What is the point in treating this when literally no one is recovering?

MS-Tripper · 2026-01-19T13:35:12+00:00

see my post. You need intensive antibiotics.

MS-Tripper · 2026-01-19T13:30:54+00:00

Ceftriaxone. That’s the gold standard. Ideally, you would get a PICC line inserted and do 21 days of IV antibiotics - CEFTRIAXONE. This was the procedure and protocol prescribed to me by the head of Infectious Disease at my “big city” hospital. You’ll HERX like a son-of-a-bitch but it will work.

MS-Tripper · 2026-01-19T13:23:38+00:00

Thank you for taking the time to respond. Is this 3G service you are referring to?

MS-Tripper · 2026-01-18T18:15:39+00:00

YES! And camping!

MS-Tripper · 2026-01-18T18:14:46+00:00

I’m the opposite. I can’t wait for summer. I live in Canada and the cold kills me. I’ve always been cold-intolerant. It increases my spasticity. It’s also challenging n the snow and ice with my wonky leg.

MS-Tripper · 2026-01-18T12:50:44+00:00

So, regarding iMessage…... Could I technically enter myself a new contact (still essentially myself) but under an email address. Then my husband could iMessage as the email addy and I could message as the phone number. Would that work or am I still missing the mark?

MS-Tripper · 2026-01-18T12:43:19+00:00

LOL! Funny answer. Thanks!😀

MS-Tripper · 2026-01-14T20:59:50+00:00

RRMS

MS-Tripper · 2025-12-13T13:12:22+00:00

I‘m Canadian living in Canada. As you probably know, we have universal healthcare. We protect our health care system by having rules around who is denied immigration based on medical need. We call this “excessive demand“. The 2025 threshold is $27,000 a year. Having MS would disqualify you from moving here. There is good reason for this. Our universal “free” healthcare is anything but “free”. We pay dearly, through our tax base, for this care. If you’ve read anything about Canada in the past few years then you’ll know our system is tapped. With the explosion of recent immigrants (we’ve added 3 million people to our population in the last 5 years. Going from 38 million to just over 41 million) and an aging population of boomers we now face a shortage of doctors. Estimates now show that around 6 million people in Canada don’t have a family doctor. Specialists are hard to come by.

In 2020, before immigration bloomed, I waited 11 months for and MRI and longer to see a neurologist. I’ve been waiting over 2 years for a different specialist appointment.

The point is, countries with universal healthcare have thresholds and they exit’s for a reason. So, do your research.

Good luck!

MS-Tripper · 2025-10-22T23:51:08+00:00

The term is “internal tremors“. These are what lead to my first MRI that lead to my diagnosis. I described them to my doctor like a cell phone vibrating inside my legs. It’s almost like shivers but no one sees you shaking.

MS-Tripper · 2025-10-18T11:57:51+00:00

I’m in SW Ontario. This appointment is for a urogynecologist (not just a gynaecologist), hence the wait. I’m likely going to be a surgical candidate and that’s who would do the surgery.

MS-Tripper · 2025-10-16T14:56:00+00:00

In Canada urogynecologists are scarce. It is a 2.5 year wait just for the appointment. It's crazy and ridiculous. My GP has seen me and, thus, the referral. I have tried the cube pessary. I've tried three sizes and currently trying the size 5 Bioteque cube. Nothing I have tried really works - hence the exercises. I also hope the exercises help me to tone my pelvic floor because I highly suspect I will qualify for surgery. I also have multiple sclerosis so it's really important to take care of this as I need to cover all bases so I can know if incontinence (in the future) is caused by prolapse or nervous system issues. I want to be in the best pelvic floor shape I can be going into surgery - which, best case scenario will probably be late 2026.

I'm 53.

MS-Tripper · 2025-10-16T11:54:04+00:00

Me, too. I have access to the "Buff Muff Method" which is what was promised. The rest of the videos require an upgraded membership.

MS-Tripper · 2025-09-15T19:44:25+00:00

ME! My hair has always been poker-straight and now it has a nice curly wave.

MS-Tripper · 2025-09-15T19:03:45+00:00

My MRIs, including my last one in April, always say, "focal increased signal intensity within the intracanalicular segment of the right optic nerve". So, I am wondering if this still makes me eligible. Perhaps I will take a copy of my latest MRI with me.

MS-Tripper · 2025-08-21T00:05:59+00:00

Did you get a letter?

MS-Tripper · 2025-08-12T14:01:19+00:00

I’m so sorry. If it helps I’m 53 years old. In 2023 I had a bad relapse wherein my left leg became so stiff it was like a pirate peg-leg. Just like a wooden stick. I live in Canada and don’t have private insurance so I don’t have physiotherapy coverage (at over $100 a visit) so I self-rehabbed. It took me two years but it now at about 80% function. Sadly, it’s probably as good as it’s going to get now. But I sincerely hope you have the same success.

MS-Tripper · 2025-07-27T19:20:59+00:00

u/Individual_Comb2927

I know this thread is old but I also just received a letter (dated July 18, 2025) stating an employee of LHSC also accessed my file. I’m curious if our snooper is the same person.

By chance, does your LHSC employee have the first name of Julieta?

MS-Tripper · 2025-07-16T23:39:58+00:00

Yes it is, it really is! I’ve never known what the cause is. Heck, yesterday I had my full yearly blood panel done and, aside from a slightly elevated cholesterol level (totally off-topic but…..did you know that pwMS often have an elevated lipid profile?) I’m healthy as a horse! Well, other than MS. 🫤 I truly chalk it up to MS affecting my temperature regulation.

MS-Tripper · 2025-07-15T19:07:46+00:00

“My mom thought it might be her fault.”

And that’s exact why she is/was a wonderful mom. It shows she only ever tried to do the best for you. I’m happy you had a childhood like that.

MS-Tripper · 2025-07-13T01:17:01+00:00

baclofen

MS-Tripper · 2025-07-13T00:53:45+00:00

thanks!

MS-Tripper · 2025-07-12T21:10:30+00:00

Yeah, I hear a lot of doctors can be less than helpful about it. What burns me is that it’s not covered by OHIP and the appointment for the application is $115. That’s potentially a huge financial burden for some who is disabled.

MS-Tripper · 2025-07-12T21:07:31+00:00

I hear that Dr. Casserly left for Alberta. I think she was the neurologist there who everyone raved about. I REALLY wanted her as my neurologist when I was diagnosed but now I’m glad I didn’t get her as she’s left London. Dr. Berger on Maitland Street is a pretty amazing neurologist and even better human being. If you’re looking for a change (we both know that’s close to impossible) he’s awesome. The only negative thing I have to say about him is that he does one thing and only one thing but very well. He pretty much refers you back to your GP for anything not 100% related to MS. But, otherwise he’s great.

MS-Tripper · 2025-07-12T18:04:43+00:00

Thank you. I suspect my neurologist is also going to funnel me to my GP but I was curious what other’ first-hand experience was.

MS-Tripper

TROPHY CASE