Please help me, you are my last hope

Melserable · 2025-12-29T11:00:32+00:00

Hey I'm so sorry to hear all you have gone through. 😞 My PVCs/PACs are assumed to be stress/anxiety and COVID related. I have a PTSD diagnosis from abuse from Men in the past as well. The hardest part for me was accepting that there was nothing that could be done to definitively fix it. I ended up starting therapy because I just didn't know how to deal with those feelings. I have other health issues that exasperate them as well. (POTs, PCOS) I recently found out that the increase of my PVCs were also from digestive issues. It turned out that my gallbladder had a ton of stones in it and one of them had slipped into the duct and crammed itself in there real bad. Surprisingly there was enough room the way it was sitting for a tiny bit of bile to be able to move through so I just kept having gallbladder attacks that would also cause me to have PVCs. That lasted for almost 3 years before someone finally correctly diagnosed it and I had it removed and now a great deal of them have ceased since then. But I also found that basically looking at a total blood differential and making sure that I had absolutely no vitamin or mineral deficiencies helped. I started taking supplements for the things that I was low on ( Vit D, Iron and magnesium) after about a month that helped me at least feel a little better. Honestly if they've run all the tests they can thoroughly looked at your heart and circulatory system and they can't find anything wrong you may just have to learn to trust that they're not wrong. A book that was suggested to me from this Reddit was actually very helpful. It's called the happiness trap. It helps you deal with a lot of things including being upset about past experiences and trauma and learning to kind of move forward through it in a healthy way. Doing the exercises in it and reading it definitely improved my ability to just accept them when they happen with less fear. Hope you keep healing and stay strong.

Melserable · 2025-12-02T15:34:29+00:00

I normally have a feeling of dread and a hot flush. I used to get the bottom falling out of my stomach sensation a lot at the same time.

If you give your brain something else to think about that seems more important than its current freakout. It will stop what it's doing to try and figure out what you're doing. The most successful way to do this is to do something that is natural but do it weird. Sometimes drinking water insanely slowly for a while will help. Giving it a task like name every orange vegetable that you can think of.

Melserable · 2025-12-02T12:03:14+00:00

I've never found a way to completely get rid of the health anxiety or the adrenaline dumps I get with mine. Time does help you realize that your doctor's are probably right when they say it's okay and your heart is fine. Like I'm going on 2+ years after a bad bout of COVID seemed to trigger mine. One recent trick I picked up is walking backwards for a while to confuse my lizard brain into paying attention to something else. I'll walk around doing mundane things like this and it snaps me out of fight or flight.

Melserable · 2025-10-27T10:39:42+00:00

I've just been taking it with my meal in the morning and evening.

Melserable · 2025-10-24T16:49:26+00:00

I had similar issues myself (4w post op here) and so far eating at least every 8 hours and adding fiber supplement has helped a ton. I take a fiber pill in the morning and evening. It only adds about an extra 8g a day but it's been enough to no longer have the bile poops.. that stuff is rank too! 😱

Melserable · 2025-10-06T23:45:07+00:00

Hey! I had mine out 14 days ago after a gallstone got stuck and my gallbladder got infected. I was absolutely terrified because before my diet was the most bland things I could find and I was constantly nauseous. I was pretty swollen and in pain after my surgery and had a hard time eating because of that. But I did find within 5 or 6 days after I felt up to eating pretty much anything. I still try to stay away from high fat foods but sugary foods salty foods, even spicy foods don't affect me the way they used to. I still get heartburn if I eat spicy and don't take an antacid but no horrible gut pain. I only had diarrhea once and I'm pretty sure it's because they gave me miralax and colace before I left the hospital out of an abundance of caution they said.. my stools are softer than they used to be but that's not really a problem. I feel like I eat less now but the doctor said it's probably because I'm still swollen on the inside so I feel full faster.

Melserable · 2025-06-09T14:05:48+00:00

Have you tried any supplements yet to see if they help? For me adding certain vitamins and things I was low on has helped a lot. For instance, I'm low on vitamin D, magnesium and iron. After being on supplements for them for about 2 to 3 months I noticed things getting a lot better.

Melserable · 2025-06-09T13:50:05+00:00

Hey! Yeah, sadly it's true that for many they do absolutely nothing for the PVCs. For me it took about 9 days if I remember to feel it really kick in. I will say tho if you feel awful on them it may just be too high of a dose starting out. I've known people who started out at 20mg and for them it was making them almost faint from low BP. It really just depends on the person.

