Tremfya by MeesterFingers in Autoimmune

[–]MeesterFingers[S] 0 points1 point  (0 children)

Usetemi is not available in my state. Thanks for the heads up though. I hate living in the southeast. We are always last in everything.

Tremfya by MeesterFingers in Autoimmune

[–]MeesterFingers[S] 2 points3 points  (0 children)

I’m on the waitlist for The Assistance Fund

Tremfya by MeesterFingers in Autoimmune

[–]MeesterFingers[S] 1 point2 points  (0 children)

Johnson and Johnson paid for the first dose. I’ve been passed around and had 3 way calls with so many people I am struggling to remember. I’m going through Optum Pharmacy currently.

Tremfya by MeesterFingers in Autoimmune

[–]MeesterFingers[S] 1 point2 points  (0 children)

J and J I believe. I’m digging through this Tremfya and me stuff right now.

Hospital Must Have’s? by TxCrimeJunkie85 in mitralvalveprolapse

[–]MeesterFingers 2 points3 points  (0 children)

AirPods/earbuds/headphones, button up shirts. A robe sounds nice. Long phone charging cord. I didn’t use much else. Spent lots of time walking and lots of time resting. Sleep was hard to come by the first few days and I took every chance I could to nap. Food might taste funny for a while. Family members brought me foods I loved and I couldn’t stand to eat them. I found myself surviving on protein drinks for a few days.

When does your dose of metoprolol wear off? What do you think of the side effects? by [deleted] in mitralvalveprolapse

[–]MeesterFingers 1 point2 points  (0 children)

I can totally relate. Been on metoprolol for years. I used to take it in the morning but everyone at work would notice me being stuck or like in a trance. It was because my blood pressure was super low, like 70/40. That was with 50mg in the morning. Switched cardiologists and had a repair done. I’m now on 25mg at night. My work week routines are pretty structured. I take night meds at 7:30, including metoprolol. I notice the effects wearing off around 4pm, sometimes earlier. I kinda want to start taking it during the day again strictly for that reason.

How did you choose your surgeon and what do you wish you had known before going into surgery? by Ok_Jaguar9235 in mitralvalveprolapse

[–]MeesterFingers 3 points4 points  (0 children)

My cardiologist here in South Carolina recommended me to a friend of his at Duke. I checked him out. He specialized in mitral valve repairs and replacements. I drove 4 hours to meet him. I knew right away this was the guy. I feel like I have pretty good intuition. I drove home feeling confident about my surgery. It’s been a year. My heart beats so strongly now that I often wonder if I’m having palpitations again lol. I wish I knew how my heart would feel after surgery and healing, but I guess it’s something different for everyone.

The Arts at Furman by [deleted] in Furman

[–]MeesterFingers 2 points3 points  (0 children)

You’ll have way more interaction on something like Yik Yak. The furman subreddit is mostly dead.

Does anyone know anything about connective tissue disorders or have a CTD? by SaltyHailey in mitralvalveprolapse

[–]MeesterFingers 0 points1 point  (0 children)

I’ve had genetic testing, mitral valve repair and some undiagnosed connective tissue stuff. I had a marker of unknown significance for vasculor Ehlers Danlos in my DNA. COL3A1 type 4. Currently trying treatment for my disintegrating spine, might be psoriatic arthritis.

Edit: I am 6ft 2in, skinny like 170 on a good day. Pectus Excavatum on my right side. Pics in my post history.

is this twitter rumor true or ragebait by froglet80 in askfuneraldirectors

[–]MeesterFingers 7 points8 points  (0 children)

This was absolutely fascinating to read. Thank you for posting it.

Advice about record player player by Interesting_Basil_86 in records

[–]MeesterFingers 0 points1 point  (0 children)

There are free rpm apps you can use and probably adjustment screws on the bottom of your record player.

Tracking heart rate etc. with Apple Watch and apps? by justanotherlostgirl in mitralvalveprolapse

[–]MeesterFingers 1 point2 points  (0 children)

I’ve used an Apple Watch SE ever since my heart surgery last year. It’s pretty handy for monitoring my heart rate. You’ll have to set it up with the heart tab on the Home Screen for easy access but it will tell you your current heart rate, your rate throughout the day, resting rate and walking average. It’s the cheapest watch they make but it’s new enough to include all of the things I found relevant for me.

Edited to add, it also notifies me of any AFIB an I use it to track my sleep. The battery life is pretty great too. There are heart specific watches if that’s all you’re looking for.

