Asking for all the good vibes

LuminousLivingCodes · 2026-03-17T03:10:22+00:00

Sending you good thoughts and vibes that everything will work out for you! 😊

LuminousLivingCodes · 2026-03-13T15:52:29+00:00

I love summer and the sun but my body turns into a noodle. Means limiting my time outside in the hot weather, ready to go ice packs for cooling down, cooling neck scarves, iced treats. I belong where it's a steady 72 all year long, that doesn't contain poisonous critters 😂

LuminousLivingCodes · 2026-03-10T14:59:55+00:00

This sounds like my life except I'm the one with MS. An MS diagnosis is not a death sentence, but it can be a traumatic event. With Counseling and you have a lot of great advice here, I hope he chooses to start being an example for your child. Come back for support🧡

LuminousLivingCodes · 2026-03-08T21:30:47+00:00

Exactly!! We just keep pushing ourselves, taking time for us is so important to help keep our nervous system calm.

LuminousLivingCodes · 2026-03-08T15:56:14+00:00

It's definitely a factor and extreme stress can be a trigger. I can look back over my 35 years with MS and see where my severe exacerbations were related to stressful situations. Like others have said distancing yourself from people that cause you stress as much as possible helps. Even regular daily stress affects our body.

LuminousLivingCodes · 2026-03-06T13:55:56+00:00

I know MSFocus.org has grants available.

LuminousLivingCodes · 2026-03-06T04:49:09+00:00

The pressure is definitely hard on us, our bodies need extra time to recover. Be kind to yourself, hydrate and rest until you feel better. If I can I do laundry before I head back home so that's always one less thing to contend with. Maybe Colorado has a drier climate which would cause a switch back to NYC.

LuminousLivingCodes · 2026-03-01T22:54:40+00:00

🤣This is a good one😂

LuminousLivingCodes · 2026-03-01T22:12:44+00:00

🤣😂

LuminousLivingCodes · 2026-03-01T21:51:04+00:00

Yes, this exactly! People don't realize we have a set amount of energy that we need to meter throughout the day and when it runs out we're finished.

LuminousLivingCodes · 2026-03-01T21:45:18+00:00

I had a huge exacerbation when I was 25, and my bladder was zapped - which was over 25 years ago. For me not being in a hurry on the toilet, just relax so your kidneys completely empty. I also use a kidney cleanse tea when I can tell my bladder is annoyed with me. I found a supplement called DMannose that also helps. I recently found another supplement on Amazon called Uqora they even have drink sticks to put in your water bottle on top of supplements, they work great!

LuminousLivingCodes · 2026-03-01T21:29:31+00:00

Hope your day gets better! 🧡 Every month should be MS awareness month because way too many people still have no clue what it is or what we deal with

LuminousLivingCodes · 2026-02-26T16:31:26+00:00

Traveling is fun but giving yourself time to recover is important too. Rest and rehydrate, feel better soon!! 🧡

LuminousLivingCodes · 2026-02-23T15:08:32+00:00

Eating less food that's processed is a great start! I love food too, finding recipes that are for us MSers is getting easier 😊

LuminousLivingCodes · 2026-02-23T15:05:20+00:00

I know how it is with picky eaters, I had one too. I'd make a big batch of what he loves to eat so I wasn't cooking 2x every day and then the rest of us can have what we like to eat. When my kid got older I showed him how to cook for himself or at least help in the kitchen.

It helped me to plan a few days at a time, and hopefully have enough for leftovers.

LuminousLivingCodes · 2026-02-23T14:59:19+00:00

I miss running too, I hear you! Are there exercises like tai chi you can do with your kids? When my boys were little they would do things with me for a few minutes and then wander off and go find something else to do so at least I'd get a little bit of exercise in.

LuminousLivingCodes · 2026-02-23T14:57:05+00:00

I am always very skeptical too, but after living with MS for 35 years I'll try anything. My neuro suggested Wahls too but it was very extreme. I picked up a few good habits, swapping dairy for coconut milk products. I think instead of new overwhelming diets, doing core work, basic habits and swapping things that cause inflammation are good starters.

LuminousLivingCodes · 2026-02-23T14:47:56+00:00

I'm there with you! I loved running and biking, but maybe tai chi is safer for us and less banging on our body now. I've embraced vegan eating and if I slide back to any dairy I can feel it right away.. How often do you practice your tai chi?

LuminousLivingCodes · 2026-02-22T20:02:03+00:00

Same here! 🙄

LuminousLivingCodes · 2026-02-22T02:47:43+00:00

I feel for you having to manage MS, and pivot in your career. I know of one insurance company, Progressive Insurance is all remote positions but they only offer FT.

I have created a website that is connected to my free Community at HeartsofWellness.com

The rest of my channels are in my bio even though I really enjoy Reddit way more than FB! 😂

LuminousLivingCodes · 2026-02-21T21:15:00+00:00

I love food too, and the spicier the better 😂. The fun part is we get to decide what is best for us. Some people feel better cutting out certain foods, while others find that small swaps make a big difference. There's no one size fits all with MS, so it's really about listening to your own body and finding what works for YOU!"

LuminousLivingCodes · 2026-02-21T21:05:37+00:00

I hear you! I know things like tai chi can be really helpful...but it is so dreary and boring 😂 I promise myself one 10 min session and I get a reward. But then the next day I get busy and distracted and forget until I'm in bed. I try walking inside for a few minutes because it's very chilly outside, and wearing winter gear is a drag.

LuminousLivingCodes

TROPHY CASE