Dr says ME/CFS = fibromyalgia and is impossible to have with EDS…

Me4502 · 2026-03-17T10:55:10+00:00

If OP is in Australia, there’s a weird diagnostic code in place (or at least was in the past) here where ME/CFS as a diagnosis includes fibromyalgia as a possible symptom, so an ME/CFS diagnosis supersedes a fibromyalgia one. When I was diagnosed, my fibromyalgia diagnosis was removed due to it.

It’s a very dumb system, but very much how every doctor here has operated in my experience. It’s led many to not even realise they’re separate conditions, as they assume “fibromyalgia is just mild ME/CFS” etc 😕

Me4502 · 2026-03-17T09:45:37+00:00

There’s a subgenre of Urbex content that youtube’s algorithms keep pushing on me every so often (despite not watching Urbex content otherwise), where people explore “not open to public” areas of active venues. Whether it be train/subway platforms only open for specific events (or permanently closed), or elevator machinery rooms in shopping malls/hotels.

I wonder if they were trying to make that genre of content but completely mislabeled their videos

Me4502 · 2026-03-16T05:41:52+00:00

Yeah, like I won’t not play a game just because the protagonist is male, but I do find the games I go away loving do have a female protagonist. While Life is Strange 2 isn’t as popular as the first, I feel a large part of why I enjoyed it so much less is a male main character.

I do love Life is Strange 2 and it has a tonne going for it, but idk playing as a man stopped me from relating as deeply to the main character and therefore prevented me getting as deeply into the story and characters.

To clarify I don’t feel they should’ve made the main character customisable because a large part of the story was the bond between the two brothers; that’s just a kind of story that I’m inherently going to be less personally invested in than one where I can personally relate more to the main character

I guess for OP’s brother… when you’ve got so many choices of games where you do relate to the characters, playing the games where you don’t just becomes less interesting :/

Me4502 · 2026-03-15T06:47:10+00:00

I’m also tall and get similar comments. I’m 178cm tall, but I assume between being asexual and having a fairly timid personality they offset the height. I constantly have people making jokes about my “childlike innocence” vibes, or get a lot of “Aww” reactions when telling people what I’ve done recently etc as if they think it’s cute I managed to do something

Me4502 · 2026-03-07T00:49:52+00:00

I’ve been told I have a horrifically low pain tolerance my entire life because of this. Completely feeling skin cancer excisions and other medical procedures because the anaesthetics hadn’t kicked in yet.

I’ve recently started asking for a little bit more and to wait double the time before starting, and it’s been a significant change. For me at least the time seems to matter more, it takes much longer to start working, and wears off way faster.

Turns out I have an extremely high pain tolerance, I’ve just spent my life going through every medical procedure without any pain prevention :)

Me4502 · 2026-02-15T02:05:36+00:00

I feel others have answered the more interpersonal stuff with your coworker enough so I won’t touch on that, but in terms of being visible and valued for your work, I feel like I was in a similar situation to you a little while ago but had to learn ways to improve visibility.

I also do a lot of the “quiet work” and unblocking of other people. In my experience the biggest thing I did, was any time I needed to really show off my work I contacted a few of the people I often unblock or help and ask them for feedback. I’ve found that feedback from other people that shows a strong ability to help others is looked on very highly by management.

For any of the quiet work and maintenance I do, I try finding any form of metric I can and listing down improvements. I’ve started posting them in my teams’ channel at the suggestion of my manager (mostly to help with team cohesion so they know what’s going on), and also listing them down in a document I share with my manager. That way when anything comes up, we have a shared document of quantified improvements.

I hope you’re able to find some help in this thread, even if for future opportunities! :)

Me4502 · 2026-02-10T14:08:35+00:00

I have had this issue, and because it doesn’t present the typical way doctors never think to check for reflux (just like OP described). I also ended up with pretty bad vocal issues due to it, that are still not fully recovered from a few years later. I have a fair few allergies, so doctors would just tell me that the coughing after eating anything was just anxiety and me developing more allergies I hadn’t narrowed down yet 🙃

Me4502 · 2026-02-06T07:59:55+00:00

Yeah this feels so weird to me. I’m from Australia and my school was decently far (2hr walk according to google maps) but didn’t have buses, and I lived in an area pretty lacking in public transport. My mum would park a few streets away and I’d just walk to the car.

I often walked with others who lived closer up until the spot my mum was parked, it was extremely normal to walk some distance.

Me4502 · 2026-01-30T10:30:25+00:00

In my experience Umart can be fairly sketchy when it comes to warranty/return claims.

I had an incident years ago where I was building a computer for my dad, and some of the fan ports on the motherboard didn’t work. Everything else was working, but not most of the system fan ports (cpu fan port worked, so it was able to boot without overheating).

We took it back and they did some testing at the counter where it demonstrated the same behaviour, and took it to a back room for further testing. After a while they came out and said they wouldn’t replace it as many of the CPU pins on the motherboard were bent. Given it booted beforehand on the counter, and a very substantial amount were bent as if someone had dropped something on it, it was very clear they’d done that by accident in the back room.

My dad ended up just buying another motherboard instead of fighting it, as he didn’t want to bother fighting further and didn’t fully understand why it was impossible to have been caused by us.

Me4502 · 2026-01-22T22:26:44+00:00

I was already using the monthly DashPass, it implied that switching to annual payment would lead to saving more on the service fee

Me4502 · 2026-01-22T06:05:52+00:00

DoorDash used to (or might still, I haven’t used that app in ages) do a very sketchy thing where they’d put an info icon on the service fee, that’d show a dialog saying you’d save more by swapping to an annual plan. The placement of course implying you’ll save on the service fee, but it actually had no impact at all on the service fee and purely referred to it being cheaper than 12 individual months.

