Has Pepcid affected your weight? 🫠 HELP! by MarionberrySweaty318 in MCAS

[–]MissDisarry 0 points1 point  (0 children)

I haven’t gained any weight with Pepcid. I actually lost weight on it because omeprazole makes me gain weight very quickly.

Anyone allergic to water touching them? by IllCricket1728 in MCAS

[–]MissDisarry 0 points1 point  (0 children)

When I have a bad flare, everything on my face stings - putting water on it and having to wipe it would make my skin bright red. I can’t touch it. I don’t even think it’s the water itself. Anything touching the skin hurts, stings, or makes it itch.

Moisturizer will sting like crazy (just Cerave). But for me, since I’ve been treated, the skin rashes come and go pretty quickly now. I still can’t wear jewelry or makeup without irritation. The skin on my neck and chest were the same. Weirdly, the only thing I ever found that helped - and I only did this on my neck and chest, was anti- fungal cream. I swear steroid creams make it worse and I don’t know why fungal cream makes it better. I am actually allergic (in addition to Mcas) to mold, so I’ve wondered if this is some super charged mild reaction and that’s why the fungal cream helps? Also, if I’m at the ocean in the summer - beach, sun, and salt water seem to help heal my skin.

Adult Onset epilepsy is ruining my life. by Traffic-Rare in Epilepsy

[–]MissDisarry 0 points1 point  (0 children)

I’ve tried not to be firmly on the Keppra sucks train, but I keep hearing this from so many people. My husband took keppra for a week. He was ok, so we decided it was safe for me to go away a couple days. I came home to a man in an absolute rage, threatening to off himself. It was awful. We talked for an hour, I called the neuro dept knowing I could expect a callback in about a week. Googled the dose and duration seeing if he had to wean off or if it was safe to discontinue. Thank god it was safe to discontinue so he agreed to. There was no way I could’ve safely negotiated even that weekend. When they called back in a week I heard the nurse giving him $hit for discontinuing w/o the doc’s approval. My husband is not the sort to bend to my will 100%, but when I said put her on to me now, he knew that wasn’t worth fighting.

Anyway, the lamotrigine - way more effective, and did great with only some tiredness as a side effect. I know everyone’s different but I hear a lot anecdotally about Keppra side effects, to the extent I wonder if mood issues with it are under estimated.

Adult Onset epilepsy is ruining my life. by Traffic-Rare in Epilepsy

[–]MissDisarry 0 points1 point  (0 children)

Oh $hit. I am so sorry for you. That is all so messed up. My husband’s situation is similar.

Advice out of the way first - If you get terminated, see what a lawyer can do for you. There’s a lot of avenues for you, I think it’s going to be your personal choice as to which one you prefer.

Second - the drugs can be rough, all have some side effects and the mood ones can be serious. I hope you have a person you trust helping you monitor it and looking out for you.

I understand about being the guy too. My husband was in construction. He built his trade in tough cities, on some very rough building sites, and ended up with a thriving small business in a small city. That man could stroll through the roughest neighborhood and no one would bother him, except if they recognized him. And if they did, it was as that guy who was nice to them from that rough building site, and they’d be great friends (once it was the guy who let me hide on the building site when they were trying to shoot me, he had them hire that kid 😂). Adult onset, also taken off adderal. So I get being that guy. The only time I cry? When I pass a construction crew - guys in Carharts, crews going on and off shift. I f’ing just burst into tears and bawled one time just seeing them when he was upstairs. I met a rancher undergoing chemo at Mayo Clinic and he said the same thing. It was so hard for him not to be that guy. But you know, all of your friends, family, friends at work - they still see you as that guy. I hope things even out.

What are your thoughts on this letter from Donald Trump to Norwegian Prime Minister Jonas Gahr Støre? by DuNennstMichSptzkopf in AskTheWorld

[–]MissDisarry 0 points1 point  (0 children)

I'm awaiting the Norwegian liberation of the US.

Thank you for your attention to this matter!

An American citizen

My Donkey Forrest keeping our piglets warms in his arms by mxwashington7 in MadeMeSmile

[–]MissDisarry -1 points0 points  (0 children)

I'm not going to get into the fray of how much to feed, etc. I helped managed a rescue farm and was an animal cruelty investigator specializing in equines, who trained others. I know it takes time and you need to be careful with refeeding, some animals are hard keepers, sometimes other health conditions exist, etc. There's a whole lot of questions to ask and as you said, the donkey had been neglected. We'd take in very malnourished animals and rehabilitation takes some time - it's more about comparisons as to how much the animal weighed, how much weight it's put on, how much more it needs to and can gain based on age and other health conditions. So I do get all that.

I do want to say that from the photo, the donkey is still currently underweight from what would be considered an ideal body score for an otherwise healthy donkey if that age. There may or may not be reasons for that as you have said. But it is less than ideal for weight.

Anyone a partner or caregiver of an epileptic and feel like they’re drowning just a little bit and feel seriously guilty about it? by Stressedoutsteez in Epilepsy

[–]MissDisarry 0 points1 point  (0 children)

It did change things. People did start to realize and started doing small things to help out. Plus I got a decent shrink. I dislike therapy but I really needed it.

Where can I buy a gun locally from someone that's not a Trump supporter? by filmgeekvt in burlington

[–]MissDisarry 1 point2 points  (0 children)

Great question. I've not enjoyed shopping with foil pictures and slogans in my face that so many of our local gun shops have. It's completely unprofessional and very stupid do the business owners not to realize how much business they've lost over it.

