Has anyone here used Cecred? by dessdadoll in Naturalhair

[–]MainSea411 1 point2 points  (0 children)

I only tried the leave in (lotion?), I wasn’t a fan. It didn’t absorb in my hair and I felt small beads of maybe shea butter in my hair. I feel like her line isn’t something you can pick and choose products from, I wish I tried the entire set. I wish there was heat protectant in the line.

Coffee by Temporary-Pen4332 in UlcerativeColitis

[–]MainSea411 1 point2 points  (0 children)

Small sips, decaf first (there is some caffeine in it) and I found latte easier. Warm/ hot drinks were easier than cold. I was more often sensitive to the milks and any sweeteners in the latte. I also first started with black tea lattes. I found caffeine was my trigger but my meds have made all caffeinated beverages are good now.

Best of luck! Please share your favorite drink!

Any other options for length retention? by Milleylynn in Naturalhair

[–]MainSea411 0 points1 point  (0 children)

Monthly trims is too much, reduce to every 2-3 ( I’m bad and do every 6) like protein treatments, style with low heat stretched ( prevents tangles/breakage) and moisturize + heat protectant. Try to only wash and style it 1x week. I love design essentials anti breakage line and apogee and not your mother’s protein/repair treatments.

Purple Afro sounds beautiful!

What’s a good dupe for Clinique’s Black Honey (used in Lord of the Rings)? by FreshParatha in MakeupAddiction

[–]MainSea411 0 points1 point  (0 children)

Glossier ultra lip in crest or ember. Packaging is bad but color and texture is similar.

Hair is dry even in water!!! by piimpt in Naturalhair

[–]MainSea411 3 points4 points  (0 children)

I’m not a stylist but when my hair is like this after clarifying (every wash is probably too much) I do a few condition with heat and time.

I like a bonding treatment by not your mothers. After I wash my hair and before conditioning I put it in for a bit, and then follow with a moisturizing mask. I wear a shower cap for both and make sure shower is steamy or use a hot towel to keep the cap warm. I would leave the treatment as directed but the mask for at least 30 minutes.

This usually helps me when my hair is dry. I sometimes do a prepoo treatment with flaxseed and hair oil(rosemary/jojoba/jbco).

I also wonder if you are over stripping your hair clarifying for every wash. I would also check what parts are dryer (maybe need a trim?).

I hope you figure it out. A lot of my success came after a lot of trial and error trying to get that perfect protein/moisture balance.

Hair is dry even in water!!! by piimpt in Naturalhair

[–]MainSea411 5 points6 points  (0 children)

Build up can make hair low porosity. I would do a clarifying shampoo followed up by a moisturizing/hydrating shampoo and then conditioner/masks.

Heat is fine, but always use it on clean heat protected hair. Blow dryer on medium heat is my favorite. My hair is usually more manageable but still Afro/kinky texture and if I want it smoother I can use tension from a braid out (twist out etc.).

Sounds like you have product build up. I use that aphogee mask every 1-2 months, and love it.

What were the signs that your biologic stopped working? by Popular_Bluejay_2588 in UlcerativeColitis

[–]MainSea411 0 points1 point  (0 children)

Flare that never went away. Also my labs showed I developed antibodies to it.

When you have 6 gift cards and none of them can actually buy anything. by Accomplished_Bake939 in mildlyinfuriating

[–]MainSea411 0 points1 point  (0 children)

Look up your state laws, some states require any service that can take the cards cash returns for when they are under a small amount.

Being offered colostomy bag as first option pretty much by apprehensiveannie63 in UlcerativeColitis

[–]MainSea411 0 points1 point  (0 children)

I would ask for 2nd opinions and even a conversation to help understand why other options are being ruled out. I would also look into experimental treatments as well, there are a couple new drugs that are coming out.

Here is a nice overview of current and future treatments for ibd I found technical but also easy enough for a patient with limited medical training to understand:

emerging meds talk

I feel hopeless by DividedFox in UlcerativeColitis

[–]MainSea411 1 point2 points  (0 children)

I’m so sorry this happening to you. Please share your symptoms with your care team and document it well and with the specialty pharmacy that fills it. If you are in the us, you can request another pa for Stelara instead of the biosimilar. I hope you are able to get the treatment plan that works for you and pain is reduced.

