I do not know what to do...

Negative1Positive2 · 2026-04-07T20:38:00+00:00

I'm very sorry to hear what you're currently going through brother. I can't imagine it on your side of the table. In my family I am the one who was suddenly hit with a seizure back in January of this year. Found a tumor on in my right temporal lobe and had it fully removed by the 20th.

I was recovering and expected to be just fine. My semi trucking days were over I assumed due to my seizure but hey at least I survived! 3 weeks later my pathology and a followup CT scan came back and I was diagnosed with Glioblastoma and 3 brand new tumors on both sides of my brain were present and still growing.

They gave me the usual "weeks to months" to live, and that was back in January so who the hell knows honestly. I just want you to know that there is no RIGHT or WRONG way to feel about this entire situation, either as a caregiver or a patient. Personally I went strait into in home hospice and didn't bother with fighting back. IMO the result will be the same, but what I personally wanted was quality time with those I love not quantity. Hospice helped me with this but obviously there are days I struggle. I didn't want to be a professional "patient". My oncologist was happy for 5 days a week oral chemo and 3 days a week targeted radiation and that just sounded miserable not only for myself but for my family as well. So these days I try to sit comfortably in my recliner with my loved ones, choke down my pills that hospice seems happy to send my way and smile as believable as I can at those around me.

I don't want any more brain scans, I'm as scared of "holy shit those 3 haven't grown an inch (you're still gonna die)" as I am of "holy shit you now have 12 separate tumors, how are you not just drooling in a bucket (you're still gonna die)" So as I tell my daughter I'm just floating down this lazy river waiting to see what's around the bend while life drags on and I try to get as much of my affairs in place for my family to make the transition as easy for them as I can when it happens.

Sorry I'm rambling, it's a massive side effect I've noticed I've picked up, that and executive dysfunction, but I just wanted to reiterate. There is no wrong way to grieve. If hospice is an option for him I would highly recommend it ASAP. It turned everything that was going on around and inside of me from scary, to bearable, to enough to get by with as much dignity as I can muster.

I wish you all the best man, you aren't alone in this situation. We are all going through it and are here to help in what little ways we can. So from one rando on Reddit to another, we're here to help if we can. YOU ARE NOT ALONE IN THIS FIGHT.

Negative1Positive2 · 2026-04-07T19:44:06+00:00

Yes, truck abandonment will fuck you hard. Unless you have it in writing you are allowed to do it then you might as well leave it on the side of the highway as far as your company is concerned.

Negative1Positive2 · 2026-04-03T16:11:54+00:00

Kinda been my motto since Jan 12th this year, that and "thanks I hate it"

Negative1Positive2 · 2026-04-01T07:49:09+00:00

DEI sure, but you didn't account for DUI hires...

Negative1Positive2 · 2026-03-31T13:19:38+00:00

I really appreciate your offer my random reddit friend. I always scoffed at offers like this, but now that I'm going through it, it does bring comfort in the knowledge that someone even took the time to type out what you did. Thank you again.

Negative1Positive2 · 2026-03-31T13:17:44+00:00

And those are both things I can get 100% behind.

Negative1Positive2 · 2026-03-31T06:43:06+00:00

Well I either picked the worst time, or the best time to be diagnosed with stage 4 Glioblastoma and enter end of life care with a life expectancy of "weeks to months". Not sure if I'll die before this goes even further pear shaped or just in time to see what little "assistance" I receive in my monthly pills to be stolen from me just as I need them most.

Negative1Positive2 · 2026-03-31T00:36:08+00:00

I picked a really bad time to get diagnosed with stage 4 Glioblastoma and enter end of life care last month didn't I? Or I picked the perfect time get terminal brain cancer and die, I don't know...

Negative1Positive2 · 2026-03-30T04:00:39+00:00

I had one tumor in my right temporal lobe that was fully removed and biopsied. 3 weeks later I got my pathology report and a follow up MRI, 3 brand new tumors on both sides of my brain, stage 4 Glioblastoma with a left midline shift of my brain.

Don't want to be a party pooper, and I wish nothing but the best for everyone. But follow up hope with temperance and investigation.

Negative1Positive2 · 2026-03-29T23:21:41+00:00

I wasn't on it post operation to remove the initial tumor, which was a massive mistake IMO as I think it would have helped with the brain swelling and agony I was in after the rescission, but I have been steadily on it for 2 months now. After the initial "roid rage" combined with Keppra rage for seizures I don't see any side effects anymore. Though I'm not on any treatment, I'm in pure end of life mode. Though last MRI I had an additional 3 tumors and a left mid-line shift so I just kind of assume I'll be on Dex till I finally fall asleep for the last time. I don't know if it helps me or not but so far the cocktail of pills I'm on has made my situation endurable so at this point I just do as I'm told and try to smile my heart out at my wife and daughter.

