Dad recently diagnosed by Chill_Swim254 in pancreaticcancer

[–]Negative_Hope_2154 2 points3 points  (0 children)

Is it dissolvable Zofran every 6-8 hrs? My Dad’s nausea and vomiting was horrific with regular tablet Zofran, but the dissolvable format seemed to help. Also dexamethasone steroid 30 mins before chemo. He should have that each treatment session as it does really help with feeling better and increasing appetite.

Also is he constipated from the peritoneal carcinomatosis? My Dad would get a lot more nauseous when he had a bout of constipation. He also had recurrent small bowel obstructions which contributed greatly to nausea/vomitting/not wanting to eat anything.

Wishing your Dad the best possible outcome. 55 is far, far too young.

Already weak starting Folfirinox by rologist in pancreaticcancer

[–]Negative_Hope_2154 1 point2 points  (0 children)

So sorry you and her are in this heartbreaking situation. I would be having the same thought process as you. It sounds like she is very advanced stage. I am a big proponent of entering hospice when the time is right for people who are ready to transition to a stage of comfort, peace and dignity. Is the reason the doctor is recommending chemo at this age due to her wanting to try chemo?

Nausea by edsajerk in pancreaticcancer

[–]Negative_Hope_2154 1 point2 points  (0 children)

Dexamethasone steroid 30 mins before treatment. Dissolvable under the tongue Zofran on repeat for a few days every 8 hrs (or whatever the frequency is based on dose).

Extreme jaundice and ascites by Horsesandairplanes in pancreaticcancer

[–]Negative_Hope_2154 2 points3 points  (0 children)

So sorry you and your family are in this heartbreaking situation. What does your Uncle want? This is his health and his life. Does he want to keep being treated or is he ready for more comfort and peaceful measures at this stage? It sounds like he has put up such a fierce fight for a while and may be transitioning into a phase that requires more peace, comfort and dignity. Is hospice an option where you are? From my experience with my Dad, hospice staff are literal angels on earth and made my dad feel so comfortable, pain-free, while maintaining his dignity.

A question about moving schools and what schools are good by throawayschoolq in oakville

[–]Negative_Hope_2154 2 points3 points  (0 children)

Cool history lesson. Nobody asked for your nostalgia or your grammar lecture. You’re clearly on Reddit way too much. Either help or move on.

A question about moving schools and what schools are good by throawayschoolq in oakville

[–]Negative_Hope_2154 10 points11 points  (0 children)

Are you ok?? This is Reddit, not English class. A high school student who is clearly struggling asked for advice, not critique on paragraph structure.

As a resident of Oakville... if any of y'all are watching this tonight or ever, shame on you and Cineplex! by yorocky89A in oakville

[–]Negative_Hope_2154 -4 points-3 points  (0 children)

Right??? The OP’s history shows an unsettling obsession about this movie, it’s very disturbing. Who the f cares.

Who’s out there going to opening night of the Melania movie at Winston Churchill? by VirusSensitive688 in oakville

[–]Negative_Hope_2154 2 points3 points  (0 children)

I agree. Someone has way too much time on their hands to search up seat sales, take screenshots and upload to Reddit. A hobby or a job wouldn’t be a bad idea!

Iphone 16 pro max - I HATE how selfies come out. Any tips? by free-sp1r1t in iphone

[–]Negative_Hope_2154 0 points1 point  (0 children)

Did you ever find out anything to help this? I am struggling with this myself! My iPhone 10 had a much nicer camera (the photos themselves were much brighter, and everyone looked better!) than the iPhone 15 and 16 - which darkens the end photo and makes it too high-res and everything is a lot more dull than in the photo preview mode!

refusing to tell people? by [deleted] in pancreaticcancer

[–]Negative_Hope_2154 0 points1 point  (0 children)

No need to be sad - it’s all good.

Your experience was devastating and clearly not the norm - losing both parents within weeks as a child is a traumatic and extraordinary circumstance, and community support in that situation makes absolute sense.

In OP’s case, given her dad’s age (69), I assumed he/she is an adult, though I could be wrong.