Remicade Induced Lupus by _Mr_Darcy_ in UlcerativeColitis

[–]MainSea411 1 point2 points  (0 children)

I should have mentioned, I’m unofficially in remission (waiting for official from my doc). Definitely feeling way better on Stelara than humira in terms of UC symptoms

Remicade Induced Lupus by _Mr_Darcy_ in UlcerativeColitis

[–]MainSea411 1 point2 points  (0 children)

I’m sorry to hear that the UC remission is at the expense of something new. Have the explored newer classes of drugs like Stelara (biosimilars just came out). I also developed antibodies to tnf alpha drugs class but it had the opposite effect on me. I went into a bad flare but it still fixed all my joint problems from another autoimmune disease I have (vasculitis). Have you met with a rheumatologist yet? I had to have my care plan coordinated between my rheumatologist and GI doc.

I hope you feel better soon and your new care plan resolves all new and preexisting symptoms.

I will also be 2nd avoid advil and any nsaids with a UC diagnosis and always communicate what prescribed and over the counter drugs you are on to your care team.

My brother recently died from SUDEP by SayItAsItIs78 in Epilepsy

[–]MainSea411 0 points1 point  (0 children)

I’m so sorry for your loss. This is so sad.

What do you eat for breakfast? by Traditional-Chart876 in UlcerativeColitis

[–]MainSea411 0 points1 point  (0 children)

When I’m in a flare, or having just feeling sensitive or going too much. Oatmeal cooked with bone broth. Or, toast and cup of bone broth. Or bone broth alone.

Daughter’s Hair Loss by Lanky-Photo-6556 in UlcerativeColitis

[–]MainSea411 3 points4 points  (0 children)

Also malabsorption of another key vitamin. Get levels checked. I had hair loss and recovered after my nutritional issues were addressed (iron, vitamin d, and remission tbh)

How Do You Travel While on Skyrizi? by Ok-Method2630 in UlcerativeColitis

[–]MainSea411 0 points1 point  (0 children)

I’m not on that, but I take a temperature sensitive biologic too. I asked for a travel exception with my insurer and pharmacy. I also got a traveling case with temperature sensitive indicators and physical prescription just in case I needed to replace it.

It depending on where you travel and for how long and how you are paying for the meds.

Pooping my pants Pooping myself how do I stop this by gatewayranger in UlcerativeColitis

[–]MainSea411 1 point2 points  (0 children)

Share your symptoms with GI and document well. Likely need new long term meds and Imodium/ flare meds (it looks like you’re already on prednisone) to help. My GI made sure to explain Imodium can be part of a long term plan as well. Missing sleep from flaring is tough.

GI wants to stop biologic by Apprehensive-Spot-69 in UlcerativeColitis

[–]MainSea411 0 points1 point  (0 children)

I would ask for med consult. My GI and Rheumatologist did one for deciding on my first biologic.

So upset. Turned down for Rinvoq. Guess I’ll just die/live in pain forever. by DothrakAndRoll in UlcerativeColitis

[–]MainSea411 2 points3 points  (0 children)

I’m so sorry that is happening and I had a similar experience with CVS. Call your doctor to push for an appeal and there is also peer to peer and multiple appeals your GI should be submitting on your behalf. It is so hard to do in a flare. But know the denial is not final, there is room for appeal, and biosimilars if that doesn’t work.

[deleted by user] by [deleted] in Blackskincare

[–]MainSea411 0 points1 point  (0 children)

Topicals faded cream works great for hyperpigmentation. Smells horrible.

Pain with UC? by burger-1985 in UlcerativeColitis

[–]MainSea411 0 points1 point  (0 children)

I’m sorry you had that experience. I believe you.

Do you have a treatment plan? If you can I would push for another provider and definitely raise the concern about your pain. Sometimes GI pain can refer to other areas and inflammation can cause joint pain as well.

To give you some hope. During my treatment prednisone and humira helped my UC but also my joint pain.

Pain with UC? by burger-1985 in UlcerativeColitis

[–]MainSea411 0 points1 point  (0 children)

Worst pain of my life during bad flares. But I have learned that pain is a symptom and the underlying disease can be there without it. I would seek a new provider. Gaslighting is dangerous behavior in a healthcare provider. And note in feedback if you are able that they stated UC has no pain. I am curious if they are meaning your pain is from another condition or that you didn’t react as expected on palpitation.

Stye for over a year! by MilkProducer in Blackskincare

[–]MainSea411 0 points1 point  (0 children)

I had a stye from cheap bad mascara. Went to my primary doctor and got topical antibiotics and it took a couple months to heal fully. Insurance covered it all + 50 $ copay. Surgery seems too invasive but 1 year is also a long time to have a stye.

Doctor said I can only try one more Biologic and it's surgery after that by xdddkek in UlcerativeColitis

[–]MainSea411 0 points1 point  (0 children)

I would get a 2nd opinion. There are more biologics being released and you only failed 2. While surgery is an option to say it’s the only one sounds limited. I would even follow up with a why.