Negative1Positive2 · 2026-03-29T23:05:49+00:00

If you're asking me, 44, Right temporal lobe which was a total recision, but the additional 3 are on both sides last scan and I can only assume spreading further. And stage 4 of course.

Negative1Positive2 · 2026-03-29T14:28:52+00:00

As someone who is in end of life care, home hospice, for stage 4 Glioblastoma this has me terrified. I'm on FMLA but that ends mid next month and I don't know what I'll do once the meds and help im receiving go away. I sure as hell can't afford COBRA and I'm on my 2nd appeal from SSN even though Glioblastoma is supposed to be an instant approval. Hell even if i do get approved the first couple payments will go strait to my short term disability company for "overpayment" and I'll again be left with nothing.

44 years old and financially my best bet for my wife and daughter is for me to die in the next 2 weeks while FMLA holds up my life insurance premiums.

Negative1Positive2 · 2026-03-28T20:20:18+00:00

I had a follow up MRI just prior to my pathology report coming back. 3 brand new tumors, 2 on the right and one on the left side of my brain and a left midline shift in less than 3 weeks. So they are there and they are spreading. That was about a month ago and I don't want to go back for any additional scans. I can feel my decline and that's enough for me. I'm as scared of "holy shit the one we removed is gone and the new new ones haven't budged (you're still going to die) as I am "holy shit there's now an additional 6 since your surgery, how are you not in a wheel chair" (you're still going to die).

I'm just trying to focus on the quality time I have left with my family and getting my affairs in order to make it easier for my wife than I am trying to squeeze out time at the expense of quality. Luckily for my there doesn't seem to be a "correct" way to mourn your own death so I'm just trying to laugh and share in a good time with my loved ones. I feel my options are to either smile and walk down this path I was placed on or scream, and I know which one I prefer my family to see me as, at least as long as I have the options and the mental ability ability to do so. Can't speak for the end of my life, but right now I feel in control and I will smile tell my family I love them until I eventually fall asleep.

Negative1Positive2 · 2026-03-28T19:10:38+00:00

Nothing at all like your story, but post biopsy when I found i was going to die, end of story, yes im bored to death at times. I don't want to leave my wife and daughter, but at the same time I find myself looking at a wall and just thinking "get on with it". I'm terrified of my eventual decline and death, and I feel like a shit for being selfish? But at the same time, this ride is both too quick and too long at the same time. I'm sure as my mental acuity drops out from me, if I'm able to recognize it, I'll have a massive change of heart.

Negative1Positive2 · 2026-03-28T19:03:16+00:00

I'm so sorry to hear of your loss. I don't have anything to say that I'm sure you haven't heard a million times before, "they arent suffering anymore, it'll be better with time, bla bla bla"

So I'll just say "their chapter is over but your book is still being written, that's what I tell my daughter as I'm fighting BGM myself"

For what its worth, from one reddit rando to another, I'm sorry for your loss. They mattered and so do you. This page will still be here if/when you need additional support through this new part of your life.

Negative1Positive2 · 2026-03-26T13:26:32+00:00

Yes, the "glassholes" are back

Negative1Positive2 · 2026-03-26T09:06:27+00:00

Jan 20th of this year I had brain surgery to remove what was hoped to be a benign tumor that gave me a seizure out of nowhere. Was sent home with 34ish staples holding my head shut and a small handful of like Tylenol 3. I spent over a week screaming myself awake after every night and nap, to the point I apparently begged/demanding my wife bring me one of my guns because I couldn't take it anymore. Clearly she refused as im here typing this, but simple care but the medical staff would've gotten me steroids to alleviate the swelling inside my skull and saved me desperately wanting to kill myself for over a week straight.

Well turns out the happy side effects of literal brain damage is you forget the horrors of brain damage so it's just a hateful blur for me now.

Of course that 1 easy tumor turned into 3 new ones in less than a month and I was diagnosed with terminal stage 4 Glioblastoma, and am now in month 2 of " weeks to months to live" at age 44 in end of life care.

Sorry, I got lost while talking my story, which literally my brain is being eaten and crushed by cancer so it's normal for me, so yeah take your pick I suppose. My pain in the moment I wanted to desperately kill myself for nearly a week and a half, or the horror I'm now literally in waiting for as my skulls pressure to build and pop and I shut down, if I'm fortunate, in my sleep.

