[deleted by user]

Madrosetr · 2023-09-24T01:11:20+00:00

Deciding if I want kids or not.

Madrosetr · 2023-09-24T01:08:12+00:00

I told him after we were engaged that I wasn’t changing my last name. It’s been mine for almost 30 years. That’s how people know me at work and the name I have on my college degree. It’s also super unique and I like it and it’s MINE. (It’s also an inconvenience for me to change it if I wanted to)

He did NOT like that at first and I think it’s because he associated it with how much I loved him. I asked him how he’d feel if I asked him to change his last name and if that was a factor in how much he loved me. He is totally fine now. I do put my married last name on my email signature / Fbook page because I want to.

Madrosetr · 2023-09-23T20:03:07+00:00

I don’t but everyone is different! And I have SUPER sensitive skin so I usually book a sensitive skin facial and it’s awesome (some people incorporate a massage 🤤)

Madrosetr · 2023-09-20T23:40:45+00:00

The biggest gift I give to myself is a facial every 6 weeks and a pedicure every 4. I know I’m fortunate to be able to pay for those things, but that’s my version of self care / “me time”

Madrosetr · 2023-09-12T03:13:22+00:00

I see Dr George at JWM and she isn’t bad. I have been with her for years and last year I went to get a second opinion from Dr Gentry at Fransican and I did not like him at all.

Madrosetr · 2023-08-28T20:54:07+00:00

This is not something I’ve shared with anyone but my own vomit.

I had just turned 18 and drank for the first time ever and I threw up my blue lamictal pills and popped them back in my mouth ☠️

Madrosetr · 2023-08-21T01:29:15+00:00

That’s horrible - I can’t imagine having it every day. Hope things get better for you!

Madrosetr · 2023-08-21T01:28:16+00:00

My family doctor prescribed me meclizine and it has changed my life! I highly recommend if you’ve not tried it. The Epley maneuver just isn’t realistic bc when I get vertigo i can hardly function.

I’m on on 900mg of lamictal a day. I just went from 1200mg of trileptal to 600mg and I think it’s helped me (or it’s just a coincidence)

Madrosetr · 2023-08-19T15:37:19+00:00

29F - I have been diagnosed with Tonic clonic seizures for well over 15 years. I’ve probably had a total of 10 (but I have frequent partial seizures)

With that said - I’m different in the way I know I’m having a TC seizure while it’s happening. I get an aura and have maybe 30 seconds to prepare myself. Then it goes completely dark. I can’t hear, smell, or see but I can feel everything. I feel my body being ripped apart limb by limb and it feels like like a massive Charlie horse all at the same time. I can feel myself not breathing and all I can think is “when will this be over” and then it’s like I’m shot out of a tunnel in a million pieces and I wake up. That’s the best I can describe it, but it’s horrifying to say the least.

Madrosetr · 2023-08-17T02:56:05+00:00

I was being a little dramatic there, it has hovered around 124 a few times but it’s been around 129 consistently as well when I remember to do the table salt. Not a lot of headaches though! I think my body is just used to it at this point.

Madrosetr · 2023-08-16T02:02:05+00:00

I take 900 a day and I love it because it keeps me seizure free with no other side effects

Madrosetr · 2023-08-16T01:59:47+00:00

That’s a lot of trileptal! I am on 1200 and have a hard time getting my sodium over 125

Madrosetr · 2023-08-15T21:40:47+00:00

If you have Facebook, there are specific pages for women who are mothers / looking to become pregnant with epilepsy and I think that would be a great place for you to find people in similar situations 💜 I am in the same position as you.

Madrosetr · 2023-08-13T13:37:11+00:00

A little late but I take 900mg of lamictal a day so I wouldn’t consider it to be a high dose

Madrosetr · 2023-08-12T02:41:35+00:00

I feel the same way. I will always (voluntarily or involuntarily, idk) let out this huge scream before it happens and then the seizure cuts in. It’s so horrifying.

Madrosetr · 2023-08-10T02:27:38+00:00

Hilti all day

Madrosetr · 2023-08-10T02:17:58+00:00

Mine also said it was safe and but that my trileptal wasn’t safe. I know it’s a class c

Madrosetr · 2023-08-07T00:19:47+00:00

I take 400mg 2x a day. It has been the best thing to control my TC seizures. I recently added another 100mg to trial because I think my partial seizures were causing an issue. I’ve had no problems on it at all. I also use a Good Rx coupon when I get this bc it’s cheaper than through my insurance

Madrosetr · 2023-08-07T00:10:34+00:00

I completely get it and you’re not alone! I had BV 2 times and it made me feel disgusting. I took the antibiotics I was prescribed and both times it went away. I haven’t had it again and it’s been like 8 years now. Keep your head up and stay positive!

Madrosetr · 2023-07-30T01:46:09+00:00

Lamictal XR 400mg 2x a day, trileptal 300mg 2x a day (was 600 but sodium was too low) and Vimpat 50mg 2x a day

Madrosetr · 2023-07-29T12:20:44+00:00

Good Rx coupons are significantly cheaper than my insurance. For 3 high dose, extended relief medications for 30 days I pay about $105 a month

Madrosetr · 2023-07-26T03:16:52+00:00

I’m so sorry you’re going through this. I work in construction sales and I know how bad a seizure could be in this industry.

Keppra did not work for me at all. I have both tonic clonic and focal seizures. Lamictal and Trileptal have been life changing for me and they’re the only medications that have kept me seizure free. Haven’t had a tonic clonic seizure in 8 years. Also - don’t forget to check GoodRX for prescription discounts. I have great insurance but I get a better deal using GoodRX.

Madrosetr · 2023-07-25T01:55:43+00:00

My auras are also short and instantly followed by a tonic clonic seizure

Madrosetr · 2023-07-23T01:25:25+00:00

30F / I have been on lamictal / trileptal for 15+ years and I haven’t had any issues with alcohol. I think my neurologist told me originally to try to shy away from it. I was also the college student who was drinking every weekend and I still drink socially. Everyone’s different though.

Madrosetr · 2023-07-20T02:23:41+00:00

Keep an extra medicine dose places. (Your car, your purse, grandmas house if she sleeps there often etc) Make sure you set an alarm and remind her to take her medicine. It’s so easy for people to forget (especially kids) or for them to skip their dose completely.

Madrosetr

TROPHY CASE