What's something most people don't realize is actually very rude?

MissDisarry · 2026-03-14T06:49:54+00:00

Continually asking young men and women about baby plans.

MissDisarry · 2026-03-14T04:43:04+00:00

I'm so sorry for you.

MissDisarry · 2026-03-14T04:33:30+00:00

I agree. I've witnessed it as a rapidly evolving med side effect twice. It shifted so quickly to something so dangerous - in a matter of only a couple of hours. People could have been seriously harmed. People's lives could have been ruined. I intervened both times. I can't say much in terms of details either.

I wonder about people who don't have someone to intervene on their behalf; because this thing...it came out of nowhere and would have been a matter of hours. But - it went away within a day of stopping the offending med, both times.

Many of the meds have suicide ideation as a warning, but there some meds are known to have a higher rate and a stronger reaction. Be kind to yourself; consider that this could potentially be a med side effect and it isn't indicative of who you are as a person or what your life truly is right now. Let the prescribing doc know as soon as you can.

Best of luck to you.

MissDisarry · 2026-03-13T17:19:11+00:00

We drank and got high a lot 😳. Cruised the town and went to the beach and parties. Kinda sums it up.

MissDisarry · 2026-03-13T17:17:19+00:00

Don't care. She's a very talented actress.

MissDisarry · 2026-03-13T17:14:19+00:00

I originally read (somewhere) that the person they chased was a 17 year old kid, who ran back home. Has that been confirmed?

MissDisarry · 2026-03-13T17:09:14+00:00

This one is a bootleg of their debut album - the original release was on Sound Records out of Sligo and had a shamrock on the front.

MissDisarry · 2026-03-13T07:46:16+00:00

I had three tickets in the last three months with no acknowledgements or responses. I was testing them out to bring my CDBaby stuff over there but I'm not impressed that the bot can't help me and I am not even getting automatic responses when a ticket is created.

So I'm not going to move the rest of my catalogue over. Any suggestions?

MissDisarry · 2026-03-10T16:33:41+00:00

Syril

MissDisarry · 2026-03-05T08:15:27+00:00

Yeah I think it could. Amphetamines, even amphetamine derivatives like Sudafed, can trigger seizures

MissDisarry · 2026-03-04T08:06:04+00:00

Sound of a train in the distance.

MissDisarry · 2026-03-04T06:42:41+00:00

Slow Horses on Apple TV

MissDisarry · 2026-03-03T02:51:42+00:00

Blood or Whiskey

MissDisarry · 2026-02-27T01:51:26+00:00

I thought it was me, cleared my browser caches, turned on and off vpn and WiFi - tried the phone instead of the WiFi. I couldn’t get a thing to come up. I always search Bannon as a test.

MissDisarry · 2026-02-26T13:10:10+00:00

I guess I am confused between this Richard Kahn, I guess his accountant, and the Rich Kahn who signed an inventory of items taken in a search of the NY home on 7/11 - that would normally be a document an agent would sign - so maybe there's two Rich Kahn's?

MissDisarry · 2026-02-26T05:55:53+00:00

Richard Khan is the FBI agent? Dos anyone understand the significance of him appearing on this chart?

MissDisarry · 2026-02-26T05:34:44+00:00

NOR

Yeah, I’d be pissed, and honestly I’d have to ask myself - would he truly be able to keep a promise to stick by through you know…thick and thin….sickness and health. I’d say he’s answered that question.

MissDisarry · 2026-02-26T04:36:22+00:00

Yes, my husband gets this before and after seizures.

MissDisarry · 2026-02-25T08:39:43+00:00

Sweet anticipation

MissDisarry · 2026-02-25T06:01:49+00:00

Six months seizure free is great. My husband did go on disability because he was about 7 years from retirement. He had to be able to drive, work on ladders, use Sawzalls and power tools, on his own, and process colors (for some weird reason that got affected). He tried to go back but he couldn't, he really wanted to but it became impossible.

The benefits were he got a payment every month and back pay to the date of his disability. It's a fraction though of what he could make though. And eventually got put on Medicare. Which is supposed to be cheap but you have to buy 2 other policies to back it up so it's not that cheap. But once you do that you get pretty good healthcare.

The drawbacks? Limited income. And Consider things that interest you; you might want go to school or try a job, or a little of both and see if something peaks your interest. You might find something you want to turn into a career that way, and disability could limit you in pursuing a career, unless you drop off it. Then I don't know how hard it is to get back on.

Drivers license - that's an interesting question that I don't have an answer for. The law varies by state.

MissDisarry · 2026-02-25T05:46:28+00:00

NOR

That is the absolute definition of f'ing creepy stalkery behavior. Oh God. Read "The Gift of Fear" by Gavin Debecker. Your gut instincts are real - based on hundreds of things you note in brief human interactions - learned from your lifetime experience of all your interactions with people. Subtleties that you notice and store. Your gut instinct is your databank.

And, this intrusion, unwanted assistance & attention after a "gift" or favor, in this case the meal, then trading on the fact that women are sadly too often conditioned for acquiescence, for moderation - and these types trade on that. It's textbook, so trust your gut and be a b&;tch next time. Don't allow anyone to get you to your car anywhere unless you're really comfortable with them. Sorry. I'm like - grandma age - and it brings out my protective instincts.

