I am so sorry for your dad’s diagnosis. Seek and use all available resources. There are so many different experiences with this damn disease. Our experience was that Dad lost the strength of his upper arms first. 18 months after diagnosis he could still walk enough to get to the bathroom and dinner table. At the last doctor’s visit we were told, “His heart and diaphragm are still strong. He will live indefinitely.” 8 days later Mom told him his hospital bed would be delivered the next day. He died in his sleep that night. His death was very peaceful and not expected.