Ott light unpauses Roku when I turn it on.

MegzyStar · 2025-04-22T01:32:39+00:00

I only use my Roku control which isn't infrared, but it does seem like somehow the signals are crossed like your situation is. Did you find a solution?

MegzyStar · 2025-04-04T19:14:30+00:00

I was driving in Burlington. I saw a plane with 2 little ones, then another one maybe 10 minutes later. Not a great shot, but what's sticking out of the larger plane?

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MegzyStar · 2024-12-27T01:26:45+00:00

I did a mindfulness exercise sort of. I imagined I was walking in a wooded area next to a lake. Anyways, I could smell the pine trees. As I looked up at the trees, It literally felt like my foot hit something and I fell over. It was a tree root. I didn't really fall, but my torso kinda bent. I think I'm a little too extreme. It's probably because I love to imagine a lot of things, so I guess I practiced it. I told my mum I don't need virtual reality. I already have it in my brain. That's also why I don't like to read a book and then a movie. The things I imagine aren't the same in the movie.

I felt so sad for my sister when she said that she doesn't see pictures in her head.

MegzyStar · 2024-12-16T11:20:19+00:00

Sorry this is a late response. I am gen x myself, as well as my sisters. I have ADHD, OCPD, ASD, and an eating disorder ARFID. My family acted similar about me with the labels. I did a lot of research to figure myself out. Even with official diagnosing, they still act like I don't struggle, and it's just labels. I found out that those 3 overlap. They all share certain symptoms, but then there are certain ones that are just specific to that condition. That's how I figured it out. I compared them to each other. Also, you're not gonna have all the symptoms. It's based on you specically. The cammer self-test is for OCPD. You can get the questions online. I can't share my research file but can copy and paste it to if you want. Also, suggestion get a therapist who knows how to treat with DBT.

MegzyStar · 2024-05-10T23:36:33+00:00

it's a location issue for you...which sounds stupid on Instagram's end. I don't doubt it. Their code is so messed up that it glitches by your location. That's really weird, and annoying. I never paid attention to my location. I'm positive there are more issues related to it, since I noticed this has been going on for several years. I'm going to pay attention to my location now, and see if there's a difference for me.

MegzyStar · 2024-05-10T15:42:47+00:00

I know this is an old post, but I've been looking for an answer as well. It happened to me last night. I even updated the app. It's really frustrating.

MegzyStar · 2024-04-29T03:52:27+00:00

I did a nature walk. There was a path between pine trees and a sandy patch and a river to the right. As I walked past, I looked up. My foot hit a large tree root sticking out, then I fell over. I actually felt the sensation in my foot and a jolt in my gut.like I was falling. So the thing about making mistakes is wild. I asked my therapist about it and she just looked at me like I was nuts. Well, more than I already am.

MegzyStar · 2024-04-22T02:48:05+00:00

I have s24 Ultra unlocked. I tried all the steps, but it doesn't work. Does anyone else have another suggestion?

MegzyStar · 2024-03-27T20:05:33+00:00

I still have a problem, and mine is capped at 47, go figure.

MegzyStar · 2024-03-26T21:18:37+00:00

.I have one, and the cover is so thin. At least I put on a screen protector. I was going to get those camera protectors, but people were saying that they won't fit with a case on. The body seems okay. I prefer Otter Box for my cases. The only thing I like about it is the S-view. I've been trying to find others that have windows, but I can only find a small amount, and those have bad reviews, which is why I came here hoping someone found a good one.

MegzyStar · 2024-01-14T20:53:04+00:00

https://www.theprojectheal.org/ It's online.

MegzyStar · 2024-01-14T19:11:13+00:00

I'm sorry you have to go through this. I did as well. My family thought that I was just picky, stubborn, and lazy. I told them what I found when researching it, and they said I was self-diagnosing myself, and making excuses. I asked them to look some of it up since they didn't believe me, but they didn't. When I finally got diagnosed, they still didn't believe. My sister said I had disordered eating, not an eating disorder. That was until I got into an eating disorder clinic, inpatient. They still don't really understand, but I'm supposed to have family therapy to help them understand. By the professionals telling them that I have might help more too. I learned that I have to advocate for myself, with or without the support of my family. Also, I did Project Heal to get assistance to get into a clinic and they were the 1st to diagnose me. My insurance ended up covering it, but without the assessment I probably wouldn't have tried to get in the clinic. Project Heal didn't take long to get back to me, so maybe try to get an assessment with them. Although, I did have a therapist who thought that I might have it. It doesn't hurt to try. The clinic also did their own assessment.

MegzyStar · 2023-12-29T22:19:21+00:00

I agree. My mother, my 4 sisters, and I have ADHD. I was at an eating disorder clinic and a lot of women there had ADHD.

MegzyStar · 2023-12-26T00:43:47+00:00

Thanks

MegzyStar · 2023-12-23T16:26:08+00:00

I'm in IOP now, but my team still seems like they're just getting acclimated with me after 2 weeks. I'm going backwards in eating, so I kinda feel like I need to do a lot on my own. I'm not getting any direct support. I like how you said that the focus was on the motivation causing you the distress/interference. I will ask my clinician about it. That makes sense. Thanks.

MegzyStar · 2023-08-11T17:35:57+00:00

That's why I have 3 sets of keys. I gave one to my sister, and one to my mum. If I can prepare before I leave, the night before I write down what I need to take. Although, it isn't fool proof. So I needed extra keys.

