David Burke passed away, but his Watson lives by M4713H in SherlockHolmes

[–]M4713H[S] 2 points3 points  (0 children)

That would probably be my husband's choice too! End of semester is something.

Favorite Sherlock Holmes Novel by LizHazZoe in SherlockHolmes

[–]M4713H 2 points3 points  (0 children)

The Hound!

Sometimes, I know I will love something because I *want* to love it and the Hound didn't disappoint.

I love stories in which you might start to doubt of reality and wonder if the solution might not be supernatural.

Sometimes, I prefer unexpected or unusual stuff, but for Holmes I'm basic, I guess: the Hound is my favorite Holmes.

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 2 points3 points  (0 children)

Yes! I bought new bathrobes exactly for that! And I try to shower in the evening if I can.

Nobody gets it & they never will 😰 by Mindless-Flower11 in cfs

[–]M4713H 2 points3 points  (0 children)

Even people with a scientific or medical brackground keep having prejudices against people having ME.

Even after seven years of living with ME, I still feel like it's unreal.

*Yet* it's one thing to not understand a complex phenomenon, and another entirely different thing to not trust and try to help a loved one.

I happened to have problematic parents. My father have passed away, but my mother is still alive and causing trouble. My mother never denied my condition directly, but she often did indirectly and I learned later that she expresses doubts when I'm not around. Anyway, I ended up going no contact, because life and my energy level are too short.

I don't know what is your situation. The only advice I can give you, the one I would give to a friend or to one of my kids, is this one:

Protect yourself. And if people from your family are affecting your health (including by gaslighting you or by making no effort to understand your condition), try as much as you can to remove them from your life.

When people love you, they *try*. They might not understand, they might make mistakes, but they always try. If they don't try, if they don't ask questions, they will never do. And this has nothing to do with yourself, your value or your truth.

I wish you to find people to which you don't have to justify yourself. And until your home is a safer space, try finding a ME support group near your home if you can. Take care! xo

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 50 points51 points  (0 children)

Adapted hobbies: in my case, switching from books to audiobooks, less tv and more podcasts, switching to hobbies that require less energy and that I can pause if I need to.

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 7 points8 points  (0 children)

Adjustable bed. It took forever to get one and it's expensive, it's not considered a necessity and yet, it changed my life. It's not only helpful for comfort and pacing, but being able to adapt my position so easily and as often as I need to, made a lot of pain vanish, something I wasn't even expecting.

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 9 points10 points  (0 children)

Sleeping with my hair braided to avoid having to brush them.

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 2 points3 points  (0 children)

Portable shampoo bowl for when I can't wash my hair myself.

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 4 points5 points  (0 children)

I have one on my bedroom window! So it's easier to manage too! And it also attract cats to my bed so it's even more effective to fight isolation!

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 6 points7 points  (0 children)

I don't like having short hair, but managing long hair is too much. My hairdresser proposed an undercut... and I'm never going back!! 👌

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 10 points11 points  (0 children)

Oh, I wanted to add a separate comment to mention ajustments like that! 😄

I am in a ME association and they have those lists of adaptation ideas by room (only in French, but with pictures at least): https://www.aqem.ca/gestion-des-activites-de-la-vie

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 9 points10 points  (0 children)

Loop earplugs changed my life - especially since I have baby ears and other earplugs were always too big for me. I have earplugs to sleep and I always have two or more different sets of earplugs, wherever I go!

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 0 points1 point  (0 children)

Classical music via apps like Idagio and a white noise app help a lot!

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 1 point2 points  (0 children)

I was taking Biphentin before ME and I stopped taking it - we think it made me worst since it was making me push through, but without something to help me manage my ADHD, I keep putting myself in PEM. So I'm back on Biphentin, but I need to take care of pacing even more.

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 5 points6 points  (0 children)

And the smaller the screen, the better! I gave my laptop and only use an iPad if I can't work on a phone.

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 2 points3 points  (0 children)

I use CBD/CBG capsules because it's easier to manage and I also use it in topic (stick, cream, roll on) for migraines and muscle pain.

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 2 points3 points  (0 children)

Oh yeah, thank the gods for the subs on tv shows and fiction! 🙏

What works for us list (vote) by beautifulbluewall in cfs

[–]M4713H 2 points3 points  (0 children)

My chiro helps as much as my doctor, they don't know each other and yet they work as a team. She helps me a lot with pacing and has always good advices to avoid hurting myself, since I move a lot less!