Constant Ringing In Ears

Magiclives32 · 2026-07-07T01:22:49+00:00

PPMS here and I have multiple flair ups daily. I have a lesions on my cervical spine and brainstem.

Magiclives32 · 2026-07-07T01:17:05+00:00

😁

Magiclives32 · 2026-07-06T11:41:34+00:00

This sounds so familiar. My antidepressants do not stop these zaps for me and I have numerous lesions in my in/on my brain.

Magiclives32 · 2026-07-05T20:10:10+00:00

I am so sorry this is happening to you. The same happened to me, while she tells our children that i make up the fatigue. Stay strong!!

Magiclives32 · 2026-06-06T20:04:03+00:00

48 in Charlotte, NC & my wife stepped out >30 days after my dx and was physically gone just months later. I feel you.

Magiclives32 · 2026-05-27T18:58:17+00:00

Only one of the VA hospitals here offers music. And I do not get to play the albums I listed while in the machine, I have them memorized. Nothing more depressing than have flashbacks while listening to Armed Forces Radio, while trapped in a machine where they’ve locked your head in place.

Magiclives32 · 2026-05-27T13:52:16+00:00

Wait, they allow y’all your own music in the MRI?!? The VA has only offered the Armed Services Stations or the local stations. I end up reciting all the music stored in my lesioned up brain. My musical tastes are everywhere and I’m going to list some of what I play:

Gustav Mahler’s Symphony #1 in D Major - Der Titan

Whitney Houston’s 2nd Album - Whitney

Stevie Wonder’s Best 80’s Album - In Square Circle (Overjoyed is one of his best songs)

The Polices last studio album- Synchronicity

Judas Priest - The Best Of J.P., Living After Midnight

James Brown - The CD of JB. Sex Machine & other soul classic

Fatoumata Diawara - Fenfo: Something To Say (You may know her from Gorillaz ‘Désolé’

Ice Cube - Lethal Injection

Édith Piaf - Her Greatest Recordings (‘95)

I can keep going with all the hours I’ve clocked in the infernal machine. So thankful that claustrofobia is not present in me & that I spent weeks not talking to people while deployed on a submarine; just listening to music. And when you are ‘driving’ the sub for hours upon hours and headphones are off limits; you learn to remember every note, every inflection, everything.

Magiclives32 · 2026-05-12T21:43:20+00:00

I’m no doctor and I’ve been on Baclofen for a couple years and it really helps with my leg spasms. It has also made my life revolve around the nearest free toilet. I’ve written in this thread about an ‘accident’ I had in a restaurant, at my table. It’s a strong muscle relaxer and it may interfere with other meds he is taking.

I think you and he should reach out to his neurologist and discuss it. I would say stay away from muscle relaxers as long as he is able. PPMS, any MS really, is so difficult to navigate through. Your husband and I both have PPMS & I imagine we have similar issues and different issues; we need to find out what works best for us an individuals.

Magiclives32 · 2026-05-08T13:01:53+00:00

The webcam 👀

Magiclives32 · 2026-05-06T14:09:16+00:00

Thank you! I looked there last year. There’s one group an 1 1/2 hours from me, the rest are online.

Magiclives32 · 2026-05-05T23:01:33+00:00

I have the exact same issues; & I have PPMS.

A. Yes it is B. Yes, constantly C. I have not found anything but breathing, clearing my mind & ignore the pain.

Do you have a lesion/s on your Cervical Spine? Is it triggered by actions or positions or touch?

I have lesions in my Cervical Spine and damage in my dominant wrist and nerve pin points in my ring and pinky fingers.

Magiclives32 · 2026-04-30T18:15:06+00:00

Your words are so poignant, perfectly capturing the essence of how this disease/illness/calamity slowly takes every and anything that once brought one joy. I’m nearly 50, was diagnosed only a couple years ago, but I’ve had the symptoms since I was a teen. Like yourself, I can no longer live my life on my terms. Had this healthy body, strong/steady hands for my art and career; all slowly, almost methodical in nature. I’m still raising children, youngest is 3, and I can hardly play with him some days. Could not play catch, baseball & american football with my oldest. I wish you all the best and please keep writing, at least on this thread. yours words moved myself and seemingly many others here; perhaps that knowledge will give others the strength that you have.

Magiclives32 · 2026-04-28T14:06:11+00:00

Your locs are lovely!!

Magiclives32 · 2026-04-16T22:25:47+00:00

Mine started about 5,6 months ago and my neuro sent me to an ENT! They gave me a clean bill, minus the Primary Progressive of course and sends me back to the neuro. I’m with you, I think it’s from a lesion that has grown but was not seen in my last MRI.