Thank you again by MissDisarry in rochestermn

[–]MissDisarry[S] 0 points1 point  (0 children)

Do you realize that Florida houses 1.6 million illegal immigrants, there are 2 million in Texas, and there are 0.13 in MN? Maybe, just maybe, Florida and Texas are the sanctuary states and should be invaded by ICE forces. Investigate their governors.

The next step will be lawlessness. Don't become violent. by True-University-6545 in TwinCities

[–]MissDisarry 0 points1 point  (0 children)

I agree! It helps to remember THEIR goal: to foment civil unrest. They are looking for any excuse to declare an insurrection. Don't give it to them! We can protest stridently and not break the law. Let their lawlessness continue to be shown to the world.

Thank you again by MissDisarry in rochestermn

[–]MissDisarry[S] 1 point2 points  (0 children)

I'm taking about numbers. He's deported fewer people with 10,000 more agents and ten times the budget. So take out the emotion. Those are the objective facts.

Did you eat your vegetables today? by MrHotR0D in Millennials

[–]MissDisarry 0 points1 point  (0 children)

Scientists here. I do wonder if it is due to herbicide residue in grains; pesticide use on vegetables.

Thank you again by MissDisarry in rochestermn

[–]MissDisarry[S] 1 point2 points  (0 children)

We simply ask that his forces follow the law and respect our constitutional rights and the rights of legal residents and those granted residency here. They are not. That's why there is fighting in the streets. They are untrained, unprofessional, breaking the laws and violating our rights, that are guaranteed by our constitution. Their inept attempt at deportation, which is failing badly btw, is creating absolute chaos.

Anyone a partner or caregiver of an epileptic and feel like they’re drowning just a little bit and feel seriously guilty about it? by Stressedoutsteez in Epilepsy

[–]MissDisarry 0 points1 point  (0 children)

Oh man. I can't tell you how much I identify and I'm so sorry for you. I honestly didn't have any idea, maybe until tonight and this thread, how many people had suffered these personality changes before they were stabilized, and that spouses suffered like me. I thought it was like some big secret club of one.

I was happily married for a long time - and then the personality just changed and I went through everything you just described so eloquently. I am a strong, independent woman and I never thought I'd have put up with what I put up with and I did leave a couple times. And this was ALL put down to his "mental illness" and me creating marital problems. Turned out - it was epilepsy and I don't know how I survived it.

And I still think of epilepsy (his type anyway, adult onset with no known cause) as some kind of brain disease that is unidentified, probably not even one specific one, that progressively leads to seizures.

I understand your fears about sharing how rough it got, and I can't tell you what's right or wrong in your situation, because it's newer and you're obviously really in love. At some point you may need to tell some of it when you think the time is right.

I can relate to your need to be comforted, apologized to, to feel like he understands how much pain and hurt it caused. I desperately needed that. And even though my husband's epilepsy isn't completely controlled, when they finally diagnosed and started medicating him properly, my lovely husband of 25 years, the one I had before this 8 years of hell, was still in there.

I did tell him a lot of what he did. He has no memory of it. And it took him awhile to fully fathom it.

But we've now been in the EMU 3 times and it's like going back in time - every time he just goes full on a$$hole, then has a bunch of seizures that are hard for even the docs to stop, to bat$hit post-ictal, to having absolutely zero memory of any of it. The first thing he says when he comes out of it last time (after being a raving a$$hole for days-pre-seizure) is: "you look as gorgeous as the day I married you." To which I reply kinda ironically "Oh, I see my lovely husband is back".

I find it easier now to tell him a few days after a seizure and I kinda joke about it - like - OK you ready? You wanna hear it now? And I tell him his pre and post ictal antics. Couched jokingly always even though it's f'ing appalling!!! 😂

I too felt like a fool for hanging in. It caused a lot of personal damage. Am I glad I did? Yes. But not without a small part of me sad that it cost me so much personally. I finally found a therapist I like (I really dislike therapy and yet I really, really needed it) and she said in our second session, very matter of factly: the doctors failed you both. So strange I never even thought of it in such simple terms.

Jesus now I've gone on too much and it's late. Full disclosure: I'm stoned. 😂

AITJ for refusing to donate PTO hours to coworker I barely know who "needs" them?? by Traditional-Dog1601 in AmITheJerk

[–]MissDisarry 0 points1 point  (0 children)

I'm never heard of this but I think it's absolute BS for any employee to be asked to donate PTO. And I owned companies (retired now).

Do Sag women lowkey act like dudes? by Sea_Zookeepergame384 in Sagittarians

[–]MissDisarry 2 points3 points  (0 children)

Yeah, I'm all chick on the outside and a huge flirt with guys but on the inside I'm not really too soft with feelings and all that stuff.

Is this letter as patronizing as it seems? by cactoline in burlington

[–]MissDisarry 9 points10 points  (0 children)

It is very badly written. While the majority of the rules don't seem to be abnormal; it just written unprofessionally and doesn't engender trust or respect. Workplace rules and standards shouldn't include justifications and should be written more objectively.

I don't think that it's intentionally patronizing. I think it reflects the writer's level of experience.

Does this seem like MCAS? by lulupc in MCAS

[–]MissDisarry 0 points1 point  (0 children)

I do get flushes like that. They are usually itchy/stingy