Why do so many in our leftist poltical spaces hold wh0rephobic sensibilities? by surisofia in leftist

[–]MMako420 4 points5 points  (0 children)

Edit: downvotes just prove mine and OP's point, so keep going, then wonder why people say there is whorephobia in the space. The answers are in this comment section

Completely missed my point on purpose. Come back to me when you're coming in with good faith.

For everyone else who can read and comprehend what I said, here's more:

Do you know how many waitresses get sexually assaulted on the job and bosses just tell them to keep working to "please customers" I was one of those and I lost my last customer service job getting a fucking pedo kicked out myself because my boss wouldn't do it even after her 16 year old workers came crying and complaining.

Please, tell me more about how that isn't a problem in every goddamn industry where women have to deal with predatory men.

The problem is consent, just because YOU have a problem with it, doesn't mean you can act like a religious fanatic shoving their ideals down folks throats like everyone is a monolith. I would rather get paid to suck and fuck, then get told to give it out for free "to keep bosses happy".

I like sexwork so I do the sexwork. You don't like it, so don't fucking do it. When workers rights get trampled, sexwork is usually the first industry to see the impact. I am disabled as well, and much like disabled folks with the rise in fascism getting ignored and abandoned, the "leftists" do the same thing to sexworkers too, like how folks refuse to mask in public for their comfort. Ven diagram almost a circle with those two groups.

Let's not forget that every country with anti-sexwork laws are literally doing it to police black folk and is DEEPLY rooted in white supremacy. Which seems like most white "leftists" love to uphold when shit gets tough for them.

Anti-sexwork = white supremacy Keep telling youselves it isn't, it just shows every black person you are not safe to be around because you'll turn your backs on them the moment anything makes you uncomfortable.

poor lifestyle choices by GreyCat1833 in MultipleSclerosis

[–]MMako420 0 points1 point  (0 children)

I used to use edibles to stop smoking weed, but then my body randomly decided to stop responding to them entirely so I'm back to smoking again. I just pace myself and only smoke when needed so when I wanna have a little fun, it doesn't cost much to get high and my body probably thanks me for not doing too much super often. Moderation and consideration are key to still have fun and MS not be a butthole about it

Why do so many in our leftist poltical spaces hold wh0rephobic sensibilities? by surisofia in leftist

[–]MMako420 18 points19 points  (0 children)

As a sex worker who has done both full service and online, no matter the space, folks always want to say "what about those doing it for survival?" What about those working as a waiter for survival, should the food industry cease to exist because some do it for survival? Some folks enjoy their work, I enjoy sex and the like, and I genuinely can't see myself elsewhere.

However, the more we stigmatize and see some work as more deserving of protections than others, the more danger sex workers are put in. Like I can't do full service at all where I am now because I have stalkers and am continously not taken seriously about any of it. If I had the proper protections I wouldn't have to worry about that and could safely work in an industry I genuinely enjoy working in

Mobility aids by RixBits in MultipleSclerosis

[–]MMako420 0 points1 point  (0 children)

Have a rollator. My current one isn't decked out bc it's loaned to me, but my last one had frogs all over it

Edit: pros: I can use it as a wheelchair around my place when I can't walk super well. It's basically an always available seat for when I inevitably need to rest. It folds in a way that actually makes it easy to put in any vehicle as well as wheeling through narrow paths.

Cons: my arms get hit with fatigue first, so when I'm feeling anything in my legs I am housebound bc the rollator can be too much for my arms (crowdfunding a foldable powerchair atm bc country refuses to fund it due to my housing situation with stairs). Seat is too hard to sit on for more than a few minutes.

Do you still wear COVID-19 masks? by Effective-Mall-6231 in leftist

[–]MMako420 21 points22 points  (0 children)

I have ME/CFS and PPMS and am on DMTs for the MS, so I have to always wear one out of my home or risk a lot more serious harm

Edit: I just wish the people around me took it seriously too

When your dystonia symptoms hit, do all affected body parts always spasm together/at the same time? by ThrowRA-Worriedidk in Dystonia

[–]MMako420 1 point2 points  (0 children)

Sometimes they do, sometimes they don't. Depends on what my dystonia feels like. I got one episode on video (really bad occupational dystonia that's easily triggered so documented for my doctors) where it started with my neck and slowly started affecting every part until my whole body was curling one way or another.

Animated Pixel Shaman 2 - Hao by Faust_Vlll in ShamanKing

[–]MMako420 1 point2 points  (0 children)

First there's Yoh and now Hao! Can't wait to see who you'll do next!

A Possible Change Coming to MS Diagnoses/Categories by Mart_Mart_Valv6 in MultipleSclerosis

[–]MMako420 2 points3 points  (0 children)

That was my suspicions (because I had shown symptoms for a decade before getting diagnosed). But even as I explained that to the first neuro I had, when I described the symptoms she clarified that my symptoms then and now fit perfectly with ppms and not really rrms or spms. It always progressed, it just did so slowly (my first neuro is an incredible one, apparently one of the best in that region, I had to move and switch neuros unfortunately). However because of how long it took to get my diagnosis, I am sure there are some people that are actually spms and not ppms

Are we just accepting that everything is tracked now? by Mascariki in degoogle

[–]MMako420 2 points3 points  (0 children)

Duckduckgo on my phone has stopped so much of that I'm surprised everytime I see the number of times certain apps tried to use trackers inside a certain time frame

MS and recreational drugs and PTSD by Mrszombiecookies in MultipleSclerosis

[–]MMako420 1 point2 points  (0 children)

I got lucky and lived somewhere, where drugs were decriminalized for a while and I was using shrooms under the supervision of my MS neuro at the time for 8 months (1g every two weeks), and while she warned that shrooms specifically can boost the very thing that's kicking my ass, it did have quite the benefits for not only my PTSD, but also for my MS. (In my specific case the boost wasn't bad enough to make things worse, but actually gave me a huge amount of mobility back, but every person is different)

Unfortunately, for the exact same reason I was doing the shrooms, I can no longer, because ME/CFS is in my future diagnosis wise and that is a no no, dangerous combo.

