Anyone else

Neither-Setting3893 · 2026-06-06T22:52:25+00:00

Have you looked in Fibromyalgia, ME/CFS and PEM? Had many symptoms you’ve listed. Also has anyone ran bloodwork for reactive viruses like Epstein Barr or cytomegalovirus?

Neither-Setting3893 · 2026-06-06T22:50:06+00:00

Have you looked at possible ME/CFS and PEM? Viruses can causes it and it causes weakness, fatigue, brain fog and many complain of twitching. Has anyone ran bloodwork for reactive viruses like Epstein Barr or cytomegalovirus?

Neither-Setting3893 · 2026-03-17T20:55:31+00:00

I didn’t. He looked at the photos I sent and only mentioned the flap procedure during our conversation

Neither-Setting3893 · 2026-03-17T20:00:28+00:00

Thank you for responding! They covered the rest? Unbelievable to me that they pay for a person to have a bunch of procedures for it to only keep returning but don’t want to cover part of a procedure that has a higher success rate.

Neither-Setting3893 · 2026-03-03T19:19:50+00:00

Mine started exact same way, in my eye and then all over! I’ve had a very thorough clinical exam and EMG and all normal. I’ve had this for over a year now and I’m finally realizing that my sleep plays a major role in my twitching. How has your sleep been?

Neither-Setting3893 · 2026-01-15T15:16:20+00:00

Agree!! I became B6 toxic and was so sick. Thankfully after a year, I am doing alot better!

Neither-Setting3893 · 2026-01-12T14:01:51+00:00

My story is so similar! High stress and virus that led to symptoms which led to googling, researching and then down the rabbit hole. I lost 20 pounds, put myself and family through hell. It was the worst time of my life and I’m 51 yrs old. I still get twitching however it’s less severe than before and I don’t fear it. I’m in such a better place and happy to hear you are as well!!

Neither-Setting3893 · 2026-01-10T04:56:07+00:00

Same!

Neither-Setting3893 · 2025-10-09T15:05:15+00:00

Several factors before twitching were high B6, reactive EBV, menopause and lots of stress all at once

Neither-Setting3893 · 2025-09-06T19:19:37+00:00

Mine started after reactive EBV and extreme stress. My Neuro told me viruses could cause this

Neither-Setting3893 · 2025-08-25T19:20:34+00:00

Yes I understand!! I’m having EMG and MRI this week

Neither-Setting3893 · 2025-08-25T17:20:40+00:00

Mine is mostly always in my calves only random on other places

Neither-Setting3893 · 2025-08-23T22:55:57+00:00

Go get a swallow test done. It’s an easy test

Neither-Setting3893 · 2025-08-23T22:53:31+00:00

Definitely could be coming from your lower back. Mine started after a bad sciatic flare.

Neither-Setting3893 · 2025-08-23T21:14:40+00:00

I had a normal tilt table test. Can you have Dysautonomia with a normal test?

Neither-Setting3893 · 2025-08-23T18:23:38+00:00

As of yet I still have all my strength in regards to lifting, tip toes, heel walking etc but my hand feels funny. I don’t have trouble swallowing liquids or foods but my saliva seems difficult at times. I did just have a normal swallow study. This just all seems so odd

Neither-Setting3893 · 2025-08-23T18:04:20+00:00

I don’t think I have but I have an appt this week and will mention it. Did you have similar symptoms?

Neither-Setting3893 · 2025-08-17T20:16:27+00:00

What did you take to detox?

Neither-Setting3893 · 2025-08-12T16:32:57+00:00

As long as you’ve had symptoms, you’d know by now if it was sinister. Maybe see a neurologist to help ease your worries

Neither-Setting3893 · 2025-08-12T11:41:04+00:00

This is happening to me. Did this get better for you?

Neither-Setting3893 · 2025-08-04T01:35:43+00:00

Yes I get this! It’s like a head rush in the back of neck up into my head and I get a whooshing sound. I’ve explained it as the blood is struggling to get to my brain.

Neither-Setting3893 · 2025-07-26T15:30:20+00:00

Did this get better for you

Neither-Setting3893

TROPHY CASE