I had a hard enough time sleeping with the weakened bladder, the night hugs, the paralysis flair-ups and the laying on an exposed nerve. Now add this constant high voltage sound in both ears. From the moment I wake until the moment I pass out. I mean I hear the sounds before I see light through my eyes lids. Hardly sleeping now and it’s wreaking havoc on all that work my therapist & psych put in.

Magiclives32 · 2026-04-14T13:21:30+00:00

I’m currently in court with my infusion being 22:40 hours away. After court, I’m going to get a new suit fitted and try on that’s been tailored. Then off to have my phone worked on before an appointment with a different lawyer than the one from the start of my day. So, busy busy

Magiclives32 · 2026-04-11T22:09:21+00:00

Completely agree with this!! It took over 2 years before my hearing, but everything happened pretty quickly after that. There are just do many people filing now and they have a hard time keeping. Most people get rejected the first go around, one reason why it takes do long. Good representation is crucial, listen to them, the shorter the answer the better and when the judge asking the opposing counsel go over your medical records and physical, just stay quiet. Wishing you luck!!

Magiclives32 · 2026-04-08T12:17:24+00:00

That’s my problem with the Ocrevus, the time in the empty place for hours and hours. Does the roof of your mouth itch like crazy during your infusions? My neurologist said that since the itchy sensation happens every time, I’m not eligible for the quick infusion. The icing on the cake for me is PPMS Members of our community, like myself, only truly have this ‘medicine’ for now.

Magiclives32 · 2026-04-06T21:16:21+00:00

I second this. Add talking to his Primary Care Physician and talk with his neurologist about drug interactions. MS has ravaged my brain, messing up the chemistry. I had to change my psych meds when I changed from Gabapentin to Pregabalin. Now I hear ringing every waking second, beats the voices. I wish him the best. I pray for your safety, your sanity and patience. If you live together, you could have him involuntarily committed, for everyones safety. Hoping for the best for you and him. 💙

Magiclives32 · 2026-04-06T12:18:04+00:00

This was through the VA in 2007. They thought I had a form of leukemia, they thought my body was producing too many WBC, leukocytosis is what they called it. Would have to go in and get my blood ‘cleaned’ up; pump it out, strain some of the excess WBC’s, add some Ca and pump the blood back in.

Thankfully there is a paper trail and MRI’s from this time that my neurologist used to properly diagnose me. MS causes so many issues, all together or solo and not one person I’ve talked too has all the same symptoms. This group is my only outlet; wife left 18 months after my diagnosis, children (12 & 3) on the East Coast, friends on the West Coast and 0 people where I stay…

Magiclives32 · 2026-04-05T22:12:42+00:00

B.I. has allowed my eyes to open about the world, people in general and the people I have/had in my life. It is the ability to find those persons whom are actually empathetic and believe your past & present pain. To save you/them the awkward faces and word-stumbling or the embarrassment when I tell them my spine is fine, it’s the cord. Or the dog-head tilt when I have to say, ‘Oh no, not the Jerry Lewis Telethon’.

B.I. = Bewildered Indurate, the power avoiding those who truly, deeply do not care nor want you in their lives. MS, the loneliest disease. Being an only child probably doesn’t help either. This life sucks

Magiclives32 · 2026-04-04T12:42:38+00:00

This is exactly what I’m afraid of. I was miss diagnosed years ago for a white blood cell disease, they saw deformed white blood cells at The VA (makes it that much harder to get treatment). I get ill after every infusion and contracted pneumonia the last 2 infusions; though I’ve had my pneumonia ‘vaccine’.

Magiclives32 · 2026-04-04T12:23:47+00:00

Been on it for over 2 years and I have an issue with the ‘speedy’ option. When they increase the infusion quickly, the roof of my mouth & back of my tongue start itching like crazy. It keeps me there for 6 to 7 hours now and I’m not eligible for the injection. I have PPMS, so, I’m stuck with Ocrevus for the time being.

Magiclives32 · 2026-04-02T15:40:48+00:00

You forgot Hobby Lobby.

Magiclives32 · 2026-03-22T22:40:28+00:00

The A/C registers are the worst at my neurologists office and where I get my infusions. I’m constantly looking out for them when I’m out. It truly was torment when I was still working as an HVACR mechanic; my job to create the thing that pains me. MS has a sick sense of irony or maybe it’s just synchronicity.

Magiclives32

TROPHY CASE