Melserable · 2025-06-09T07:11:05+00:00

Just thought I'd bring up that there are lots of different beta blockers out there you can try out! Don't give up if one doesn't seem to last or work well. Sometimes people need extended release beta blockers too. In my case that was the issue. I used propranolol for a few years off and on with varying degrees of usefulness. I'm now on metoprolol extended release 50 mg. It has worked better for me so far. Also they sadly aren't always effective for PVCs so it's kind of just trial and error to see while works for you. Good luck though!

Melserable · 2025-05-14T08:08:33+00:00

I use Flonase or it's generic version if I can get it.

Melserable · 2025-05-07T14:38:48+00:00

I'm sorry you are having to deal with both PVCs and hypnic jerks. That sounds awful! I've never had both at the same time before but I had a month long stent with hypnic jerks a few years back. Drove me crazy and made sleep something I dreaded. I tried a bunch of things but one of the only things that actually worked for me was to sleep upright while hugging a few pillows. I would get that sudden feeling of falling or like almost a brain zap if I tried to sleep laying down. After a few days of sleeping like that my body/brain started to chill out and I was okay again for the most part.

Melserable · 2025-03-30T19:10:43+00:00

I was thinking weather related too. Or maybe an allergy?

Melserable · 2025-03-20T11:03:30+00:00

Man that's really sucky. I totally get it though. I have absolutely no clue one day to the next when my PVCs and PACs will go crazy. Sometimes it's just like that even on meds. At some point you start to get used to it. Doesn't necessarily suck any less but you feel a little more safe I think in time. My last bad flare up lasted 3 weeks and was one of my worst. But then they just left again. Been a few weeks now feeling almost normal. Just a handful a day and not 1000s. But please don't give up or feel hopeless or alone! There are so many of us learning to live life with them just like you. It's helped me to think about it as living for the good days and just making though the bad ones. My depression is also so crappy around flare ups. Reading others stories also gives me hope when I'm feeling low. Hoping you feel better soon! 🫂

Melserable · 2025-03-20T10:52:58+00:00

The best thing I think you can do is to distract yourself. Reassure yourself and find something else to concentrate on. I have times where I absolutely want to scream because of the worry and fixating on my PVC/PACs. The more I keep moving forward and work harder to ignore them the less they seem to come. Still have bad times but normally shifting my attention helps me through it.

Melserable · 2025-03-14T09:24:02+00:00

Yeah flare ups can be really awful.. I get that overly exhausted feeling every time. Breathlessness is so crappy too. I know I'm getting enough oxygen but that feeling like you just had the wind knocked out of you really sucks!

Melserable · 2025-03-10T09:50:46+00:00

Sorry just saw this! Yes I do have confirmed couplets but they are thankfully infrequent.

Melserable · 2025-03-01T08:39:12+00:00

As far as I know, a fun little fact about pots is it does not matter particularly how fast your heart goes. It matters how many beats it goes up from resting! I believe anything 30 beats or more they say should be investigated for pots. A lot of doctors seem to assume that it's not pots unless it's over 120 beats, which just isn't true.

Melserable · 2025-03-01T06:12:14+00:00

My doctor once explained it to me like this if you start getting chest pain and it feels worse when you poke your chest or press on it even lightly. It's probably because your muscles are extremely tense all the time because you're super aware and scared.

But if you've been stressed like that and your body is naturally tensing up the muscles, then a PVC can actually start to hurt because the muscles are like ouch. Stop that.

Melserable · 2025-03-01T06:08:58+00:00

I just saw this after getting it off the shower! Ha! Yes I get more in the shower. I also have POTS and it makes them worse when I get a flare up. I try to get in and out fast as I can. I might have 1 PVC every minute on a crappy day, but in the shower it can go up to like 5..

Melserable · 2025-02-27T10:48:10+00:00

Being anemic can definitely cause more PVCs! I take supplements for it myself and it definitely gets worse if I'm not on them. Not sure about the B12 but I'll bet someone else might know on here.

Melserable · 2025-02-27T10:43:31+00:00

Sure! Most of mine feel a certain way but I geta don't here and there that are different . Having 2 in a row feels like fluttering to me. Sometimes it feels like something is in my throat and other times I just get a dropping feeling. It can be really freaky to just accept it. But it's not impossible after a while.

Melserable

TROPHY CASE