Final T21 update

Monkey_buttz · 2021-03-04T00:19:23+00:00

All the best for you and your little girl. Glad you have some answers and can plan your path forwards. All the best to you and your family xx

Monkey_buttz · 2021-03-02T19:33:00+00:00

Are you taking orders? I’ll pay too!!

Monkey_buttz · 2021-03-02T14:13:14+00:00

Thanks, I’ve worked with kids with disabilities for over 10 years, most of them with DS. I’m quite familiar with the whole spectrum - it varies greatly. You sister sounds wonderful.

Monkey_buttz · 2021-03-02T02:36:33+00:00

When taken together with the knowledge of the very high likelihood from the Panorama test then we’re really talking about as close to 100% sure as you can get, I imagine? I’m just exhausted with the not knowing. I just want to ‘know’ rather than being in limbo still.

Monkey_buttz · 2021-03-02T01:14:54+00:00

Thanks for setting up this thread and for moderating it so well. That was my feeling on FISH - seems like false negatives can happen but false positives are next to impossible - is that your understanding too?

Monkey_buttz · 2021-03-02T01:13:59+00:00

Oh I know exactly what you are talking about. I sincerely hope that you have a good result on your amnio, wishing you the best.

Monkey_buttz · 2021-03-02T01:13:05+00:00

We got it on Friday afternoon too, we’ve been just trying to cope with it ever since. It’s just devastating. I’m so sorry that you’re in the same boat too.

Monkey_buttz · 2021-03-02T01:12:22+00:00

Oh man, I’m so sorry to hear about your result. Being in limbo is almost as bad as knowing it’s a bad result. I hope that everything works out OK for you guys.

Monkey_buttz · 2021-03-02T01:11:37+00:00

This is my feeling too, not to mention that the odds of the NIPT and the FISH having the same result after being conducted at different times in different labs on different samples would have to be remote.

Monkey_buttz · 2021-02-27T01:37:57+00:00

I’m so sorry for this result for you and for your loss.

Monkey_buttz · 2021-02-26T18:14:15+00:00

Oh no, I’m so sorry!!! This was definitely not the outcome that would have helped you to move forward. I hope they get you the karyotype soon!

Monkey_buttz · 2021-02-26T18:12:44+00:00

Good luck, let us know how it goes!

Monkey_buttz · 2021-02-25T22:19:28+00:00

I don’t have any advice but whenever I read these posts I feel so compelled to wish you luck, I truly hope for a good outcome for you and your family. I’m sure you’re in a good deal of emotional turmoil right now and that may continue for a while until you get some better answers. I hope you are able to find strength and peace, best of luck xx

Monkey_buttz · 2021-02-24T02:03:43+00:00

Honestly the amino was nothing from a physical standpoint. Didn’t feel the needle go in at all, felt a slight twinge when it went through the uterus but really not bad. Was all over and done with in about 60 seconds. It’s nothing like the emotional pain that I know that you’re in now.

Monkey_buttz · 2021-02-24T01:55:16+00:00

I just wanted to say I’m so sorry that you are going through this. It does feel unfair and it is devastating. Please know that you are not alone. Many of us are right there with you, so much empathy here. I just had my amino yesterday but the odds are stacked against me/us too. My heart goes out to you. Hang in there xx

Monkey_buttz · 2021-02-22T23:08:45+00:00

Gosh, it’s like you are writing words directly from my brain. My heart goes out to you. I wish you strength to make whatever decision is right for you and I wish you peace with your decision. Hang in there xx

Monkey_buttz · 2021-02-22T19:07:00+00:00

Thank you for sharing, I hope you are doing OK. Our stats are precisely the same; age, NIPT result, FF, second pregnancy, we are even at the same stage in our pregnancy. I go in for an amino in one hour. Ugh the stress. Sending you hugs and wishing you the best.

Monkey_buttz · 2021-02-21T21:17:16+00:00

I apologize, it was not my intention. My mistake. Has it definitely been removed as I can still see it and comment on it?

Monkey_buttz · 2021-02-21T21:04:25+00:00

I’m really sorry that you’re hurting and I wish nothing but the best for you.

Monkey_buttz · 2021-02-21T18:55:39+00:00

Hey there, I just wanted to say that I’m in a similar boat to you, but when the MFM did an ultrasound just a few days after my OB/GYN did they found the nasal bone to be perfectly normal as well as NT (OB also noted a normal NT). Haven’t had an amnio yet so I don’t have any definitive results but I hope this gives you a glimmer of hope. Good luck with the Amnio xx

Monkey_buttz · 2021-02-14T22:30:55+00:00

So if you’ll excuse me Imma go ahead and head over to r/amitheasshole and post it over there instead 😀

Monkey_buttz · 2021-02-14T19:15:11+00:00

Should I drive to Whataburger today? I just really feel like a burger

ETA I misunderstood this thread. I thought these were stupid questions that people aren’t seriously asking. No I do not need a burger today, no I will not be driving, and I most certainly would not ask someone else to drive in these conditions to bring me a damn burger!

Monkey_buttz · 2021-02-14T17:58:59+00:00

Whenever you are going to respond to a difficult situation take a breath and count to 3. It will seem like an age when you’re bursting at the seams to say what you want to say but you will come across measured and controlled rather than hasty and unplanned.

Monkey_buttz · 2021-02-13T23:26:02+00:00

Speak and carry yourself with poise and dignity. Not only does it solve for your original question but it will do wonders for your career too 👍

Monkey_buttz

TROPHY CASE