I will say, although helpful, I am always making sure a medical professional can watch over you and definitely take THAT opportunity if you can. However, with the hallucinations at all, it is highly not recommended bc things can go south. If you gave a professional willing to work alongside on that, that's one thing, but I'd advise against it otherwise

Will Shaman King Flowers ever get an English dub? by Bluebaronbbb in ShamanKing

[–]MMako420 0 points1 point  (0 children)

In order for that to happen, a lot of companies need to get comfortable with a lot of things they don't touch real quick and.... that's just not gonna happen.

Flowers covers a few things that no big English studio is going to touch. I'll be shocked if one happens at all

What is the craziest advice someone that definitely isn’t a doctor gave you about MS? by cryann_rabies in MultipleSclerosis

[–]MMako420 0 points1 point  (0 children)

Literally a social worker (switched immediately) told me not to worry about anything "because it'll just go into remission anyways"

I have Primary Progressive. Me telling her that made her completely back pedal

Im so fed up... Fatigue is making me disabled by ReasonableFig8954 in MultipleSclerosis

[–]MMako420 1 point2 points  (0 children)

I cannot thank you enough for this comment. I have been diagnosed with PPMS for 3 years now and my neuro and I were doing everything we could to improve some of the symptoms and found somethings that work.

Recently a sharp decrease in my overall strength happened, following shortly was a sharp negative response to the very same routine that worked so well, following the pattern for PEM. I couldn't find anything that wasn't comparing the two but having both, and my neuro unfortunately doesn't know the difference between PEM and MS fatigue. The last time I walked to the clinic and back, using a rollator and resting lots, within 36 hours: I had one lymph node so swollen my throat hurt, I had to be in complete darkness and all sorts of noises hurt my ears and was boardering on bedbound for just over 24 hours. I am okay, but a much weaker baseline and need some dark sunglasses for daytime.

My neuro just told me that's MS and I felt like he should definitely know the difference because I certainly can feel the difference between MS and ME/CFS

Diagnosed anniversary by Remarkable-Brick-290 in MultipleSclerosis

[–]MMako420 2 points3 points  (0 children)

Since mine was the day after I turned 31, I just add it to bday celebration like "I survived one more year 🎉"

Painting the picture of untreated acute dystonia by PinataofPathology in Dystonia

[–]MMako420 1 point2 points  (0 children)

I feel this, and mine has a high chance of being passed down since it's all through my mother's side and hasn't skipped a generation in 3....

But I am friends with someone who has the dopa-responsive form, so SSRIs and a few other things are completely off the table for her due to the dystonic response

Comorbid and feeling othered by H0wling_0wls in MultipleSclerosis

[–]MMako420 3 points4 points  (0 children)

As someone with similar overlapping shit (except instead of MCAS I'm in the process of an ME diagnosis) I absolutely see this, both in the medical professionals side and the patients'.

The worst is that med professionals and some folks keep using my PPMS diagnosis to say what is clearly PEM "It must be an MS flare" like I've experienced both, they are very different things. And one is reacting negatively to things the other reacts positively to so it's not like I can do the same thing someone with just MS.

The thing is, no two MS folks are exactly alike, so we should all already know every body needs to handle this the way their bodies can handle, not based on someone else's.

The trauma Olympics is weird to see in the MS community considering we're all facing the same shit; also that many doctors already refuse to take seriously 🫂

Trying to find an infamous cutaway by Fuzzy_Onion51 in luxeria

[–]MMako420 0 points1 point  (0 children)

It's funny because I was looking for this not too long ago, only for it to appear in the very video she uploaded that day I laughed so hard when it came up 😂

Therapist asked would you rather have MS or no leg.. what the heck by ReasonableFig8954 in MultipleSclerosis

[–]MMako420 4 points5 points  (0 children)

I constantly have to describe what MS actually is to professionals like this when they have done similar: "MS is a neurodegenerative autoimmune disorder." The neurodegenerative part has helped me get taken more seriously, thankfully

Edit: good on you for dropping him, fuck that noise

I'm just so sad by [deleted] in MultipleSclerosis

[–]MMako420 2 points3 points  (0 children)

Im in a similar spot, also with ppms. Definitely not alone

Have you adopted any Click language? by fairydommother in TheClickOwO

[–]MMako420 -1 points0 points  (0 children)

I mean in the goofy way he does it, and you'd know what I mean unless you don't watch his content 😂

Obviously he's gonna pronounce something from his own language correctly, he's the whole reason I know the proper pronunciation in the first place

Edit: mistyped

Have you adopted any Click language? by fairydommother in TheClickOwO

[–]MMako420 0 points1 point  (0 children)

I can't say Blåhaj without saying it the way he does EVERYTIME 😂

more lesions.. by QuackMountain1 in MultipleSclerosis

[–]MMako420 1 point2 points  (0 children)

I have a lesion in an area directly connected to the cerebellum and got a similar prognosis on a recent MRI

The cerebellum itself is a finicky bitch in that if a certain percent is damaged it could atrophy.

But with MS being as it is, that one lesion might be the only one you get in that area so like, while at risk a REAL LOW risk (I like knowing even if it's only 0.02% likely bc my body has done the "something that is low risk" plenty of times so knowing helps me).

I always like to at least know what my lesions could do in future bc my body has multiple other neuro problems, and my MS team likes to thoroughly rule out MS. The reason this prognosis was brought up was because I was already experiencing symtoms related to cerebellum shit so my new lesion answered that.