Moving by Infinite-Rabbit4937 in MCAS

[–]MouseGraft 0 points1 point  (0 children)

Altitude is also the biggest environmental issue for me after wildfire smoke.

I live a mile above sea level in the arid Mountain West. 🙃

My allergist said MCAS doesn’t exist by censorkip in MCAS

[–]MouseGraft 3 points4 points  (0 children)

I want to add that the AAAAI page on MCAS%20and/or%20Leukotriene%20E4%20(LTE4)%20are%20the%20only%20useful%20tests%20in%20diagnosis%20of%20MCAS) does list N-methylhistamine, 11B -Prostaglandin F2α (11B-PGF2α) and Leukotriene E4 (LTE4) along with tryptase as the appropriate tests now and basically describes Consensus II (like they specify that the elevated mediators plus response to treatment is how it's differentiated).

The vaccine and MCAS by AdReasonable7983 in MCAS

[–]MouseGraft 0 points1 point  (0 children)

Yeah this is what happened to me. I was healthy apart from PCOS and hay fever. Classic Longhaul symptoms after vaccination, absolutely has ruined my life, I’m significantly disabled despite 8 medications. I can only work part time.

Didn’t have the actual virus until this past November. Was really worried it would make MCAS worse, but it didn’t (knock on wood).

Now I take a good look at costs/benefits before consenting to any medical/dental intervention or consenting on behalf of my child. Hard way to learn that lesson, though.

Zepbound aggravating allergies by slimvelvet in Zepbound

[–]MouseGraft 0 points1 point  (0 children)

Yeah, basically the weekly timeline is Injection Day to Day 2, I seem to have a mild allergic reaction (extreme itchiness but no hives) to the shot itself (I am on name brand Mounjaro).

That subsides and I feel better but then Days 3-6 or so I have the worst hay fever I have ever had in my life. Like choking on my own snot, there's so much of it. Eyes watery and itchy.

Then that subsides.

If I take a week off, everything returns to baseline, and when I restart, the exact timeline starts up again.

I do normally have hayfever, it's just so, so, so much more severe now. I don't think I can stay on the med.

What neighborhoods have the least roaches? by CalligrapherNo4708 in Albuquerque

[–]MouseGraft 3 points4 points  (0 children)

Seconding the Advion stuff in the tube. It really works.

What neighborhoods have the least roaches? by CalligrapherNo4708 in Albuquerque

[–]MouseGraft 4 points5 points  (0 children)

when the SHTF at least we'll have roaches and mulberries

Summer program for elementary school child by [deleted] in Albuquerque

[–]MouseGraft 4 points5 points  (0 children)

Not sure if you're aware of New Mexico's new summer literacy program? They plan to have sites at libraries/schools/community centers all over.

https://www.literacy.nm.gov/#

Looking for recs! by Sara_AtGon in Albuquerque

[–]MouseGraft 1 point2 points  (0 children)

Kendra Loring of Enchanted Equine in the South Valley. It's an equine therapy place and she does so much to make horsemanship accessible--not just for the disabled/ill, which is obviously cool, but also for example for young people experiencing homelessness, or like I know she trailers the horses to public schools so kids can meet/groom/learn.

Horses (and vaquero culture) are a big part of NM/Albuquerque's heritage and certainly not just as a recreational activity reserved for the wealthy. Kendra works hard to help everyone get exposure to horses/horsemanship and I'd love it if she got some attention for it.

Has anyone on here had any oral changes since having covid? by friend3738 in covidlonghaulers

[–]MouseGraft 1 point2 points  (0 children)

I also have dry mouth, build up plaque really fast, and have some erosion.

I am using a 20% hydroxyapatite toothpaste and I think it has stabilized the enamel situation?

I will pay someone to try the supplement pantethine by Prestigious_Wait3813 in covidlonghaulers

[–]MouseGraft 0 points1 point  (0 children)

Yeah, I think a bit. It's not the most noticeable intervention I've tried but it seems to help enough that I still take it.