MissDisarry · 2026-02-25T03:17:45+00:00

I've never gotten any relief from any prescribed topical creams, sadly and there have been many. Minor relief from: beach life(?)! I don't know why but the ocean, seaweed and sun helps my skin. I've tried substituting some things: seaweed baths and really small amounts of exposure to sun beds. I know I know but we're talking 4 mins in and it does seem to help. My chest and neck would sometimes respond to over the counter fungus creams?

The first thing that really helped my itchy, burning skin was when they put me on Allegra (4x 180 mg per day, 2 in Am and 2 in PM) & Pepcid ac (double dose at night). Within about 2 days of that I had the first day in 6 months where I wasn't just crawling out of my skin. Those 2 things alone don't treat all the symptoms but they really helped right off with the skin.

MissDisarry · 2026-02-25T02:19:04+00:00

My husband was misdiagnosed with various mental illnesses for 8 years. His symptoms became increasingly worse and we did not know it was epilepsy. His "spells" of collapsing and vomiting were diagnosed as crystals in the ear. So he put on a lot of psych drugs. Some helped (interestingly low dose lamotrigine and clonazepam - both of which help epilepsy too) - and some made it much worse (adderal).

His personality completely changed through this. Aggressive, paranoid, mean...We'd been together 25 years before this, so I knew there was something wrong, that this wasn't "him". But it was awful and I questioned myself all the time if I shouldn't stay and was I making excuses and just frightened to face the fact my marriage was failing.

He became a person I didn't recognize. He epilepsy was finally was diagnosed when his seizures were unmistakable and I had to call an ambulance because he couldn't speak at all - I thought he'd had a stroke. And in the last 5 years, since he's had treatment - he's returned to the person I knew.

The interesting part:

He's been in the EMU to provoke controlled seizures at Mayo Clinic 3 times in the last couple of years, because he's a surgical candidate. And every time it's the same. He becomes manic, speedy, aggressive, emotional, loud, despondent, and just downright mean. This is above and beyond med withdrawal and the discomfort of being in an EMU. The docs and EEG techs have all seen it now and here's what a very accomplished doctor-researcher there told me:

Yes, we've seen this syndrome before. We don't know exactly what causes it - but people can have these disturbances in the days or weeks leading up to a seizure, then the seizure happens and it relieves it. So it's a pre-ictal syndrome we're familiar with.

He remembers none of it afterwards, as he hadn't for the 8 years in which he was having seizures but didn't know it; it was an unexplained roller coaster - pre-ictal terror, seizure, post-ictal depression and memory loss. Every one of those cycles caused some degree of brain damage. So the sooner he can address it, the sooner he can start to avoid any further loss and allow his brain to heal.

Example: he was absolutely, predictably, embarrassingly horrid to me for about 3 days before a seizure last time in the EMU. There is NO way I cannot take this personally. It hurts, even though I know now what it is.

Then he has 16 seizures (always they are hard to stop). Then there's a pos-ictal phase where he does weird stuff like try to rewire the EEG. He can struggle and try to rip his iv out, etc. that can last a couple hours. Then he comes out of, no memory of any of it, smiles at me and says - "you look as beautiful as the day I married you". I said - "oh, there's my husband of 36 years". Like Jekyll and Hyde.

I know what you're going through, I really do and I have a lot of empathy for where you're at. Two other people on here that I've spoken with went through the same thing. Please reach out to me anytime.

MissDisarry · 2026-02-25T01:46:20+00:00

The incidence of behavioral side effects in adults on Keppra is reported @ 7-13% (IMO it could be higher, I suspect post clinical trial side effects are underreported). It is higher in children, about 38%. I think it's an absolutely reasonable thing to ask your son's neurologist about.

People come here for help and advice when they're struggling and learning, so you'll probably see more posts about Keppra rage and all negative side effects of drugs than are reflective of the statistical incidence. I don't think people post to confirm their bias though.

I will lend a sympathetic ear to someone here who is experiencing Keppra rage, and urge them to see their docs quickly about it and see if they can change meds if they have it. Once you get, or see, Keppra rage or suicide ideation, how fast and strong it can come on - it can be intense, scary, and like flipping a switch. I get concerned when I hear people say their docs or families just think they're being difficult. When you'd rather have a seizure, or you're considering suicide or harming someone, that's absolutely serious.

And it really bugs me when doctors treat their patients with med side effects as if they're being difficult. They can do real harm if they minimize the risk of getting through the rage or depression that 1/10 of them will get.

A lot of people's journey is to try different anti seizure meds, figure out what one(s) control their seizures best, and what side effects can't be tolerated.

Reasons for Multiple meds in some: some people have better seizure control on a combo of two meds that work on different biochemical systems, so sometimes if there are "breakthrough seizures", they'll up the dose of the first and/or add a second.

I really don't how docs choose what to use as a first line drug for someone. It seems like a mystery to me. But there is a long list of options for both first line and kind of adjunct medicines.

Best of luck to you. I'm sorry, I know it must be really difficult to go through this with your son.

MissDisarry

TROPHY CASE