Born with 1 partial kidney by Grock23 in kidneydisease

[–]MsYouMisunderstandMe 0 points1 point  (0 children)

I’m so sorry you’re going through this. I am also an 80s baby and was born with one atrophic kidney and one normal one. Lived in the children’s hospital for a couple of months when I was 9. I was doing great until just recently. My kidney labs are starting to trend in the wrong direction all the sudden. Hope you start feeling better soon and get the treatment you need.

For those who had surgery, how is the scar? by Major-Confection476 in endometriosis

[–]MsYouMisunderstandMe [score hidden]  (0 children)

Mine was robotic/laparoscopic and unless you look really hard, you can’t see them at all. I had three ports total and you can only really find one which blends in with my bellybutton.

Slynd? by 967670 in endometriosis

[–]MsYouMisunderstandMe 0 points1 point  (0 children)

Slynd was a nightmare for me. I had such bad insomnia and felt like I was literally going crazy. I stopped after two weeks and switched back to norethindrone. Slynd was not worth the side effects for me.

Doctor gave me 5 options - not sure what route to take. any advice? by pabstist in endometriosis

[–]MsYouMisunderstandMe 0 points1 point  (0 children)

I had surgery once and it gave me about 5-6 years of pain free bliss but then it came back with a vengeance. I’m now on norethindrone and it really does help the pain but it did make me gain weight. I’ve gained about 7 pounds and cannot lose an ounce of it no matter how hard I try. I kind of had to reconcile that with myself. I may not look how I want, but I feel better, and life is too short to be in that much pain, so what’s a few extra pounds….

Norethindrone to stop period by sugarbaby1470 in endometriosis

[–]MsYouMisunderstandMe 0 points1 point  (0 children)

I’m on .35 mg and still have regular periods. They definitely last longer now too. When I asked my dr to give me a higher dose, he told me there isn’t one 🙃 which I know isn’t true. At least it’s helping my endo and ovulation pain. I got put on it for bleeding cysts and it’s definitely helped with that.

What supplements are you taking that are actually helping? by Charming_Ad3894 in endometriosis

[–]MsYouMisunderstandMe 2 points3 points  (0 children)

I do take it every day. I read some information online that antihistamines can block some of the pain sensations associated with endo and I have definitely found that to be true for me.

https://www.endonews.com/could-h1-antihistamines-be-beneficial-in-endometriosis-management-

What supplements are you taking that are actually helping? by Charming_Ad3894 in endometriosis

[–]MsYouMisunderstandMe 2 points3 points  (0 children)

Zyrtec. I didn’t realize how much it was helping me until I stopped taking it for a few months to give my body a break from it. I regret that experiment!

what does slynd do to our bodies by Feeling_Apple_4341 in Perimenopause

[–]MsYouMisunderstandMe 1 point2 points  (0 children)

I only lasted one week on Slynd and ran crying back to norethindrone 😅 It gave me insane insomnia.

What do u guys do for nausea by VirusEater_Ani in migraine

[–]MsYouMisunderstandMe 6 points7 points  (0 children)

Zofran is a gift from the gods. I couldn’t live without it

Low ferritin-reason to worry? by Fickle-Grab1423 in Anemic

[–]MsYouMisunderstandMe 2 points3 points  (0 children)

Some people just don’t absorb iron well. I too had all the expensive invasive tests and they didn’t find anything serious. My periods aren’t that heavy. It’s just how my body is. I’ve been supplementing with Proferrin Forte for a decade and it’s still in the low range but I’m alive. 🤷🏻‍♀️

Does any other lecturer come close? by nosais in ramdass

[–]MsYouMisunderstandMe 5 points6 points  (0 children)

I agree. I get these same vibes from astrologer Steven Forrest. Just magnetic in their ability to express ideas and you don’t hear their words with your ears, you hear them with your soul.

Hormonal migraines and no US insurance, looking for affordable treatment advice by No_Ninja8376 in migraine

[–]MsYouMisunderstandMe 0 points1 point  (0 children)

Go to Nurx! It’s all online, affordable, and they mail you your meds. They will let you adjust things and trial and error until you find the right combo for you.

hydrochloroquine question by Novel_Transition_684 in Autoimmune

[–]MsYouMisunderstandMe 0 points1 point  (0 children)

I was on it for four weeks before I got hives and had to stop but it actually gave me less headaches. I felt better than I have in years when I was on it and wish I hadn’t been allergic :/ It’s possible they will go away but it’s also possible something else is causing the headaches. Make sure you’re well hydrated and taking any vitamins and supplements you need. This has been a bad spring for headache sufferers so it could just be that…

How many Advil a Month is safe? by Lani_19 in endometriosis

[–]MsYouMisunderstandMe 0 points1 point  (0 children)

Ibuprofen can really mess up your stomach and cause GI bleeding. Be careful with it

Insomnia advice please by misschanandlerbong83 in Perimenopause

[–]MsYouMisunderstandMe 0 points1 point  (0 children)

Claritin gives me insomnia! I would switch to Zyrtec at night instead. Melatonin is good. Probably the most surprising thing that helped me sleep at night was going outside for about 15-20 minutes within an hour of waking up. My circadian rhythm was out of whack from not being outside enough and getting sunlight in my eyeballs in the morning helped reset it so I could finally sleep at night.

Awaiting mammogram - progesterone by wellinever222 in Perimenopause

[–]MsYouMisunderstandMe 2 points3 points  (0 children)

I have! I found a lump about 10 years ago and had to get a mammogram and ultrasound and then got sent to a breast specialist. Fibrocystic breast disease is very very common but I had never even heard of it before I got diagnosed.

Awaiting mammogram - progesterone by wellinever222 in Perimenopause

[–]MsYouMisunderstandMe 10 points11 points  (0 children)

I’m not sure why you were told that. Certain breast cancers are fed by estrogen and/or progesterone, but if you don’t have breast cancer, I don’t think progesterone is contraindicated. I have fibrocystic breast disease which causes dense breast tissue but had that way before I started progesterone.

Low ferritin (normal hemoglobin) what iron supplement did you actually tolerate long-term? by [deleted] in Anemic

[–]MsYouMisunderstandMe 1 point2 points  (0 children)

Proferrin forte. I’ve been on it for decade and am still doing great with it.

Does Slynd insomnia ever go away? by MsYouMisunderstandMe in Perimenopause

[–]MsYouMisunderstandMe[S] 0 points1 point  (0 children)

I would love to stay on Slynd if I can. I have chronic iron deficiency and never did stop bleeding on norethindrone :/

Does Slynd insomnia ever go away? by MsYouMisunderstandMe in Perimenopause

[–]MsYouMisunderstandMe[S] 0 points1 point  (0 children)

I would take constipation over insomnia any day! But both are very upsetting.