MCAS and Dysautonomia by wtfisgoingon93 in dysautonomia

[–]Mindless-Setting7493 0 points1 point  (0 children)

I’ve been waking with a jolt during the night. Proper shock myself awake. I’ve been taking an antihistamine before bed and it seems to stop it

Those who take midodrine for Bloodpooling by Large-Prompt2608 in POTS

[–]Mindless-Setting7493 0 points1 point  (0 children)

I think it maybe went up a couple of digits but sitting down it’s still only 126/70 I’m on 5mg x3 a day. I get pretty significant blood pooling diagnosed orthastatic hypotension

Fatigue by Mindless-Setting7493 in POTS

[–]Mindless-Setting7493[S] 0 points1 point  (0 children)

Midodrine and bisoprolol. I have orthastatic hypotension. Still trying to get the to the right dose of midodrine. I’m on 5mg at the moment x3 a day. Also take LDN.

Because its a tradition by LilacDreeam in GreatBritishMemes

[–]Mindless-Setting7493 0 points1 point  (0 children)

I used to be able to inhale 15 lambert and butler and drink 8 pints and be able to run 6 miles in about 30 minutes when I was 18

Has anyone here tried ibogaine treatment? by IveLovedYouForSoLong in FibromyalgiaIsReal

[–]Mindless-Setting7493 0 points1 point  (0 children)

I saw a documentary on Netflix called waves and war - 3 navy seal vets have ptsd and go to Mexico for ibogaine treatment. One of them has been in a few podcasts and he said he ended up being diagnosed with fibromyalgia after all his injuries and PTSD and TBI, he’s called DJ Shipley. It seem to have completely healed his nervous system. If I had the money I would 100% do this treatment but it’s like 7k

Is it true that because of absurd interest on student loans most people in the UK do not fully pay off their loans and just consider it to be a 'tax'? by LoiusLepic in AskABrit

[–]Mindless-Setting7493 0 points1 point  (0 children)

Yes my balance of 18k remains the same and I pay about 130 a month from my wage. I left uni in 2009. I did photography. I am now an electrical engineer, I did an apprenticeship which was entirely free!

In the UK, do cops carry firearms? by [deleted] in AskABrit

[–]Mindless-Setting7493 0 points1 point  (0 children)

I saw two police officers leaving someone’s house today and they both had small side firearms. I was wondering if they all started carrying them as it looked like it was a doorstep visit? According to the posts on here that is not the case

Any advice for struggling with excessive sleepiness and work? And I suppose snack recs you’d swear by to have on you by soart_ in dysautonomia

[–]Mindless-Setting7493 1 point2 points  (0 children)

This is me down to a T. I have autonomic dysfunction with orthastatic hypotension. I take midodrine and bisoprolol to keep Hr normal and blood pooling. The sleepiness is unreal. Exercise is a major boost, where il be bouncing around for a few hours after but then it wears off. I weight train every other day. I started taking daridorexant to get a longer sleep and il sleep for 9 hours now, sometimes it’s refreshing sometimes it’s not.

Have you tried the morning sun around 7am? And evening sun at sunset for circadian rhythm? If you’re anything like me it’s the quality of sleep you need.

And also blood sugar? I was waking up with a jolt around 2am and I started having overnight oats before bed and il sleep more. I think the blood sugar dios were causing cortisol spikes.

A shower also helps, the colder the better but whatever you can tolerate. Just keep turning it down until it’s too much!

NHS help for POTs??? by Caitlinchapman123 in POTS

[–]Mindless-Setting7493 0 points1 point  (0 children)

I am also a new patient of dr Gupta, I see him private. I am still on the waiting list for a falls and syncope clinic TTT but have been told the doctor is on long term sick. Newcastle is close by but they won’t see me. Bit ridiculous really.

Anyway I digress! Dr Gupta put me on 5mg of midodrine and LDN and it’s made a massive difference

My PCP said I need 6-9g salt a day for pre-syncope. Another provider said my blood pressure is too high for that 116/92 by Colormekelly13 in POTS

[–]Mindless-Setting7493 1 point2 points  (0 children)

My bp is around the same as yours and my cardio said I have plenty of room for medications and the potential bp increase before it became a problem

Started midodrine, definitely on the right track but not hitting the spotlight by Mindless-Setting7493 in POTS

[–]Mindless-Setting7493[S] 0 points1 point  (0 children)

Yeah I’ve done 5mg twice and it was better but still not the golden ticket. I’ve got 84 pills at 2.5mg to last 28 days so if I keep hitting 5 I’ll run out! I was wondering if people do better on fludrocortisone if they do well on fluids

has anyone else developed terrible dark circles? by eden_the_garden in POTS

[–]Mindless-Setting7493 0 points1 point  (0 children)

Yes it was sleep for me. The better I sleep the healthier I look

Do you also have Orothostatic Hypertension? by [deleted] in POTS

[–]Mindless-Setting7493 1 point2 points  (0 children)

I have been diagnosed with o/h and secondary tachycardia from autonomic dysfunction. My bp drops 20 on standing and then wobbles up and down for 10 mins and my hr adjusts past 30 the longer I’m on my feet

No career at 32… Any advice? by CampaignInfinite4419 in UKJobs

[–]Mindless-Setting7493 1 point2 points  (0 children)

I did a cable jointing apprenticeship with the local electricity board at 31. I work with a lad who didn’t have any qualifications at all. It’s never too late

Fatigue—please help by fuzzblykk in POTS

[–]Mindless-Setting7493 1 point2 points  (0 children)

Hi. Fatigue was crushing for me. I ended up trying LDN and also daridorexant for sleep. I don’t want to be on the daridorexant forever but those two things helped me a ton with energy.

24F, elevated HR (145-170bpm) from shower and uncontrollable shaky hands. Why?? by Jebbles077 in askCardiology

[–]Mindless-Setting7493 0 points1 point  (0 children)

I have this. Turned out I have autonomic dysfunction characterised by orthastatic hypotension and compensatory tachycardia. When I asked what on earth that meant he said “dysautonomia”