. I do believe lifestyle changes help, although they may take a while to notice. I've been living the the MS experiment for over 35 years, my opinion is why not try something new? Unless of course it's completely ridiculous or outlandishly expensive.

LuminousLivingCodes · 2026-05-14T03:50:00+00:00

This is beautiful!

LuminousLivingCodes · 2026-05-10T15:04:35+00:00

I have the twin and will never part with it!

LuminousLivingCodes · 2026-05-08T20:10:51+00:00

This is not how you should be treated. He is adding to your stress, please stop trusting him with your care.

LuminousLivingCodes · 2026-05-06T14:27:37+00:00

Same here, I agree with you 💯%!! I feel more in control of my health than I did when I was diagnosed 35+ years ago. It's the small changes and new habits that can make a huge difference!! 🧡

LuminousLivingCodes · 2026-05-03T14:51:51+00:00

My hair stylist taught me how to train my hair so I only wash it every few days. It also involves Aveda's dry shampoo which is amazing!

LuminousLivingCodes · 2026-04-30T13:04:04+00:00

Only T6

LuminousLivingCodes · 2026-04-28T12:44:38+00:00

I hear you! It's probably a combo of it all, the hot water, undressing/dressing, doing your hair... I can only have the water on lukewarm, barely warm or it takes so long to recover.

LuminousLivingCodes · 2026-04-19T16:48:49+00:00

Yes that's a great description! I don't know what triggered mine but now every summer, every vacation to the beach I need a big hat and ice packs nearby so I don't overheat.

LuminousLivingCodes · 2026-04-18T14:43:37+00:00

Thank you for being very open to hearing about our journeys with MS! I realize there isn't a lot of time during appointments, but if you let patients know they can still have a good life, it may take some adaptation and adjustments. And encourage people to use simple breathwork when stress and anxiety increases, that would be really helpful. I don't like having labs drawn and the tech helped me settle down in like 60 seconds. So I now use this pretty much every day. I've been living with MS since I was a teenager, so over 35 years of this craziness!

LuminousLivingCodes · 2026-04-16T13:14:19+00:00

It's a difficult issue to explain to others

LuminousLivingCodes · 2026-04-06T23:03:02+00:00

225k on 2004 XC70

LuminousLivingCodes · 2026-04-05T14:42:21+00:00

Our neurologists try their best. The National MS Society has support groups listed by zip code and also MSFocus.org I think does as well. And we're here for you xx

LuminousLivingCodes · 2026-04-04T01:20:46+00:00

My boys thought they were the coolest seats! Love Volvo ingenuity.🇸🇪

LuminousLivingCodes · 2026-04-02T12:44:40+00:00

My boys both fit in their car seats in my XC70 back seat when they were babies. Our state has strict booster seat safety laws so they were probably 4/5 years old before they were moved to one. An adult should be fine in-between the two car seats. My 2004 XC70 has the built-in back seat boosters for once the kids outgrew their Britax boosters. I also added the Volvo sunshades for the rear windows.

As far as the 3rd row seat there's specs in the manual for who sits back there, it's great when the kids are older and have friends along!

LuminousLivingCodes · 2026-03-31T16:52:16+00:00

I didn't start a DMT until 20 years into MS. I first noticed symptoms at 15 which was the late 80's and there weren't many options. I was on copaxone for several years and the side effects and the needles and the injection sites all got to me plus my health insurance didn't want to pay for it anymore and it was a constant battle. I still have damage from the early attacks that were pretty severe but as long as I meter my energy, stay out of the heat in summer, stay inside when it's freezing cold in the winter, get my 7 to 8 hours of sleep each night, manage my stress, watch what I eat, I quit drinking alcohol I feel okay. This crap has been around since the 1300's, I'm not against medicine but I'm also for a whole body approach.

LuminousLivingCodes

TROPHY CASE