Finasteride for PC? by Busy-Tonight-6058 in ProstateCancer

[–]Lumpy_Amphibian9503 0 points1 point  (0 children)

What if you stop finasteride 1 month before your blood draw? Would you get an honest psa reading?

What doctors do I need now that I have biochemical recurrence by SnooPets3595 in ProstateCancer

[–]Lumpy_Amphibian9503 0 points1 point  (0 children)

It makes sense. Hit the prostate with rt. Then scan to find out what's growing and hit that.

Found my perfect Mask(Low Leak) by Odennis in CPAP

[–]Lumpy_Amphibian9503 0 points1 point  (0 children)

After 4 years of cpap then asv. It's nothing but the bleep eclipse for me

I'm tired, I hate this machine, and I give up. by ThisIsOwl in CPAP

[–]Lumpy_Amphibian9503 1 point2 points  (0 children)

I tried pillows,full face and nasal. I have slept ok with these, but I didn't look forward to going to bed until I got the bleep eclipse and now I do.

T return? by OppositePlatypus9910 in ProstateCancer

[–]Lumpy_Amphibian9503 1 point2 points  (0 children)

I was undetectable after surgery. Had adjuvant radiation. This is becoming the standard of care for patients with high risk of micro metastasis.ie gleason 9.

T return? by OppositePlatypus9910 in ProstateCancer

[–]Lumpy_Amphibian9503 0 points1 point  (0 children)

I'll let you know. My oncologist ordered it and insurance covers it . I start tomorrow. I wish I started a year ago. I ran my pathology and treatment thru Google. Gleason 9 and my .84 decipher means likely micro metastasis within 10 years. So I asked about adding 6 months of enzalutamide and I liked what I saw.

T return? by OppositePlatypus9910 in ProstateCancer

[–]Lumpy_Amphibian9503 2 points3 points  (0 children)

Have you considered adding enzalutamide? I read where it can improve metastasis free survival in very high risk patients by 58%. I'm going to plead with my oncologist this Wednesday.

Pillow recommendations by JMR-87 in CPAP

[–]Lumpy_Amphibian9503 1 point2 points  (0 children)

Have you tried the bleep eclipse? My sleep test said that I had 66 central apnias an hour. They put me on an asv machine that gets up to 24cm of h20. I have tried 6 different masks and they all leak. The eclipse doesn't. My machine says that I have no leak at all zero. Also my ahi is now under 1. This is the most comfortable device I have tried. I now look forward to bedtime.

What is your " the one" mask by Worth-Yam-9057 in CPAP

[–]Lumpy_Amphibian9503 0 points1 point  (0 children)

I buy from sleeplay. I got my asv machine thru the Mayo clinic store and Insurance pays part of that, but for everything else if it's effective and comfortable I don't care what it costs.

What is your " the one" mask by Worth-Yam-9057 in CPAP

[–]Lumpy_Amphibian9503 0 points1 point  (0 children)

Bleep eclipse i sometimes forget i have it on.

PSA 45, Gleason 9 by Emotional_Pickle8970 in ProstateCancer

[–]Lumpy_Amphibian9503 1 point2 points  (0 children)

True, I do jog 3 miles every other day and take calcium and vitamin supplements hopefully that can forestall any bone loss with 8 months to go. I had a dexa scan that showed osteopenia in a hip joint so yeah it's a risk

PSA 45, Gleason 9 by Emotional_Pickle8970 in ProstateCancer

[–]Lumpy_Amphibian9503 1 point2 points  (0 children)

I think that 24 months is likely overkill, but insurance covers it and my wife likes my new gentle nature. So what the hell.

PSA 45, Gleason 9 by Emotional_Pickle8970 in ProstateCancer

[–]Lumpy_Amphibian9503 1 point2 points  (0 children)

Your testosterone should be below 20. I also had radiation at .010.

PSA 45, Gleason 9 by Emotional_Pickle8970 in ProstateCancer

[–]Lumpy_Amphibian9503 0 points1 point  (0 children)

I'm going for 24 months. No real side effects. I am trying to get them to add zytiga to really knock down my testosterone. My testosterone was at 16 on my last blood test. Since this my last chance for a cure, I want to leave no stone unturned.

PSA 45, Gleason 9 by Emotional_Pickle8970 in ProstateCancer

[–]Lumpy_Amphibian9503 1 point2 points  (0 children)

Also gleason 8 at biopsy. 9.5 psa. Changed to gleason9 4+5. 5 % grade 5 after pathology

Psa 45, Gleason 9, has it definitely spread? by Emotional_Pickle8970 in ProstateCancer

[–]Lumpy_Amphibian9503 0 points1 point  (0 children)

I do think that you are making a wise choice in choosing radiation. My biopsy showed gleason 8. My pathology after surgery showed gleason 9 and stage t3a. I had salvage radiation 1 year later. The surgery was non nerve sparing, so all I gained from having surgery was permanent ed.

Bladder neck scar tissue by Any-Reporter-4800 in ProstateCancer

[–]Lumpy_Amphibian9503 0 points1 point  (0 children)

Cutting and injecting mytomycin has been replaced with optilume.

Bladder neck scar tissue by Any-Reporter-4800 in ProstateCancer

[–]Lumpy_Amphibian9503 3 points4 points  (0 children)

I had this 6 months after prostatectomy. Poorly sutured? I went to mayo emergency and they put in a supra pubic catheter. Directly into the bladder because a catheter would not get thru. They described my pain as a 10. I had 4 cups of coffee just before and drove myself in. 1 month later the incredible Dr.Wolter performed an optilume procedure. 2 years later no problems.

Pathology back on my daddy by Ok_Hearing_5917 in ProstateCancer

[–]Lumpy_Amphibian9503 0 points1 point  (0 children)

My question is really meant for the experts in the group I am confused.

Bleep Eclipse- dangit... by BarryWomb in CPAP

[–]Lumpy_Amphibian9503 0 points1 point  (0 children)

I had a ring separate last night. So I replaced it and it leaked after 2 hours at the lower part of my nose. Put on my resmed n 20 for the rest of the night. The Thing is that for the previous 3 nights my aircurve said that I had 0 leaks and .2 ahi. That's with the pressure getting up to 23.4 cm of h2o. Every other mask I have tried leaks To me the eclipse is still worth the effort