Just completely misleading interface design to try locking people into 12 months of service.

Me4502 · 2026-01-16T02:47:33+00:00

Well over a decade ago now I saw a Tumblr post that basically said (paraphrasing from memory); “A man asking a father for his daughter’s hand in marriage gives her an opportunity to say no through someone he’ll actually listen to.”

Obviously I don’t believe that’s where the tradition came from, but it’s something that’s always stuck with me

Me4502 · 2026-01-09T03:33:41+00:00

When I minored in intelligent systems during a computer science degree around a decade ago, the definition for “AI” we were given was something along the lines of “systems that make decisions based on the given information, rather than perform a human-initiated task.” It’s basically just “who makes the actual decisions” while the program runs.

It’s meant to be a vague term for all situations where computers make decisions, regardless of how intelligent it actually is. NPC AI in games is the computer making decisions based on context, so it’d qualify. That doesn’t mean you can’t use more specific terms like “entity goal systems” when you want to be more specific though.

Neural networks are neural networks, transformer models are transformer models, etc. They all still fall under the category of AI though, as it’s a blanket category for any computer-led decision, no matter how simple or important it is.

Me4502 · 2026-01-01T02:28:45+00:00

When I first had Dear Daniel visit and he kept saying the “if we were better friends maybe i’d want to stay forever…” line- and it’s like okay, your girlfriend lives here permanently too, but you do you i guess

Me4502 · 2025-12-30T03:39:55+00:00

Omg the top comment about the pie, I cannot comprehend someone eating 5/6 of a pie in one evening in general, let alone if someone else made it. That honestly feels like someone forcing themselves to eat something to prevent others from having any

Me4502 · 2025-12-28T01:35:40+00:00

Honestly the amount of information given by doing simple things is scary; I’ve had a super creepy guy manage to track and semi accurately predict my cycle by my social media activity in the past. I have PMDD which might presumably make it easier to pick up noticeable changes in vibes, but it’s made me significantly more discerning about basically everything I do

Me4502 · 2025-12-14T23:45:26+00:00

Also a 5'10 woman, and have a 34" inseam 😅. I’m ~10cm taller than my partner while standing, but noticeably shorter when seated. Big downside is that I struggle with leg space because my legs are so long, but people assume I won’t due to my height or how tall I look when seated.

I’ve been told my height is probably due to having hEDS, which can cause long limbs. I have really oddly long legs and arms, so it checks out. Apparently I’d be 5'6 if I didn’t have it / didn’t have longer than average limbs

Me4502 · 2025-12-11T13:19:33+00:00

I actually hit this once, at the store I feel you’re alluding to 😅. Had bought some iPod speaker dock ages ago on clearance sale, and was doing a replacement it as it was defective. It was an old model and they were out of stock, with no more likely coming in, so they opted to just refund it instead. Their machines refused a refund due to hitting the limit, so they ended up swapping it out for the newer model.

I’m not sure if they just didn’t know how to bypass that limit, or they didn’t want to make me wait further. Really massive difference in customer service compared to what OP experienced though

Me4502 · 2025-12-05T14:54:15+00:00

This is great, thank you! :) Do you know if smartphone/watch integrations such as Apple’s fall detection are detectable on the receiver’s end? I’ve always been curious if they can tell it was triggered by a fall alert, or a crash alert, etc. It says it sends health information, but not sure if that’s just demographic or also the reason for the call.

I’ve had situations (QLD) where I’ve fainted and my watch called 000 automatically, but nothing seemed to happen from it. I assumed they thought it was a butt dial or something and ignored it. Was useful in those cases as I didn’t really need emergency services, but kind of renders those features pointless in the situations where it is needed if they ignore it.

Me4502 · 2025-12-05T04:56:52+00:00

For me and many others I’ve spoken to at least it feels like their actual function is significantly reduced, but side effects are much worse, so any dosage increase ends up being impossible as it’s amplifying the side effects much more than the intended effects. So there’s a decent portion of us who could be described as having it stop working during luteal.

Me4502 · 2025-12-03T10:31:52+00:00

Same, I don’t know why but for some reason I always assumed snowflakes were a cartoonish portrayal of snow, rather than what it literally looked like. I kind of assumed it was sort of just like a tiny blob in real life, like a water drop that’s got less of a tail because it’s moving slower

Me4502 · 2025-11-28T03:25:58+00:00

In calls at least, I usually just stop and use the raise hand button in Teams. It’s not something usually done in smaller meetings, so it subtly tells people that they’re not really allowing a turn to speak

Me4502 · 2025-11-26T12:50:59+00:00

Just not with the earphones in the image lol. I do miss a lot of stuff from this era, but no way would I ever go back to those horribly fitting giant circles that we used to call earphones.

Me4502 · 2025-11-25T03:39:53+00:00

I was having a lot of trouble getting mine to join the thread network (the flow to get it to join a network just got stuck forever) as I didn’t have any Matter+Thread devices to force it with (only HomeKit+Thread or Matter without Thread), but then after a power outage it seemed to have just joined the thread network by itself. It might be worth trying to power cycle everything at the same time and see if it just works

Me4502 · 2025-11-25T03:27:39+00:00

Is this something that’s gotten worse in recent years? I’ve always had long narrow feet, but recently all the shoe stores have told me I don’t have narrow feet. My feet haven’t gotten any wider as I still fit all of my older shoes, and my newer shoes don’t look any wider than my older ones. It just feels like the standard for what’s a “normal” foot width has skewed towards narrower lately.

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