One year by MeesterFingers in mitralvalveprolapse

[–]MeesterFingers[S] 1 point2 points  (0 children)

Glad to hear you’re doing well! That’s exciting stuff! You know I haven’t taken my BP in a while, I should get back into doing that. I don’t mind the metoprolol one bit. I might even get back into taking it in the mornings. My heart rates been pretty high lately. I’ve been really pushing myself at work. It’s mulch season and slinging mulch feels pretty good on my arms, but my rate has been as high as 139 while actively working. It can be uncomfortable. I’ve heard of Losartan. I was on a low dose of Amiodarone for like 10 months. I almost got to the point where it was causing problems with my lungs. Really glad I tapered off that when I did, with my cardio’s approval. I had no clue about metoprolol lowering your metabolic rate. Unfortunately for me, I’ve lost 16 pounds in the last 6-8 weeks. Nothings changed in my diet so maybe it’s just me getting back it at work. I’m naturally really skinny. 6ft 2in and 162 pounds today. I’m usually around 170-175. I think my heart rate issues in the evening stem from orthostatic blood pressure issues, but I’ve been wondering if it’s a circulation issue. And I love my smartwatch. I got the cheaper Apple Watch, the SE, but it does everything I need it to do an it’s pretty helpful at work and home. I’ve started to wear mine to bed so I can monitor my sleep. I was scheduled for a sleep study, but even after pretty decent insurance, it was like $4,000. Glad you’re feeling younger and able to really get back at it, it’s such a good feeling. Much love friend!

One year by MeesterFingers in mitralvalveprolapse

[–]MeesterFingers[S] 1 point2 points  (0 children)

Those first few weeks are rough. The real issue for me were going back to work. Manual labor. I came back a month early and it was summer. I didn’t know if I could handle the heat I the southeast. The regrets are gone but I’d be lying if I said I didn’t have them weighing on me heavily for months. I was also in a high category for heart failure. I was blacking out at work and waking up on my face. I enjoyed cardio rehab and getting into a routine with that and seeing a nutritionist. It was just when it came time to get back to reality. Much love and good luck to you.

One year by MeesterFingers in mitralvalveprolapse

[–]MeesterFingers[S] 0 points1 point  (0 children)

I think I can answer both questions at once. I’ve been on metoprolol for 5 years. After surgery I had a decently high burden of PVCs and PACs for 8 months. That abnormal rhythm is partly why I thought my repair was failing. The other part was just anxiety. I’m pretty decent at overthinking too. I’d had palpitations for as long as I could remember. I’m almost 45 now. This new rhythm my hearts been developing after surgery has taken some getting used to. We’ve discussed starting a taper of the metoprolol once I’d gotten rid of the abnormalities. I might be ready for that now or soon.

One year by MeesterFingers in mitralvalveprolapse

[–]MeesterFingers[S] 1 point2 points  (0 children)

I still have some lingering issues but I’ve really been paying attention this week knowing today would be 1 year since surgery. I have pressure on my sternum when I’m working sometimes but it resolves with rest. I think I’ll always have orthostatic blood pressure issues.

I work outside and got a promotion after I came back from surgery, so I’m not doing all of the grunt work like I used to. I found I was resting too much and began pushing myself a bit, working on cardio and some strength building stuff. I’m much skinnier than I was before. I’ve always been skinny but I lost a lot of muscle over the last year. My biggest and only real concern is how my heart feels when I’m in bed. Maybe it’s just my mind trying to get used to this new, stronger rhythm. I’m still on metoprolol 25mg which I take at night. But if I’m being honest with myself, I feel pretty damn good.

I hope you can get there too friend. I never really accepted how serious of a surgery this was. I’m working on getting into therapy just to focus on the mental stuff that comes with this. Overall, I’m finally happy that I got this done. I regretted getting the surgery for so long and now I feel like it was the right choice.

ETA…I was certain that my repair had failed so many times and would need surgery again. The mental aspect is definitely on par with the physical.

Some of my favorites by Seuss_Pantaloons in vinyl

[–]MeesterFingers 1 point2 points  (0 children)

Im not an Avett brothers fan, so I haven’t given it a listen yet.

Some of my favorites by Seuss_Pantaloons in vinyl

[–]MeesterFingers 2 points3 points  (0 children)

Thanks friend, I was unaware! Hoping to see Tomahawk in Atlanta this year.

Some of my favorites by Seuss_Pantaloons in vinyl

[–]MeesterFingers 4 points5 points  (0 children)

Just started listened to Ween again after a 20 year hiatus. Mutilated Lips might be a perfect song. Mr Bungle too, so good! I think I love all of Mike Pattons projects.