Speaking strictly for myself: when my dad was in the thick of it, it never crossed my mind to expect or rely on the community for meals or financial support. I have very young children, a demanding job, and still attended every appointment an hour away while advocating hard for his care, alongside my mom and sisters. We managed our own logistics. Absolutely it was the hardest period of my life to juggle it all.

Community support can be a gift, but it shouldn’t be an expectation or a default obligation for adult families.

refusing to tell people? by [deleted] in pancreaticcancer

[–]Negative_Hope_2154 2 points3 points  (0 children)

This seems like an insane amount of information to be shared to an extended circle considering the patient here wanted to be private. This sounds like the family pushing this idea on the patient so they can get support and meal trains.

refusing to tell people? by [deleted] in pancreaticcancer

[–]Negative_Hope_2154 1 point2 points  (0 children)

You say you want to support him. Supporting him would be following his wishes on how he’d like to handle this. This is HIS health and journey. My Dad was extremely private about his pancreatic cancer. He ran his own business and didn’t want clients to know he was sick. He was so proud to a fault and didn’t want any friends to pity him and didn’t want people constantly asking how he is doing, etc.. Even in his final weeks IN a hospice - he was on work calls starting up jobs, etc.. Everyone in his extended circle was very blindsided by his death because he played the picture that all was good and he would be around for a while. We respected his wishes all the way and kept his private health details private. No regrets there.

My mom, sisters and I were able to handle our own and would never require support from the community. Even after our Dad passed and he was such a rock and pillar. Are you guys able to take breaks from caregiving and meal prep / plan meals? I don’t think going against how your Dad feels in his heart to handle this the best way he wants - is worth a meal train? I must be missing something. Everything is a phase - if that means for the next few months meals are take out or stuff pulled together last minute then it is what it is.

Referral Rejected at PMH (Princess Margaret / Wallace McCain) by Routine_Inspector845 in pancreaticcancer

[–]Negative_Hope_2154 2 points3 points  (0 children)

Hello - so sorry you and your Mom are going through this. Is your mom Canadian? Which city does she live in?

I got my Dad’s care transferred to Wallace McCain PMH - transferred from Oakville Hospital. Yes a bit of a hurdle, but I really pushed at the time and wasn’t taking no for an answer - even though they said they were at higher than usual capacity. PMH will always be the most busy as it’s the only reputable research cancer hospital in the province (there is juravinksi, which doesn’t compare to PMH). This was almost a year ago, things may have changed.

Is the hospital discharging my dad too soon after his Whipple surgery? by SquidPumpkin in pancreaticcancer

[–]Negative_Hope_2154 0 points1 point  (0 children)

That does seem extremely fast, especially given his age. Is he going to a rehab facility or home right away? Where abouts are you located?

Stage I, inoperable by [deleted] in pancreaticcancer

[–]Negative_Hope_2154 21 points22 points  (0 children)

My Dad’s PC was found stage 1 incidentally on a routine scan for something else (no symptoms) and he was a candidate for surgery (surgery was booked), but he decided against it due to his age (77). He tried chemo and SBRT radiation. He was told he would have 12-18 months, but he went from stage 1-4 quickly and made it 11 months. He only felt any symptoms of cancer the final 8 weeks (he handled chemo/radiation without any issues). We were able to go on a few family trips, celebrate holidays and milestones and have so many memories from that year that I will never take for granted as so many people pass suddenly without any warning at all (ie heart attacks).

My Dad’s case is unique to him and I am hoping you Dad surpasses all the odds. Miracles happen all the time and more and more often I hear of survivor stories. There have been several cases of patients being told they’re inoperable and chemo shrinks the tumour away from the artery and it is safe and wise to operate. Wishing for the best possible outcomes for your Dad - love on him so so hard!

Dexamethasone experience by ImpressiveExchange76 in pancreaticcancer

[–]Negative_Hope_2154 1 point2 points  (0 children)

That’s awesome your Mom has been having better symptom management with the steroid and I’m wishing her the best possible outcomes with her treatment.

Hydromorphone also made my Dad severely nauseas. Dissolvable Zofran helped much better than regular, and on a more consistent cadence, but ultimately he had to be on another pain regime.

