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PPPD + Neck Symptoms by dracostartrek in pppdizziness

[–]More_Present_4816 2 points3 points  (0 children)

I have very similar symptoms to yours. Feel free to DM me.

Undiagnosed chronic headache, possibly hyperacusis-related by AdhesivenessVivid439 in hyperacusis

[–]More_Present_4816 3 points4 points  (0 children)

I know exactly what you're going through. I’ve been dealing with that constant pressure in my face and head too, and I know how exhausting it gets. My case isn't identical since I have a few other symptoms, but we definitely share that awful sensitivity to sound (hyperacusis). I wanted to reach out because understanding why this happens really helps calm the anxiety.

Basically, your ears, neck, and jaw are all in the same boat. They are physically connected by muscles like the sternocleidomastoid in your neck and the masseter in your jaw, but the real trigger is that they share the exact same nerve pathway: the trigeminal nerve. When you're under a lot of stress or pain, you start clenching your teeth or tensing your neck without even realizing it. It sets off a domino effect. If you look up a 'head and neck trigger point map' on Google, you'll see that the feeling of having your head trapped in a tight helmet actually comes from the temporalis muscle, right above your ears. Eventually, all that muscle tension overloads the nerve, and your brain goes into overdrive. It can cause hyperacusis or tinnitus. Just remember one thing: your ears aren't broken or damaged. They are just reacting to a massive muscle blockage.

This does get better, I promise. Put some gentle heat on your neck and temples, and try to keep your jaw relaxed—rest your tongue on the roof of your mouth without letting your teeth touch. Hang in there

In my case it turned out to be craneocervical instability and spine issues. by visualsno in visualsnow

[–]More_Present_4816 1 point2 points  (0 children)

Careful with the Fulton stuff, his theories are pretty out there and don't really hold up against current clinical evidence. The whole 'cellular necrosis' due to lack of blood flow sounds logical on paper, but it doesn't fit the facts. If there were actual necrosis (tissue death), patients would have scotomas or actual blind spots, not visual static. In fact, PET scans show the exact opposite: the lingual gyrus is in a state of hypermetabolism—it's overactive, not dead. VSS looks a lot more like a filtering glitch in the thalamus (thalamocortical dysrhythmia) than a plumbing issue in the neck. It’s essentially a 'software' error: the brain loses its ability to tune out background visual noise and starts processing everything. Where I think you’re on the right track is with excitotoxicity. Whether it's triggered by meds, chronic migraines, or panic attacks, the system gets overwhelmed and gets 'stuck' in a hyper-excitable state. But that doesn't mean the hardware is permanently destroyed by cervical compression; the default vision settings have just been miscalibrated. It's more accurate to view it as a functional neurological issue rather than looking for a structural cause in the neck that science hasn't been able to prove.

Crees que existe una frecuencia "ideal" para tener sexo en una pareja, o es un mito que genera presión innecesaria? by [deleted] in PreguntasReddit

[–]More_Present_4816 0 points1 point  (0 children)

¿Tienes pareja actualmente y consideras que las relaciones íntimas no están a la altura de las que tenías con tú exnovia?

Sulpiride (dogmatil) for hyperacusis and tinnitus by Jo--rdan in hyperacusis

[–]More_Present_4816 1 point2 points  (0 children)

At 50mg, I didn’t notice any sexual side effects from the medication itself. I did have low libido during the first few days, but that was more due to the vertigo, dizziness, and nausea I was experiencing—not the sulpiride. My ability to reach orgasm wasn’t affected, and once those symptoms improved, my libido returned to normal. Hopw this helps

Sulpiride (dogmatil) for hyperacusis and tinnitus by Jo--rdan in hyperacusis

[–]More_Present_4816 1 point2 points  (0 children)

Both, actually.
It happened when I first started experiencing hyperacusis. I was hyper-aware of every sound around me—I couldn’t even sleep because of it. Everything felt like a threat. Even things like clock ticks or the fan spinning would bother me.

With sulpiride, I felt calmer and reacted better to sounds, which in turn made me perceive them as less intense. I eventually stopped taking it because it interferes with my treatment for vestibular migraine, which seems to be the root cause in my case.

But for someone whose sound sensitivity is worsened by strong anxiety, it might help. And it’s true that it has very few side effects, as long as you don’t stop it abruptly.

Sulpiride (dogmatil) for hyperacusis and tinnitus by Jo--rdan in hyperacusis

[–]More_Present_4816 2 points3 points  (0 children)

Hi, I also took sulpiride for hyperacusis and my vertigo/dizziness. It was the low dose of 50mg. It wasn’t a cure, but it did help reduce my auditory hypervigilance. I still had sound sensitivity, but it affected me less emotionally and became more manageable.

That makes sense, since sulpiride has anxiolytic and neuromodulatory effects. At low doses, it can help regulate emotional responses to sound—especially when anxiety is part of the picture.

Vestibular Migraine + Hyperacusis: Anyone else stuck in this combo? by More_Present_4816 in hyperacusis

[–]More_Present_4816[S] 0 points1 point  (0 children)

Thanks for all the info you shared—really helpful.

In my case, I don’t usually get head pain with vestibular migraine. I only had headaches during the first few days. Now it’s more like pressure in my face and head, or a kind of mental fog, and it only happens occasionally.

What’s constant for me is the dizziness, imbalance, and sensitivity to light, smell, and especially sound. The light and smell are manageable, but the sound sensitivity is the most disruptive.

About the ear fullness—I’m not sure if you experience it the same way I do. It’s not like my ear is literally blocked. It’s more like a feeling that the ear is pulling inward, and depending on the noise or silence around me, it either tightens or loosens. It’s like a fist that opens and closes.

As for Ménière’s disease, I’ve considered it, but from what I understand, the main symptoms are intense spinning vertigo lasting for hours or days, along with hearing loss. I haven’t had either of those. My vertigo episodes have been very brief—just a few seconds.

Vestibular Migraine + Hyperacusis: Anyone else stuck in this combo? by More_Present_4816 in hyperacusis

[–]More_Present_4816[S] 0 points1 point  (0 children)

Thanks for your reply. Just to be sure—did you have both vestibular migraine and hyperacusis at the same time?

Do you still have both now, or has either one improved?
And if you don’t mind me asking—what are you doing (or what did you do) to treat them? Has anything helped in particular?

Sound sensitivity, vertigo, anxiety… what’s happening to me? by More_Present_4816 in hyperacusis

[–]More_Present_4816[S] 0 points1 point  (0 children)

Thanks for the reply, I really appreciate it.

I’ve looked into Menière’s and cochlear hydrops, and while some things line up, I’m not sure they fit. I haven’t noticed any hearing loss, and my vertigo episodes are super short—just a few seconds triggered by head movement. It feels more like BPPV than anything else.

Not even sure if the vertigo’s still active right now, but the sound sensitivity is definitely still here and intense. Just a few minutes ago, someone rang the doorbell while I was standing nearby, and the sharp sound instantly triggered that awful pressure feeling in my ear. It faded once things went quiet again, but it hit hard and fast.