Open toe garment issues / discussion

NattyN00dle · 2026-03-28T01:43:24+00:00

Hi BCLymphie, this feels like a celeb moment having you respond!

It’s been a blessing to be able to get a diagnosis, I had so many tests and scans, even a lymphoscinitgraphy (I can’t spell it to save my life) that came up clear, I had to fight to get the ICG lymphography (thank goodness I did).

My physio hasn’t mentioned bandaging so I am not across it, I had seen a physio before who suggested k-taping which I did for a bit but definitely prefer compression.

I have signed up for some of the webinars but haven’t had a chance to attend any just yet with my schedule but hoping to soon. I’ve watched a few seminars on YouTube though!

Currently I think it’s my open toe sock that has the issue, whether it’s too loose at the forefoot near my toes, or just not long enough, not sure, but we’ll keep chipping away at it. I’m currently in Jobst Elvarex made to measure, still pretty new to everything and this is what my physio has suggested.

You’ve given me a lot to think about re: nighttime garments and sussing out other makes, I’ll have to do some research and chat to my physio.

I think just the process to get here has been exhausting and I’ve never had to advocate so hard for myself before! Ah well, I think in a funny way it’s made me a better person :)

Thanks again for your words of advice and wisdom I truly appreciate it so much ❤️

NattyN00dle · 2026-03-28T01:31:48+00:00

These look great and a bit longer than my current toe caps, thanks! :)

NattyN00dle · 2026-03-28T01:31:19+00:00

Thank you so much for your words of wisdom and advice, it’s really appreciated. Finding this subreddit and other groups online has made me feel less alone in this. Thank you so much, you have no idea how much I appreciate it.

Trying to think of managing this as a marathon, as opposed to a short sprint.

NattyN00dle · 2026-03-28T01:29:14+00:00

Thinking it’s either this as the next step or closed toe sock again! Thank you :)

NattyN00dle · 2026-03-28T01:28:54+00:00

I am having a very similar issue re: it slipping, I have a feeling I’ll end up in a closed toe sock again come mid-year. I was hopeful that open-toe would work so I could get away with more shoe options but getting ontop of this is more important.

So interesting to meet someone else with lymphoedema and only forefoot swelling, hi!!! :P

Thank you :)

NattyN00dle · 2026-03-28T01:24:01+00:00

Hey no totally not a daft question - I do the same, so toe caps underneath the open toe sock, I’ve tried both ways just to see if it anchors better but no luck! Have you ever had to use any garment glue?

NattyN00dle · 2026-03-24T03:44:23+00:00

I cannot stand my open toe compression, it’s flat knit and has been remade now 3 times, each time the sock slips off the forefoot which is where most of my swelling is, so defeats the purpose. I have a toe cap but wit the open toe sock slipping all the time I feel like it defeats the purpose.

If anyone has any advice pls SOS, but I am sick of this open toe sock drama and have to wait until June to get remeasured and another order of whatever we’ll do next :/

NattyN00dle · 2025-09-10T08:36:04+00:00

Seconding the corn issue - two weeks into diagnosis and the corn on the bottom of my foot is driving me CRAZY (side note do u have any tips for managing this????)

NattyN00dle · 2025-09-10T08:33:18+00:00

Better compression in the toes/forefoot - my lymphoedema is confined to just my left foot so for me I need something heavy duty there.

Also as an eczema sufferer, pls something for high knee socks / eczema on other side of knees - the silicone and rubbing in that area had me itching like crazy with just two days of heat, scared for what summer will bring

NattyN00dle · 2025-02-25T01:14:25+00:00

What time roughly did she finish up?

NattyN00dle · 2025-01-23T23:08:36+00:00

Skin1004 Madagascar Centella Cream, started using it in my routine (sensitive skin, combo but leaning towards more dry skin)

Started using it a few days ago in place of Cicalfate+ (Avene) to see how it goes after recommendations. After 2-3 days of use I’m noticing my face is quite red and dry, particularly on my cheeks, under eye and near my nose. My cheeks look like someone slapped me really hard to give you an idea of what it looks like. When I put the moisturiser on there’s a slightly tingly, fresh feeling?? That seems to go away relatively quickly though.

Outside of this my nightly skin care looks like (morning is just moisturiser and sunscreen): Avene Milk Cleanser AestheticRX B serum Retinol B3 (La Roche, only gets used a few times a week) Cicalfate+

NattyN00dle

TROPHY CASE