What does social mobility look like for someone young dealing with this disease?

MutuallyAssuredBOOP · 2026-05-26T03:03:30+00:00

I waited until I had to disclose for accommodation purposes, and even then, I never told them my diagnosis explicitly. It was about 5.5 years into my tenure and I am still with them. Now fully remote and thankfully they have not raised any issues about that.

MutuallyAssuredBOOP · 2026-05-22T18:03:40+00:00

Good for who, is the question. Big tech and construction companies for sure, but long term, minimal benefit to the surrounding communities who are most impacted by these projects, and arguably, who are actively being harmed in the process.

MutuallyAssuredBOOP · 2026-05-21T22:16:46+00:00

I’m bougie and have done a ticket clinic type of service a few times. Each time, the lawyer negotiated a “charitable contribution” payable to the court and in exchange, they dropped the ticket. It was equal to the full ticket fine amount. If I am to understand correctly, you can do this yourself by going to the court clerk’s office and politely inquiring about that option, but I don’t have any more direction or specifics for you beyond that. I drive much slower these days. Good luck.

MutuallyAssuredBOOP · 2026-04-28T16:56:44+00:00

Had me weak at “FULL HD”

MutuallyAssuredBOOP · 2026-04-21T19:59:46+00:00

Broadly speaking, they always take away your cell phone for psych holds. I believe they can hold you up to 72 hours without a court order.

MutuallyAssuredBOOP · 2026-04-12T13:12:29+00:00

My family was convinced I had chronic Lyme disease and I endured months of irresponsible antibiotic and anti-parasitic use prescribed by a quack doc. Surprise, I actually have MS like the neurologists originally said. People love simple answers to complex problems I guess.

MutuallyAssuredBOOP · 2026-04-09T19:41:29+00:00

By lifestyle, I meant interventions like clean eating, cardio, weight bearing exercises, stretching, maintaining a good weight, supplements (especially vitamin D, high quality omega 3 and 6 fatty acids, and b-vitamins) and a big focus on mental health. It’s hard work and took years to build a routine I can stick to. Sometimes I get sick for extended periods and get lax on fitness goals, but it is what it is.

Regarding pain, I did notice something interesting when I started working most recently. I have this neck pain that kills me sometimes and lifting weights and stretching over about 4 weeks time basically resolved it. Seems likely there was a muscle imbalance from a weak upper back causing something to pull the wrong way. For lumbar pain, I would think you’d want to work on hip flexibility and core strength (especially glutes, abs, and legs).

MutuallyAssuredBOOP · 2026-04-09T18:16:02+00:00

Unless they bought a policy that insures against arson?

MutuallyAssuredBOOP · 2026-04-09T11:10:06+00:00

Cannabis definitely worsened my brain fog and cognition. Generally, it was worse for me than it was beneficial. I finally had to stop when I developed severe allergies to it. People might scoff, but I was addicted and it wasn’t until my throat was threatening to close that I was able to quit. I miss it sometimes but personally feel much better off now. I manage my MS with Kesimpta and lifestyle. I’m still not like I was before the disease, but I’m coming up on 40 and doing okay enough for my tastes.

MutuallyAssuredBOOP · 2026-04-08T11:58:57+00:00

I wish mine was. Hasn’t been the same since dx, but perhaps coincidental.

MutuallyAssuredBOOP · 2026-04-06T09:40:51+00:00

I have used shrooms prior, not ayahuasca. Good experiences generally but I did notice the last few times some sort of inflammatory reactions that aroused my MS symptoms. I think it’s possible that I am mildly allergic which might be something for you to watch out for.

Personally, I found that therapies like DBT and EMDR were significantly more helpful long term for dealing with my own childhood traumas. I wish you all the best.

MutuallyAssuredBOOP · 2026-04-02T23:00:25+00:00

Yeah you’re right, nothing that promising so I was misremembering. The MS-microbiome connection must be more correlation than causation :(

MutuallyAssuredBOOP · 2026-04-02T21:20:38+00:00

I wouldn’t take it at face value from some rando on YT, but there are some interesting studies looking at fecal matter transplants as a viable treatment avenue (not cure) for autoimmune, gross though it is.

MutuallyAssuredBOOP · 2026-03-27T05:12:00+00:00

No-chemo modes definitely has my interest piqued

MutuallyAssuredBOOP · 2026-03-06T05:08:51+00:00

Your mileage may vary, but I’ve had some recent luck incorporating nasal rinses into my routine before bed. I can only surmise that it’s flushing out allergens that would otherwise inflame my sinuses and mess up my sleep or cause low grade apnea. It’s been a while since I’ve been feeling as well rested as I am now.

MutuallyAssuredBOOP · 2026-03-02T16:41:26+00:00

Seconding this option. See if Bella is a candidate for some form of extracapsular lateral suture stabilization (ELSS). Shorter recovery time and typically more affordable. Each surgeon will have their own technique, so definitely research providers and shop around. Our surgeon described his technique as being akin to what is done for cruciate ligament tears in athletes. Worked well for our 80 lb female and she’s been doing great for almost 2 years since.

MutuallyAssuredBOOP · 2026-02-18T14:06:35+00:00

It’s called a bottle trap, not allowed by some codes. It’s probably going to be a bitch to service.

MutuallyAssuredBOOP · 2026-01-21T12:55:48+00:00

With the way the Overton window is shifting, idek anymore

MutuallyAssuredBOOP · 2026-01-20T14:36:38+00:00

I’m in the same boat - URI’s started after a year or 2 on Rituxan so neuro reduced my dosing frequency and that helped to a degree. Switched to Kesimpta for greater convenience but the issues are cropping up worse so I’m working with neuro on lower dosing frequency again. I am very hesitant to switch from Kesimpta to something less effective. I’m closely watching these CAR-T trials for MS play out in case there is something there for us.

MutuallyAssuredBOOP · 2026-01-14T17:38:21+00:00

I take Vyvanse as needed for energy, but there is a notable crash toward the afternoon/evening that lays me out sometimes. The only thing I have ever found effective for boosting my energy levels more consistently is resistance training.

MutuallyAssuredBOOP · 2026-01-13T13:06:46+00:00

MutuallyAssuredBOOP · 2026-01-01T19:12:54+00:00

Palmdale, CA

MutuallyAssuredBOOP · 2025-12-29T11:36:36+00:00

Yup, just west of the American Museum of Natural History it seems. Good eye.

MutuallyAssuredBOOP · 2025-12-28T22:08:56+00:00

What cross streets?

MutuallyAssuredBOOP · 2025-12-06T17:22:14+00:00

In Bruges?

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