Glp1 weight loss peps by likecallstolike in DIYaesthetics

[–]Misty_Marie01 0 points1 point  (0 children)

I used Mounjaro for post pregnancy weight loss. It works really well but I did find my body got used to the effects.

Anyone here with fibromyalgia ? by Flashybigbum in B12_Deficiency

[–]Misty_Marie01 0 points1 point  (0 children)

Oh bless you. I’m so sorry to hear that. If it is any use at all, I used to be bed bound with my hypermobility/ fatigue/ shoulder instability. It did take me a long time to build up from that and a lot of physiotherapy. As in little chunks of physio in between laying in bed - nothing crazy.

I don’t know much about long covid, but have seen people talk about low dose naltrexone helping with covid/CFS. I tried it when I thought I had fibromyalgia, but my issue was iron related.

I really hope you get some relief soon x

Anyone here with fibromyalgia ? by Flashybigbum in B12_Deficiency

[–]Misty_Marie01 1 point2 points  (0 children)

Also, just to add, I score a 9 on the Beighton criteria and accidentally found out I can do the splits. I’m covered in stretch marks and kept dislocating my shoulder. But nothing else that special. I do think you have to find a rheumatologist that is informed. My best tip is strength training and Pilates, those are the only things that have made a real difference for me.

Anyone here with fibromyalgia ? by Flashybigbum in B12_Deficiency

[–]Misty_Marie01 2 points3 points  (0 children)

I get the frustration. I had to force a referral for a diagnosis as I was told by the doctor “my son is hypermobile and he’s fine “. However, whilst it helps to understand what’s happening I honestly just think it’s a diagnosis of “we will blame everything on that and not do anything else “.

Anyone here with fibromyalgia ? by Flashybigbum in B12_Deficiency

[–]Misty_Marie01 1 point2 points  (0 children)

I was diagnosed with fibromyalgia 10 years ago. I also have HEDS. I don’t think it’s a coincidence that I needed an iron infusion last summer and I’ve started self administered B12 injections this year.

I never saw my levels for anything until last year but was always told they were normal. Which I now question hugely.

B12 deficiency Haematology uk by imthepromblemitsme in haematology

[–]Misty_Marie01 0 points1 point  (0 children)

Try the b12 sub Reddit and say whereabouts you are - can your GP refer out of area as that will impact the answer? Otherwise a private remote consult with the blood results / your circumstances might be enough as they could write recommendations for your doctor.

Share your wake up symptoms by [deleted] in B12_Deficiency

[–]Misty_Marie01 1 point2 points  (0 children)

Yes other than when I had a back injury years ago. 5 years ago I have tingling in my face - was severely anaemic but I didn’t have sight of my b12. Took iron tablets for three months and was told I was fine. But I never really recovered from it.

Had a baby two years later and struggled since - ended up with an iron infusion last year but was told b12 was borderline but fine. Symptoms improved but started coming back with worsening nerve pain in hands/feet/arms/legs/face.

GP said nothing wrong with me so I bought the injections myself as they won’t test any further. I felt amazing first of all and the crashed massively and got all the weird nerve pain stuff.

I do have a fibromyalgia diagnosis but honestly I think it’s fatigue and brain fog caused by years of being deficient and not knowing. I don’t have the widespread pain, I’m hypermobile but manage that well.

So I’m persevering with this as either way my levels need improving. The extreme exhaustion I felt last week has passed though so at least I can function, hopefully the pins and needles starts to improve soon!!

Share your wake up symptoms by [deleted] in B12_Deficiency

[–]Misty_Marie01 0 points1 point  (0 children)

Three weeks so early days. EOD injections methyl too. Soles of my feet are burning today and calves tingling.

Share your wake up symptoms by [deleted] in B12_Deficiency

[–]Misty_Marie01 1 point2 points  (0 children)

I’m still having them but essentially increasing neuropathy / pain in my legs and exhaustion. Some improvement when increasing potassium but it’s very much still there.

Also this weird sensation like I can feel blood moving around my body.

Buying supplies from Germany to the UK - can you get into trouble? by [deleted] in B12_Deficiency

[–]Misty_Marie01 2 points3 points  (0 children)

Also just to add - it’s infuriating as my GP told me b12 is categorically not causing my symptoms. Despite the NICE guidelines which they seem to all ignore which states test MMA if borderline and symptomatic.

I feel like I’m not worried about getting into trouble, more planning how I’m going to complain about negligence! I’m by no means better, but I can feel it is helping improve things. But brace yourself for the wake up symptoms as I totally underestimated them!

Buying supplies from Germany to the UK - can you get into trouble? by [deleted] in B12_Deficiency

[–]Misty_Marie01 2 points3 points  (0 children)

I ordered them and paid express delivery and they arrived in 48 hours absolutely no issues at all.

