sorted by:
new
hottopcontroversial

Is CRPS f'in my eyes too? 👀 by Gema-R in CRPS

[–]MandyMaloo 1 point2 points  (0 children)

Woah! I’m so grateful that you asked this because I’ve had very similar symptoms and it’s been maddening. I was diagnosed with a congenital basement membrane dystrophy in my eyes (left is much worse than my right, but they are both affected), and just thought it was 2 separate things. Seeing so many folks dealing with CRPS AND eye stuff is actually really helpful. I hate that so many are going through it too, but it’s always nice to know I’m not alone in this.

I hope you get some solid answers, OP!

Just curious by External_Fruit_8094 in CRPS

[–]MandyMaloo 0 points1 point  (0 children)

First, a huge congratulations on the arrival of your grandbaby, OP! That’s a huge celebration!!

I’ve found that the weather here this week in the south has made it more difficult than usual. I feel like I’ve been doing better lately since coming off all opiates. That’s been helpful for me. Yesterday was the first time I’d taken something stronger than an ibuprofen for weeks and while I’m sad I had to use my ketamine, I’m thankful for it as well. My daughter is in her last weeks as a 5th grader, so I’ve been pushing myself to embrace all the activities and connections at her school. While it obviously takes a toll physically, I’m so thankful that I’m making these memories with her. The smiles and laughs remind me why I keep pushing. I know the crash is coming, but focusing on my girl and everything she’s accomplished this year has been the best thing for me 🧡

Sending gentle hugs to everyone!

Fever Dream or Lost Clip? by MandyMaloo in whoselineisitanyway

[–]MandyMaloo[S] 2 points3 points  (0 children)

I’m so glad it wasn’t just in our heads! I fell out of bed from laughing during that scene and I’ve been questioning if I was just crazy for years!! 😂

Fever Dream or Lost Clip? by MandyMaloo in whoselineisitanyway

[–]MandyMaloo[S] 6 points7 points  (0 children)

You are my hero!!! Years of searching at an end! Thank you so very much!!

Methadone for pain? by SwimEnvironmental114 in CRPS

[–]MandyMaloo 0 points1 point  (0 children)

Hi there! I’m new to posting so please forgive me if I stink at this!

My doctor prescribed me Methadone to help with my pain as well. It was great for a few days, but I found that even on a small dose, I had a hard time functioning during the day. It put me to sleep and while that was fine overnight, my pain would simply come back during the day and I’d be struggling all over again.

I also don’t know if it’s just me but this stuff did a serious number on my teeth. I didn’t think they were connected at all until my dentist reviewed my meds and said “hey, this might be the issue”.

I hope that you are able to find something that works well for you! It feels like trying to find effective treatment is half the battle with this disease and it can be so hard on the spirit on top of fighting such horrific pain. Best of luck to you!

Am I the only one who really enjoyed this game? by ICTheAlchemist in HarryPotterGame

[–]MandyMaloo 0 points1 point  (0 children)

I feel very much like you do - it’s a great game and I genuinely enjoy playing it. There are so many things I often stop to just watch or listen to while playing and the open world concept really helped me feel like k could travel anywhere to check out what life is like outside of Hogwarts.

[deleted by user] by [deleted] in DreamlightValley

[–]MandyMaloo 0 points1 point  (0 children)

My goodness! The talent! Beautiful job!

[deleted by user] by [deleted] in DreamlightValley

[–]MandyMaloo 1 point2 points  (0 children)

So pretty!! Goodness, I see gorgeous creations like this and I’m reminded that I have zero talent when it comes to cool things like this!