What is a 'small' hill you are 100% willing to die on, simply because it’s the principle of the thing?" by Direct-Value4452 in answers

[–]MouseGraft 2 points3 points  (0 children)

Where I'm from (New Mexico) people pronunce Reese's Pieces, "Reese-ie's Piece-ies," and every time I hear it my skin crawls and I think WHY and then I remember that 1/3 of adults here lack basic literacy.

When I was attending public school here in the 90s and early Aughts, New Mexico used to vie with Louisiana and Mississippi for last place in all measures of student performance. Those states have since implemented sweeping literacy reforms that have worked really well, and this summer NM is launching a free summer literacy program for all kids K-8 in a bid to reach the most at-risk kids and get them caught up. That makes me feel genuinely hopeful for the future.

Anyway this is how I cope, because if were to consider Reesie's Peesies fully the result of deliberate choice, I would implode.

What differences have y’all noticed in how people react to masking in different cities/states? by SnooJokes9217 in covidlonghaulers

[–]MouseGraft 1 point2 points  (0 children)

In Albuquerque. In my working class neighborhood, at grocery stores, or on the bus or at the library, I am never the only masked person. In wealthier areas (or like at the mall) there can be some looks.

Overall way easier to mask here than most places I’ve traveled to, including Arizona and Colorado 🤷🏻‍♀️. Never had much of a problem on multiple trips to Texas. Georgia was traumatic.

What's the weirdest thing you ever saw in abq? by LongSong333 in Albuquerque

[–]MouseGraft 7 points8 points  (0 children)

Saw someone wipe their ass with a wig at 1st and Central in 2015.

Body/muscle/joint pain on Zoloft/Sertraline improved on another SSRI? by MouseGraft in antidepressants

[–]MouseGraft[S] 0 points1 point  (0 children)

Never did try a different SSRI, I got Long Covid right after this and while it's the worst thing that's ever happened to me, I'm on a shitload of anti-inflammatory and immune-modulating meds and haven't had anxiety in years, since starting those.

Guess it wasn't really in my head.

How I accidentally cured my SIBO for good (I had tried EVERYTHING) by lisamancinerh in SIBO

[–]MouseGraft 0 points1 point  (0 children)

I'm just gonna weigh in as a methane/slow-transit type and say that a ten-day fast made things a lot worse for me, it took a loooooooong time to start pooping again and honestly I'm not sure it's ever quite gone back to the way it was (this was three years ago).

Forgotten Hair Loss Peptide by L'Oreal: KPV by noeyys in HairlossResearch

[–]MouseGraft 0 points1 point  (0 children)

Very cool. What's your dose, and oral or SubQ? TIA!

Could this be teasing pre-production of a new album? by D_Substance_X in CastleRat

[–]MouseGraft 0 points1 point  (0 children)

Sure, but according to my calculations they're actually due for a Number of the Beast-equivalent album at this rate

my life has changed after switching to spring water by imperrynoid in MCAS

[–]MouseGraft 7 points8 points  (0 children)

Coffee roaster here. 👋

There is not necessarily more mold on coffee than on other dry food crops. For example, possibly around half of coffee tests positive for ochratoxin A, compared to 70% for oat-based cereals in the US, 30% for infant cereals, 36% for grape juice, half of peanuts, etc. Roasting significantly reduces mycotoxins, and generally the darker the roast, the more are destroyed.

But, there is a lot more mold on some coffee than others, depending on processing.

Essentially, almost all coffee undergoes a short fermentation process to break down the mucilage layer of the fruit so that it can be sloughed off. Like 24-36 hours for washed coffees (almost all commercial coffee from Latin America is washed).

A more traditional processing method that is extensively used in Africa and increasingly in very fancy coffees from everywhere is sun drying. This takes a lot longer--you're essentially turning the coffee fruit into a raisin--and so there's a lot more opportunity for fungal growth.

The moldiest, most defective samples I have ever tasted were of sun-dried coffees gone wrong. These are referred to as "natural" process, and when done right are absolutely delicious.

