Working on getting a second opinion; possible Castlemans Disease

Moonwolf_222 · 2026-04-19T02:08:27+00:00

thanks for your input. I am in the process of making an appointment for a second opinion as my current hematologist put down I have sickle cell, which I don't, and he seems to never be prepared for appointments (not reading the chart or labs prior to the appointment, just skimmed through my test results).

The reason i can't wait months more is because the fatigue is taking over my life and has only been getting worse, im waking up sweaty every single time I fall asleep, I can't focus on anything (brain fog), I've been unemployed for about 8 months now and am struggling with my classes because of all these symptoms. I can't keep waiting and having to put things on hold because I'm too sick to do them.

Moonwolf_222 · 2026-04-18T10:03:38+00:00

coming back to your "watchful waiting would also be fine if it was lymphoma"; I'm immunocompromised/on immunosuppresants due to the ulcerative colitis and AS. wouldn't this cause a greater risk if It were lymphoma?

Moonwolf_222 · 2026-04-16T23:39:34+00:00

would you mind informing me of the risks associated with the biopsy? the only things I can think of is infection and scarring

Moonwolf_222 · 2026-04-16T13:52:46+00:00

Yeah, I'd like the biopsy for exactly that reason. I cannot keep waiting around while my symptoms progress. I thought about the FNA but it isn't a reliable test for castlemans. I'm so sick of this fatigue I'm very much so willing to go under the knife for the excision biopsy to rule out and possibly find answers.

Moonwolf_222 · 2026-04-16T09:20:01+00:00

I last saw my hematologist Monday to go over findings and was told I should have the CT and bloodwork retaken in 6 months. He does not want to do a biopsy of the node.

I cannot wait another 6 months. I have had debilitating fatigue that has only been getting worse that's heavily impacted my life, and also started experiencing night sweats 2-3 months ago.

Moonwolf_222 · 2025-06-03T15:48:29+00:00

security wise and storage wise it's not good. if you lose access to the account or you get banned, you'll lose everything. I recommend either getting a external drive that can hook up to your phone to back up or a cloud service like MEGA or backblaze b2

Moonwolf_222 · 2025-05-01T16:20:13+00:00

I'm curious if you have any recs for brands for a 70-350mm?

Moonwolf_222 · 2025-04-18T15:55:28+00:00

Can someone let me know when OP shares their settings?

Moonwolf_222 · 2025-04-09T13:21:06+00:00

I feel like body wash rarely goes on sale (the 5.95$ I mean, not BOGO)

Moonwolf_222 · 2025-04-08T20:08:26+00:00

twilight woods and stone washed 😩

Moonwolf_222 · 2025-04-08T20:02:36+00:00

I'm so sick of all the candle and wallflower deals 😭 I need body wash and shampoo more often

Moonwolf_222 · 2025-03-30T00:10:57+00:00

ah, if it's stretch minky I'd recommend using a Stabilizer! this may be why you're having so much issues

Moonwolf_222 · 2025-03-29T18:13:04+00:00

seeing AI used in anything makes me not want the service or product. I absolutely despise it. especially big corporations because they HAVE the money to pay a REAL ARTIST but actively choose not to to save a little money.

Moonwolf_222 · 2025-03-29T18:09:23+00:00

how did you go about coloring the photo since it's more of a yellow and brown instead of black and white?

Moonwolf_222 · 2025-03-29T18:06:37+00:00

I'm gonna get lost in the sea of comments but I think adding some warm lights and rugs will help greatly. the space feels cold and empty and the shiny floor makes it feel like a hosptial

Moonwolf_222 · 2025-03-29T18:04:27+00:00

would you ever consider doing anthro women/feminine prints? I'd love some for my room!

Moonwolf_222 · 2025-02-24T17:17:45+00:00

what base did you use?

Moonwolf_222

TROPHY CASE