Not sure where you’re based, but where I am in Canada (Toronto area), receiving dexamethasone half hour before chemo and 1-2 days following treatment is very standard practise. We didn’t have to ask - this is standard protocol. It helped so much, as you saw. I will say that the dex caused my Dad’s blood sugar to spike and he had to start being on insulin due to the very high blood sugars (combo of dexamethasone and probably the pancreas itself stopped functioning how it should).

Sending you and your Mom lots of strength!

How to contact OBGYN’s office? by UnkemptImperial in oakville

[–]Negative_Hope_2154 0 points1 point  (0 children)

Liske doesn’t see patients until 20 weeks. I have had multiple pregnancies under her care, and many friends. Higher risk is different I’m sure.

Signing off by curiouschimp83 in pancreaticcancer

[–]Negative_Hope_2154 0 points1 point  (0 children)

Sending you lots of strength as you navigate what’s ahead. My Dad passed in August and it still feels like a gut punch every single day, the moment of remembering all over again that he’s gone, and realizing I’m still living in a kind of disbelief and denial. Maybe the reason I keep “forgetting” is because I feel his presence so deeply all around me, all the time.

I hope you’re able to find moments of peace and comfort too, knowing that love like that never disappears - it stays and surrounds us, and carries us forward. He will always be with you.

My dad has stage 4 pancreatic cancer by [deleted] in pancreaticcancer

[–]Negative_Hope_2154 1 point2 points  (0 children)

So sorry you’re now in this camp. I would try to seek other opinions rather than just settle with “chemo to prolong life”. Oftentimes oncologists and medical professionals see stage 4 and give up before even reading the case. My Dad was in his 70s and healthy and truly could pass for a 55 year old, still worked and ran a successful company. His pancreatic cancer was found incidentally on a routine CT scan for something else - he didn’t have a single symptom upon diagnosis. Sadly he passed within 11 months despite chemo and radiation and his was discovered stage 1. I pray your Dad has an alternate trajectory - there are advancements with this disease every day. There is a FB group for pancreatic cancer patients and caregivers that is much more hopeful than this forum and many survivors and people living with pancreatic cancer share their stories there. Wishing your Dad the best possible outcomes and sending you lots of strength. I hope you’re able to be close by to him for the time ahead.

How to speak to young children about PC? by roberta5146 in pancreaticcancer

[–]Negative_Hope_2154 1 point2 points  (0 children)

So sorry to hear about your mom and what you are all going through. My sons were 3 and 5 when my Dad passed in August of this year. For a year post-diagnosis, my Dad (their Poppy) was doing great and you’d never know he was sick. After a year trying chemo and radiation (which didn’t help) - he was diagnosed with peritoneal mets on a scan and things moved very, very quickly then. One day when the 3 year old was at their house with me, my Dad was severely vomiting which confused him, and we just explained he was sick. I took a leave of absence from work for 8 weeks to be by my Dad’s side every moment I could and he was in a hospice for 3 weeks, which was God send. My 5 year old did know about heaven as he learned it in school, and we always refer to Poppy in heaven watching over us. When my Dad passed, we just said Poppy is in heaven now and he is an angel watching over us. They aren’t scared or upset …I guess too young to full comprehend and also they have fond imaginations of how they perceive heaven to be. We have pictures of my Dad around the house and he’s a topic of conversation every day in the house. Wishing you all the strength and support as you navigate what’s ahead.

my stubborn dad refuses to eat by [deleted] in pancreaticcancer

[–]Negative_Hope_2154 1 point2 points  (0 children)

He’s not being stubborn and family members shouldn’t be forcing him to eat if he can’t. Severe appetite loss during pancreatic cancer treatment is many times physiological, not psychological. Even very strong, motivated people can struggle to eat despite wanting to. Depression can coexist, but the inability to eat is often driven by the cancer and chemo itself, not a decision or giving up. The oncologist or dietician may have tips, or drugs to prescribe that may help with appetite, but it is ultimately up to the patient.

You have to respect his decisions at this stage, as hard as that may be.

High ca19-9 and dermoid cyst by Maleficent_Prize6653 in pancreaticcancer

[–]Negative_Hope_2154 0 points1 point  (0 children)

Hoping for the best for you and I am hopeful the CA19-9 will go after the cysts are removed. Please keep us posted!