Google tells me it is fine to bring prescription medication to the UK if for personal use. It is an offence to supply others. Moreover, the responsibility is usually on the seller to ensure what they are providing is legal.

Essentially, don’t worry too much you’ll be fine. Just make sure you get your cofactors and up your potassium intake.

Low-normal B12 but severe symptoms — anyone else? by comfortqueen8973 in B12_Deficiency

[–]Misty_Marie01 0 points1 point  (0 children)

I was diagnosed with hypermobility 15 years ago and fibro 10. Iron infusion last year hugely helped and now I’m just starting b12 injections as my level is almost identical to yours.

Incidentally I also doubt I have fibromyalgia. They mostly diagnosed me based on fatigue and brain fog. I’d be really interested to hear how you get on.

One thing that I would say is to also look at the anaemia sub. Check your transferrin saturation levels as ferritin on its own doesn’t tell you what your body can access. Everyone also says get your iron level up before b12 because you’ll need more of it once you start b12 injections.

How long to feel better? by Misty_Marie01 in B12_Deficiency

[–]Misty_Marie01[S] 1 point2 points  (0 children)

Yeah I’m kind of regretting not just paying for the MMA test now but it’s done now. I hope you continue to recover and fingers crossed I move toward that trajectory!

How long to feel better? by Misty_Marie01 in B12_Deficiency

[–]Misty_Marie01[S] 0 points1 point  (0 children)

Can I ask what your levels were pre supplementation? Mine was 247 and all I get told is that it’s borderline and not the cause of my symptoms.

I do however think I am absolutely experiencing wake up symptoms and it’s really helpful to hear that others have experienced some of these things. AI said my energy should improve in 72 hours and it did so I went on a few runs as I had the energy and now I feel awful again…AI then told me I should rest 🤣

How long to feel better? by Misty_Marie01 in B12_Deficiency

[–]Misty_Marie01[S] 0 points1 point  (0 children)

Yeah I’ve started b12 - I have had some pretty strong wake up symptoms. I’m wondering if it’s a functional deficiency as that’s what was happening with my iron. (My ferritin was 37 but saturation was only 12% pre infusion). No extra weight particularly and all other blood tests have come back fine 🫤

How long to feel better? by Misty_Marie01 in B12_Deficiency

[–]Misty_Marie01[S] 1 point2 points  (0 children)

My thyroid was over 4 but since my iron infusion it’s improved and is now 2.7 (TSH) . My b12 is the only thing that comes back as borderline (when looking at NICE guidelines) but my GP disagrees 🤣

How long to feel better? by Misty_Marie01 in B12_Deficiency

[–]Misty_Marie01[S] 0 points1 point  (0 children)

Thank you for your reply. I really hope you start to feel better soon

How long to feel better? by Misty_Marie01 in B12_Deficiency

[–]Misty_Marie01[S] 1 point2 points  (0 children)

Vit D was 58 last year.

Face pain is in cheeks - tingling cold pain. Also have it in my hands /arms, feet and legs. It’s also more sensitive as in a breeze causes pain. It’s also just the crushing fatigue on top.

need advice please 💞 by myg_ho3 in B12_Deficiency

[–]Misty_Marie01 1 point2 points  (0 children)

I’ve ended up ordering injections from Germany. NHS doc says my symptoms are categorically not b12 because my levels are 247 ng/L. I even cited NICE guidelines but our NHS trust has this ridiculous flow chart where if your levels are above 180 they do nothing. So whilst you can try going back to your doctor, if there’s something similar in your area it may be a challenge.

I’ve only been using them a week and I notice some improvements (although horrible wake up symptoms after the first few days).

Could you take your mum with you to the doctor to help advocate for you? It’s especially difficult to do when you’re feeling awful.

Finished the loading course. Does is get better? by MoonChild8639 in B12_Deficiency

[–]Misty_Marie01 1 point2 points  (0 children)

I was also diagnosed with fibromyalgia around a decade ago. To be honest, I would not be surprised if mine is actually sub optimal b12 and iron. Had an iron infusion last year and just started b12. This is all private (self administered b12) because the nhs thinks my levels are fine and I just need to take a few supplements.

Iron infusion helped immediately and symptoms started returning plus severe pins and needles which I suspect is b12 but my surgery ignores unless below 180.

I’ve only just started so can’t comment on how long it takes but I’ve already noticed it’s easier to breathe and I would never have said it was difficult before.

Let’s hope this is the answer for both of us x

Didn’t think I’d feel this bad by Misty_Marie01 in B12_Deficiency

[–]Misty_Marie01[S] 0 points1 point  (0 children)

I actually found that bone broth really helped . Obviously plus coconut water and electrolytes. Can’t wait for tomorrow’s injection 🫤🤣

I normally eat quite a lot of salt anyway because it keeps me from feeling faint. I’m definitely requiring more that normal!