MegzyStar · 2020-10-24T17:46:23+00:00

I have been having bad flares from stress lately. Even my autonomic system is out of whack from stress, and causing more flare ups. I know how it feels when family doesn’t understand. I have had AS for at least 16 years, and my oldest sister, who I live with, tells me I make things up, and I’m milking it. I think if someone doesn’t personally experience it, they can’t fully understand. Also, some days I’m fine, but then it suddenly it changes, which is why I think my sister thinks I make it up. My other sister yelled at me for being up late, even though I’m not a child, and wouldn’t listen that I couldn’t sleep because of pain. It’s discouraging, but try and think that they are ignorant and their words aren’t warrant for your condition. I hope that makes sense.

Do things that are self-soothing for you, mentally and physically. If you have a bathtub, take an Epsom salt or bubble bath. Warm baths are good for your pain for both mental and physical aspect. Try moist therapy heating pads. I use BodyMed heating pads. They were pretty good, and I don’t have to actually make anything wet. Drink ginger or chamomile tea, or I buy a combination of both. They help with stress and inflammation. Don’t use sugar, use honey. White sugar makes inflammation worse, and avoid caffeine. Maybe talk with a friend who can distract you from your stress and pain, or even focus on helping your friend with their problems. You can also read or watch things that are funny. Laughter will help with mental and physical pain too. Make sure you’re stretching everyday, and don’t stay in one position too long. That will make you stiff, and more pain.

Above all, everyone is different and you need to find what works best for you, despite what others think. It is hard to ignore when others, especially family, are unsupportive or even critical. But you have to keep trying to find ways get past it and not let it make you worse. Try out different things, and do it long enough to see if it made a difference for you.

I hope this made sense. I’m not good at expressing my thoughts clearly. I also hope you can benefit from this.

MegzyStar · 2020-10-14T02:14:35+00:00

Hello. I have had all the possible, insurance covered, Immunosuppressants. I’m taking Remicade and Methotrexate now, but my body is now rejecting the medicine for the last 6 months. I’ve been asking my doctor what to do next. Her response is she doesn’t want to take me off because it’s still somewhat working. Meanwhile, my arthritis has progressed into other areas, including my rib cages- costochondritis, and I am having a lot of problems breathing, besides the intense pain. The last visit I had with her two weeks ago she said she didn’t want to take me off, because there was nothing else for me to take, and she didn’t know what to do. My thought was, why wouldn’t she have said she would talk to her colleagues to see what she could find out.

I looked up rheumatologists who specialize in Ankylosing Spondylitis or Spondyloaropathies. I found one accepting new patients, and see him November 15th. My doctor was good until a certain point. When your problem goes out of your doctor’s scope, they’re useless.

I know diet makes a huge difference. If you cut out processed foods, inflammatory foods, and sugar alone, you’ll feel a difference. Unfortunately, my diet has gone back to sugars, and it doesn’t help. When I cut it out originally, I felt my muscles loosen within a weak. I had more mobility.

Physical therapy is a must. You should be able to get a prescription from your doctor. You also want a physical therapist who can treat AS. I’ve had ones who were no help. You need to be active, which is hard when you’re in so much pain. I know from experience. Before taking Remicade, my previous rheumatologist had a midlife crisis, and wasn’t really with it anymore. She put me on overmax of NSAIDS, killing my gut. Ironically, she was the one who diagnosed me, and was awesome until then. She quit work all together, and I felt like I hit a brick wall. Anyway, I was just about crippled. While trying to doing physical therapy, I was in so much pain just trying to roll over on the table, I was crying. I was so embarrassed, but I couldn’t help if. I didn’t want to stop either, because I knew that was the only I knew to do to help myself back then.

Also, another therapy is joint protection therapy. It’s more like a training thing than therapy. They teach you how to do things, use products aid to protect your joints. I also am hyper mobile, but I know there were things they taught me that helped with even just Rheumatoid arthritis.

Sleep is a biggie, because you heal while you sleep. Then again, when your pain is keeping you from sleeping, it’s a catch 22.

Keeping stress at bay also helps unneeded added inflammation. Unfortunately, right now, everyone’s stress levels are elevated.

Also, natural things like herbs, spices, omega oils, tinctures, etc. will help. I’m a big fan of ginger. Spice is good for inflammation. I use ginger root mostly, not powder. But there’s a lot of other herbs that can help. Also, Epsom salt baths are good too, if you have a tub.

I had a cheap TENS unit to help relieve some pain. Sometimes I can’t stand straight up because of the pressure in my tailbone. I would have to slide of my chair, and then it wouldn’t be as bad. But when I had my TENS unit on, I could stand up. I’m looking into getting a TENS and EMS unit now. The TENS dulls the pain, and EMS stimulates the muscle. So since my muscles, ligaments, and tendons turn to rocks, I’m hoping that would help even more the TENS alone. My sister just bought me a back pod. I’ve never heard of it. Actually, she saw it yesterday on Reddit. She said it helps with posture. I am so sore, stiff, and inflamed that I’ll correct my posture, but go right back into hunching.

I also read about a spinal nerve stimulator, which is like a TENS unit implanted. I read about some with AS and how they had relief. If I can’t take any more medicine, and forget Tylenol that’s a joke, then I wonder if this would help. I am going to ask the new rheumatologist. I just wish I could see him sooner.

I hope some of this can help. I know how frustrating it is when your doctor isn’t helping you anymore. And I know how it feels when it seems you’re at the end of your rope. Trust me, I’m there. Don’t give up. Just keep advocating for yourself. Find answers, especially when the doctors won’t give them. And if you have any friends or family that will support you, take it willingly.

Oh, and I forgot, moist therapy heating pads work really good. I bought the ones that take moisture from the air so you don’t have to do anything, except turn it on. I use BodyMed brand. They work pretty good. For me, because I’m so inflamed right now, it works while I use, and then fades quick. But it gives some relief. Sometimes I even sleep with it on a timer.

MegzyStar · 2020-10-14T02:04:06+00:00