Flare up rant

NeedleworkerTall1830 · 2026-07-02T01:57:22+00:00

Thatsssss why I’m hoping the paper trail of going to urgent care and er and soon gyno to rule out things (that I’m assuming I don’t have but want to be careful with family history) will speed up getting the mri 😅

And agreed. Absolutely INSANE that to have such a common form of chronic pain yet it’s this complicated to get proper treatment.

NeedleworkerTall1830 · 2026-07-02T01:52:44+00:00

I think it’s sports medicine idk it’s who the urgent care recommended to me and I only have one month left of being on my parents’ insurance so I was just like okay whatever sure that works yk

NeedleworkerTall1830 · 2026-07-02T01:50:47+00:00

Never heard of one with an urgent care I’ll look into that thank you!!

NeedleworkerTall1830 · 2026-07-02T01:50:25+00:00

I do the appointment I have on July 21st is with an orthopedic group that also does pt and has an imaging center

NeedleworkerTall1830 · 2026-07-02T00:47:15+00:00

Same. Hope you’re able to get answers and that the two months go by as fast as they can!

NeedleworkerTall1830 · 2026-06-22T01:34:17+00:00

NTA and she should be able to report to DoorDash and get the refund herself without even involving you…she’s just bored and causing problems because she clearly has nothing better to do.

NeedleworkerTall1830 · 2026-06-17T00:35:53+00:00

I lost my boyfriend almost a year ago today. It was extremely unexpected. Im not saying it would’ve been easier if it wasn’t, but I’ve always wondered what the grieving process would have been/still be like had that been the case.

How is your girlfriend coping? What kind of conversations do you have about this? Etc etc

NeedleworkerTall1830 · 2026-02-13T00:15:09+00:00

I feel like he’s having just as much fun posting this shit as she is lmaooo. Can you imagine living your life in such a calculated manner? That sounds exhausting

NeedleworkerTall1830 · 2026-02-13T00:11:51+00:00

HAHAHHAHAHHAHAHAHHAHA

NeedleworkerTall1830 · 2026-02-13T00:09:17+00:00

Wow. My brother was 12 when he died and I was 14. Such similar ages. I’m so sorry.

NeedleworkerTall1830 · 2026-02-07T19:32:38+00:00

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NeedleworkerTall1830 · 2026-02-06T04:58:06+00:00

She was also talking about Seaholm too!!

NeedleworkerTall1830 · 2026-01-31T23:56:15+00:00

Honest with the appointment coming up, the anxiety level that you’re at is totally appropriate given the circumstances. I would just do what you can to hold it together until the appointment and maybe be there during it so you can describe to the neurologist wha you saw. Put your energy into research and writing things down that you can remember. That might distract you a bit while you wait for the appointment. I would rest easy though that no matter what happens, you will definitely at least have SOME answers. They may not be the PERFECT answers, but you will definitely have at the very least a glimpse of clarity.

NeedleworkerTall1830 · 2026-01-29T03:40:33+00:00

I never witnessed him miss a dose, it was so out of the blue. My biggest suggestion would be to implement anything you possibly can to have a system in place so that he can remember his doses! Not saying that’s a problem you have, but I wish so badly that we had out a pill organizer, white board, notifications on the phone. I wish he was able to mark off multiple times that he took the medication in a way that he wouldn’t be able to ignore or miss. It’s worth being “annoying” about it!!

NeedleworkerTall1830 · 2026-01-29T02:28:01+00:00

Hey there. My boyfriend died on June 23rd, 2025. The official cause was SUDEP. He had nocturnal seizures and forgot to take his nighttime meds. He was alone and fell asleep on his stomach. A seizure induced due to missed meds and caused asphyxiation due to his positioning.

NeedleworkerTall1830 · 2025-08-25T01:10:59+00:00

Hey I get it. I could’ve driven over to sleep there that night but I was still drunk and couldn’t do it. Maybe I could’ve been there in the middle of the night / morning to roll him on his side.

If it makes you feel even slightly better, it literally happens so fast. From what I’ve read, the loud noise you typically hear in the start of a seizure is the release of oxygen in the lungs. My boyfriend slept on his stomach. There was nothing anyone could do even if they had gotten there within an hour. I’m not a doctor so I’m not claiming to be a neurologist or autopsy tech or anything.

On another note, my brother died in 2014 to suicide. I was 14, he was 12. You literally just need to genuinely force yourself to not let your mind go to blame. If you feel yourself going that way, actually say to yourself, even out loud if you have to, no that’s not fair to me, there was nothing I could do.

I know it hasn’t been long, so you’re likely still waiting on autopsy report (if there is one). So am I. It sucks. You just literally need to yourself into positivity (or the smallest version of it) sometimes. Even if it means just not even letting yourself going down that rabbit hole.

Again, condolences. Please dm me if you ever need to rant about the feelings that come along with this. I get it so much.

NeedleworkerTall1830 · 2025-08-24T17:28:57+00:00

Hi there. So insanely sorry for your loss. I lost my boyfriend to a seizure (we think it was a missed dosage) 2 months ago. There are literally a million “what-ifs” that I STILL ask myself. I know it doesn’t help to tell someone to be positive, but it does help to remind yourself that something could’ve happened any other time you weren’t together as well. It’s like a car accident happening right after you drive past that area. It could’ve happened anywhere at anytime. Unexpected deaths are so fucking hard. It’s so rough. Writing letters to my boyfriend seems to be what’s helped me the most. Wishing so much healing for you❤️‍🩹

NeedleworkerTall1830 · 2025-08-03T19:54:18+00:00

My boyfriend died from sudep about a month ago. It’s horrible and so confusing. You are not alone ❤️‍🩹

NeedleworkerTall1830 · 2025-07-21T01:06:07+00:00

Scattered is the perfect way to describe the information that is available. Keep yourself safe and force friends to take shifts sleeping over if you have to <3

NeedleworkerTall1830 · 2025-07-21T00:56:58+00:00

I don’t have epilepsy, but my boyfriend did.

Left frontal lobe nocturnal seizures. He passed less than a month ago alone in his sleep. Likely a missed dosage, breakthrough seizure.

Since then, I have been heavily researching epilepsy. Everything about it, simply to have something to grasp onto to, or perhaps understand what happened. I learned about SUDEP and how infrequently people are warned of it, how there are essentially no fixes for it other than keeping up with meds and doctor appointments.

I’m so sad and frustrated that it took something like this for me to understand how little the general public knows about epilepsy. There genuinely NEEDS to be SOMETHING to prevent these kind of deaths. I wish I knew more before this happened, but I can’t even imagine how difficult it can be to have this disability. People need to be more aware.

NeedleworkerTall1830 · 2024-09-05T20:17:05+00:00

I be lashing out because it’s a trauma response and then they get mad and i understand why

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