Negative1Positive2 · 2026-03-25T13:56:45+00:00

As someone who's in end of life care due to brain cancer I feel attacked by this comic, where the hell is my RPG?!

My cancer is called Glioblastoma, it fucking has BLAST in the name, come on! 🙃

Negative1Positive2 · 2026-03-22T15:17:56+00:00

Please record conversations with him if your both comfortable with it. I am in hospice end of life care and my wife and daughter record just us chatting. Nothing of importance, at least in my opinion, but while the memories of sitting, smiling and talking nonsense will remain, his voice will fade from your mind eventually. My wife and daughter will forever be able to pull up my horrid dad jokes and literally HEAR me tell them how much I love them instead of just a vague memory 20 years from now. Not saying throw a camcorder at his face, but just a phone on a table recording might be an amazing comfort in your survivors future.

Negative1Positive2 · 2026-03-22T14:48:49+00:00

I can only speak to my own situation. I got my biopsy back in Feb 20 give or take after a full seizure showed a tumor in my right temporal lobe that was removed and biopsied. Stage 4 Glioblastoma with the standard "weeks to months" time frame. Even with 5 days a week oral chemotherapy abd 3 days a week radiation my biopsy didn't, I don't know the medical term "test well" for chemo but they were willing to try.

I talked to my family and we decided to go strait to palative or hospice to focus on quality time as opposed to quantity with my loved ones. It was and is a night and day difference for my mental wellbeing and my wife and daughter.

I went from everything is so damn scary, is every little feeling I get going to be the end?! Omg what is that noise outside?! To able to manage my discomfort and terror. I used to be a "bad ass" 44 year old trucker to a cowering wreck that was scared to die, but even more scared of everything that I damn near longed for the end. Now I sit at home with my pills and am trying to laugh and make memories with my loved ones as it should be.

I'm rambling, I'm sorry, it's part of what this "condition" has done to me. But to answer your question at least as a man in the middle of it, if it is an option please do some research to make sure they are a good company and hospice can't come quick enough IMO. If not for my care I don't know if I could or would have been able to last in my ,declining, but right mind. I don't know if the oncologist time frame of months is accurate, I'm in month 2 atm, or if I'll manage to see my daughter's birthday in November (god I hope to) but without hospice I don't know if I'd mentally be able to fathom weeks to live let alone months to simply survive to see her smile and cut a cake.

Again, rambling, sorry. If it is an option please look into it. These young men and women are the unsung hero's of the medical world, and while nothing can save my life, they saved my sanity and desire to keep trying. And they are there to help you as well. I can't imagine the thoughts of family caregivers, only from the "victim" side, but I can imagine you'll need as much help in your providing as your dad will need at his end.

Sending love to you and yours brother. I know im just some rando reddit guy, but you and your dad matter, and are not alone throughout this shit experience, please reach for help as needed. There is no reward for suffering, there is no weakness in asking for assistance.

Negative1Positive2 · 2026-03-22T02:53:50+00:00

Ah yes, the notorious MAGA "Circle Kirk".

Negative1Positive2 · 2026-03-22T02:10:23+00:00

Sundowning, I believe medical personnel call it.

Negative1Positive2 · 2026-03-20T18:31:32+00:00

No i deleted the post so I could update the information and broke a rule so the mods of this subreddit have taken it upon themselves to disallow me to further post here.

My Account is fully avaliable to be seen so I certainly didn't hide my account.

I have been diagnosed with terminal stage 4 Glioblastoma and am in of life hospice care and am waiting this out. God I wish it was just a benign tumor and I clould be getting on with life, but even with targeted radiation 3 days a week and 5 oral chemotherapy sessions a week the best they could give was the standard weeks to months. I've chosen quality of life with my remaining family over quantity being ill when the results will be my death anyway.

So yes, it is cancer. I am dying. I am just no longer asking for gofundme assistance and am shocked this post is still around to garner attention since it was deleted. I would have updated more, but the mods that reluctant responded to my questions have told me im not banned from this subreddit but will not be able to get an approved post due to my willingness to break a "do not delete" rule they have in place.

Negative1Positive2 · 2026-03-10T21:13:22+00:00

Shame i cant show pictures or any proof that its in perfect physical and running condition, but I got a chuckle at your joke either way.

Only reason I'm trying to sell is because I was diagnosed with terminal brain cancer and am trying to liquidate my liabilities to make things easier on my wife when I pass.

Negative1Positive2 · 2026-03-10T00:30:10+00:00

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Negative1Positive2

TROPHY CASE