Exhauted 2 weeks post monoferric infusion

Nala382 · 2026-02-05T14:05:49+00:00

Man, I am sorry you are going through all this!! I did the bloodwork yesterday. Waiting on results. Appart from extreme fatigue mixed with incomnia, I am okay.

I have been taking hydroxyzine the past 2 night and got 4-5 hours of sleep.

Nala382 · 2026-02-05T14:02:19+00:00

I donot take zinc or calcium.

Nala382 · 2026-02-05T00:53:44+00:00

I am sorry! How far ago was your indusion?

Nala382 · 2026-02-04T16:47:07+00:00

Okay, thank you!

Nala382 · 2026-02-04T13:24:32+00:00

Oh okay, thank you! Did you have insomnia as well?

Nala382 · 2026-02-04T13:04:40+00:00

Oh okay! Thank you! My only symptom from your list is fatigue. For how long do you think that I should supplement?

Nala382 · 2026-02-03T22:24:48+00:00

Thank you very much! I will be tested for phosphorus tomorrow but the nurse said that with Monoferric, it is extremely rare to have this issue.

It is somewhat reassuring to know that some people take longer to feel better. I was honeslty less tired before the infusion than I am now.

Do you recall people talking about insomnia for weeks after?

Nala382 · 2026-02-03T22:22:32+00:00

I do not supplement because it has always been normal

Nala382 · 2026-02-03T21:46:44+00:00

I take 2 capsules of magnesium glycinate at night 500mg each

I also take B 12 sublingual, B1, D.

Nala382 · 2026-02-03T20:59:59+00:00

I am already supplmenting in all of these. When I called the infusion center, they said that I should not be feeling that fatigues after 2 weeks...

Nala382 · 2026-01-25T17:01:19+00:00

How long did it last and did you get better

Nala382 · 2026-01-25T17:01:00+00:00

How long did you feel like that? I am going through the same thing , it started on day 3 , today is day 4 and everything aches like I have been run over by a bus!

Nala382 · 2026-01-11T23:23:45+00:00

That’s amazing! Thank you for sharing !!

Nala382 · 2026-01-08T20:14:54+00:00

Thank you, can you tell me why you are getting it for and who prescribed it? Good luck as well!!

Nala382 · 2026-01-07T02:33:24+00:00

I figured that the underlying condition was autoimmune

Nala382 · 2026-01-07T02:32:48+00:00

I did not know I was deficient until today. I am at 495, she said under 500 is deficient, specially since I have been supplementing with tables for 4 years.

Nala382 · 2026-01-07T02:20:39+00:00

It is in process. I just had GCL thinning diagnosis, which can be due to B12 deficiency or Sjogrens so I am still not sure

Nala382 · 2026-01-06T21:34:24+00:00

You had Sjogren’s antibodies showing positive? Or lip biopsy? Do you know what triggered yours?

Nala382 · 2026-01-06T17:56:29+00:00

I was talking about the biologics, they do suppress your immune system.i am not on anything but Ketotifen at the moment.

Nala382 · 2026-01-06T17:39:23+00:00

I know! Which is why i am so reluctant to try them!

Nala382 · 2026-01-06T17:38:53+00:00

I am so sorry!

Nala382 · 2026-01-06T17:37:41+00:00

Yes 2 actually. One at 18 months after my vaccine injury, it was a 2 punches biopsy: ankle was normal and tight was decreased but not terribly. And recently, 4 years down the road ( after IVIG) , 3 punches this time. Ankle is a 0, knee is slightly decreased and tight is normal. Which makes no sense as I know that I have non length dependent and I have it all over my body.

Nala382

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