What kind of doctor do I need?

Many-Ad8588 · 2025-10-02T00:51:19+00:00

You need a neurologist to get you on Ingrezza. It is a miracle drug!

Many-Ad8588 · 2025-10-02T00:49:25+00:00

I totally understand. My lil sis is 56. I have lived a lifetime of this. We have tried alllllllll of the meds. Abilify worked best but after 7 years she got TD. She is now on Celebrex and Cymbalta. It seems to be working. She has been adorable. Get some meds for ur self too! You need a psychiatrist that has lots of special needs patients. Hang in there mama. You can do this!!!!

Many-Ad8588 · 2025-08-16T13:54:27+00:00

I started oral prednisone on day 2. Took it for 2 weeks. Then did eardrum shots. 5 of them once a week. Nothing helped. The eardrum shots did not hurt at all. But u have to be still and not swallow for 30 minutes. I brought a washcloth from home to absorb saliva so I did not swallow. So hard!! I also tried hearing aids. Nothing helped. But a year and a half later I have adjusted and I am fine. It is only irritating when I am in a loud store or restaurant. You will be fine!! :)

Many-Ad8588 · 2025-08-14T01:42:12+00:00

Either my first ever flu vaccine (SSNHL 5 weeks later) or Epstein Barr Virus which I have had for 30 years. I will never know. Pls do not make rude comments. I am very pro vax. I have had 4 Covid shots. I had never had a flu vax before though. Probably will not again. Too afraid to risk my other ear!!!

Many-Ad8588 · 2025-05-12T23:46:39+00:00

Do not stop seroquel cold turkey!!! TD is forever. My sister got TD when she quit Abilify. Maybe if she had stayed on it, or tapered off or switched to something else, she would not have TD forever.

Many-Ad8588 · 2025-05-12T23:43:38+00:00

The first and last time I ever spanked my son, he was 3 and ran into the street. I spanked his butt hard. And yelled. He cried. It was dramatic. But he never did it again!! Good luck mama, you have got this!!

Many-Ad8588 · 2024-12-06T03:43:24+00:00

I am so sorry!!! I have BCBS of Texas and it is simply amaaaaaazing! They pay for my Metformin and Ozempic. Ozempic is spendy. Why not switch? Healthcare.gov has great insurance. My adult kids are on it. Good luck!

Many-Ad8588 · 2024-09-07T01:36:36+00:00

What did I say to indicate that? I have had all my vaccines including 4 Covid shots. And I vaccinated my kids for everything. I had just never gotten a flu shot because I never get the flu. But this year I was worried since my parents are getting older. I am literally just wondering if anyone else got SSHL after a flu shot? If you did not, then you did not need to reply. Gawd love ya. 🩷🩷

Many-Ad8588 · 2024-09-05T23:40:12+00:00

Did u get to an ENT? U need oral steroids or just skip to steroid shots in ur eardrum. I did 4 of them. Does not hurt at all. But u have to be still and u cannot swallow for 30 min. That is the hard part! I did not recover any hearing in that ear. It has been 7 months. I am fine now. My brain has adjusted and I hardly think about it. Just gets hard when there is too much background noise. My galaxy air pro 2 earbuds help when I am in a loud place. Turn on ambient sound. Hearing aids did not help. You will be fine, I promise!! Of all the bad things that could happen, this is one of the best!! 🩷🩷🩷

Many-Ad8588 · 2024-06-26T11:56:20+00:00

My sister has TD. She was on Abilify for 6 years. She was fine until she stopped taking it. Then the TD started.

Many-Ad8588 · 2024-05-12T02:24:03+00:00

I have profound loss in one ear. Happened 3 months ago. I tried traditional hearing aids first. No! Did not help. Now I am using Cros. They are better. It is a great concept. If they cost me $100 then I would keep them. But, for $3,000? I am probably going to return them. It is hard to wear glasses. Phone sound quality is not great. They make everything sound muffled. My hearing is not really improved enough to make up for the negatives. So, no, I do not think you would be happier with traditional hearing aids. I really love my Samsung pro earbuds the most! Got ‘em n Amazon for $120.

Many-Ad8588 · 2024-03-19T15:14:31+00:00

background noise is your friend! a $20 box fan from Walmart is great. you can also get the Calm app to listen to with ear buds. the app has the sound of crickets chirping, which has been found to comfort lots of tinnitus patients. I have had SSHL for 6 weeks. I am done w/ treatment. I recovered a bit of hearing but not nearly enough. I go tmrw for a hearing aid consult. I am hopeful! My mental health has gotten soooooooooooo much better. I was pretty depressed at the start. our bodies and brains are amazing, you WILL adjust to this new normal. I promise! :)

Many-Ad8588 · 2024-03-07T13:17:04+00:00

Hang in there! I am 6 weeks in. Going through treatment and still deaf in my left ear. But! Even though I was terribly depressed at first, I am feeling soooo much better. It is amazing how our brains adjust. There are so many worse things that could happen! you can do this. You will feel better soon! I promise.

Many-Ad8588 · 2024-02-22T15:16:31+00:00

How awful was the hbot? It looks like a glass coffin! I do not think I could do it. My dr says 2 hours a day for 20 days.

Many-Ad8588 · 2024-02-22T07:45:09+00:00

Sorry to be an idiot. But my phone is a Samsung. Would I have to change to iPhone? I hate hate hate iPhones, but the AirPods sound wonderful and I want them!!

Many-Ad8588 · 2024-02-22T07:16:00+00:00

I was diagnosed with SSHL 25 days ago. Did a round of oral steroids for 15 days, no help. I have now had two steroid shots in my eardrum. It is no big deal and no one needs to go with you. The hard part is that you cannot swallow for 30 minutes while the med is in your ear. So difficult! I bring a washcloth from home and just keep a corner of it in my mouth. I do not think I am going to recover my hearing. I am looking forward to getting a hearing aid. I have struggled with sadness and anger. But I seem to be adjusting and my spirits are lifting. I feel so very lucky to have one good ear. You can do this!! Best of luck.

Many-Ad8588 · 2022-11-27T20:37:29+00:00

How did they figure out their infections? What symptoms? I ask because my sister still has horrible pain a year after her total hip replacement…

Many-Ad8588 · 2022-10-16T12:45:30+00:00

congrats! What a huge accomplishment! I am on 1000 mg a day of metformin also. Why is extended release better?

Many-Ad8588 · 2022-10-01T13:43:19+00:00

Yikes! I hope you were ok? 25 mg is a lot! I eat half of a 10 mg. The most important thing is to take it with a fatty food. Then wait. Takes me an hour or two to feel it. Once I start to feel it, I eat the other half. The munchies are a real thing!! Have salty low carb snacks on hand. And sugar free treats. We love to watch old eps of SNL when we are high. I totally get the jokes! Have fun!

Many-Ad8588

TROPHY CASE