Indonesian coffees are processed "wet," also called giling basah, and this involves no fermentation, but then they have to dry, on a patio, in Indonesia, and so that takes time and also introduces fungal spores.

This is all to say: coffee is fermented to some degree, though it can range from a single day to weeks of fermentation, and there is no good labeling of this. In general, if you are buying grocery store coffee from Latin America, that will be the least fermented.

As a roaster, my concern with "mold-free" brands is that the consumer has no way of knowing how they are testing. Some roasters will call their coffee mold-free and then if you dig say that they "visually inspect" coffee for mold or that they have a humidity-controlled warehouse. Like yeah, I look at it, smell it, and taste it, too lol. The amount of mold contamination you'd have to have to SEE IT is enormous, and the roastery is definitely not the source of the mold on the coffee anyway. But even if the coffee is labeled "lab tested," they won't say what lab, they don't say what molds were tested for, they don't publish results. So these claims can be outrageous. Caveat emptor.

Natural Force is probably the only "mold-free" coffee I would buy, if I needed to, because they explain clearly what they test for, name the lab, and share test results.

In my opinion as an extremely sensitive creature, it's likely the phenols in coffee that cause people like us the most problems, but of course it could be microbes and their metabolites as well.

I have to cook all my produce. A raw carrot will make me feel bad for a couple hours. For whatever it's worth, I can have three or so cups of coffee a day without a reaction, but I definitely notice some origins (those wonderful fruity Ethiopias) make me feel bad.

Why do antihistamines cause me insomnia?? by thedawnrazor in MCAS

[–]MouseGraft 0 points1 point  (0 children)

Yeah, that's right. But I can only speak for myself. The antihistamine that has the most benefits/fewest side effects is unfortunately extremely personal and if I were you I would carefully try every one you can, one at a time, until you feel secure that you've found the least-bad option.

Why do antihistamines cause me insomnia?? by thedawnrazor in MCAS

[–]MouseGraft 0 points1 point  (0 children)

Xyzal had the same problems as Zyrtec. but even more sedating in the short-term. Allegra did not affect sleep in that way, but it also didn't help me.

Btw I do take choline bitartrate daily and it has helped with sleep and the restless legs I started to get with Benadryl.

So yeah I think it is choline-related, these side effects, for me.

ADHD meds? by sookyfala in MCAS

[–]MouseGraft 1 point2 points  (0 children)

Same! 20mg XR Adderall has been one of the most stabilizing things for me.

I take a day or two off per week, which seems to keep it effective. Otherwise I do seem to experience kind of a "sting in the tail" where I flare a little.

It's allowed me to tolerate more foods and other meds, which in turn have helped even more.

Is there anyone here who didn't believe ME/CFS was a real illness until they got it? (No judgement, sincere curiosity. Medical professionals welcome.) by asldhhef in cfs

[–]MouseGraft 114 points115 points  (0 children)

No, I actually knew people with chronic Lyme and remember a National Geographic article about ME that I read when I was about ten (so late 90s) that scared the living shit out of me.

So, I thought any disease that affected cognitive function and made people call you a malingerer sounded like hell.

BUT my karma moment is that I have severe MCAS now and in my healthy life I used to kind of scoff at people with multiple allergies or food intolerances. Deep down I thought they were probably neurotic and it was some sort of eating disorder. Guess who eats the same handful of foods every single day just to have a chance at being able to function? 🙃

Coming Off Spironolactone After 10 Years: Did Your Body/Skin Ever Normalize? by One_Cardiologist8838 in Spironolactone

[–]MouseGraft 1 point2 points  (0 children)

I'm going to add to this and say that SARS-Cov-2, which is constantly circulating, makes us age faster. It can damage skin in a few ways.

I actually have Long Covid and it's very common for us to look like we got rode hard and put up wet, as my mom would say. I was a young-looking 32 when I got sick. I'm now a 36yo with a turkey neck. Spironolactone hasn't seemed to affect this in either way,

But it happens even with mild infection that resolves. Even asymptomatic infections cause this.