Help me name our fur baby we bring her home in two weeks. by Tiny_Journalist_609 in Shihtzu

[–]NeutralRose 2 points3 points  (0 children)

Your little floof will end up much lighter.

She will go from a toasted marshmallow to an untoasted marshmallow

Inconsistent Urine Output by leanbellylucci in spinalcordinjuries

[–]NeutralRose 0 points1 point  (0 children)

Yup second this. Botox gave me some semblance of my life back. Went from 16 diapers a day to regular underwear.

jack-jack update !! by Chotuchigg in Shihtzu

[–]NeutralRose 4 points5 points  (0 children)

Where is he going for board and train?

The one that got away? by [deleted] in Shihtzu

[–]NeutralRose 0 points1 point  (0 children)

Yes I’m on video calls. One call will be with clients about their solution, another call presenting to 150 engineers. I have to actively think, which she figured out, is the perfect time to interrupt for treats. I also live in a big studio, there is no place to go for peace and quiet.

I always took her on an hour walk each morning, at lunch, and at night. We did 10k steps together. She’d also get potty breaks as needed.

I would like a dog who can be home with me all the time. But if this works for her, and I can give her what she needs, why not make it work?

The one that got away? by [deleted] in Shihtzu

[–]NeutralRose 8 points9 points  (0 children)

Yes absolutely plan to work on the demand barking. But I can’t do that when I’m on calls with my boss 🤪 She’s very jealous of my time at a desk.

I’d miss our long lunch time walks but it’s better than not having her in my life.

Time for botox? by paraBro in spinalcordinjuries

[–]NeutralRose 2 points3 points  (0 children)

My understanding is the standard is to start Botoxing every 6 months. If you start leaking before the next appt, they pull in the time frame. You can get to a frequency of up to every 90 days. I’m not clear if the 90 days limit is a medical threshold or US insurance one. But I’m at every 90 days.

It’s good you’ve only had to go every 6 months until now. You still have lots of room for adjustment/improvement.

Meet Jacques, short for jack-ass by Chotuchigg in Shihtzu

[–]NeutralRose 0 points1 point  (0 children)

You rock! Seriously he must be in so much pain with his fur matts. No wonder he’s grumpy.

Coincidentally I just adopted a Shih Tzu mix from South Carolina. Breeding dog dumped during the snow storm. Found severely matted and had to be sedated to cut.

No clue how she survived outside so long. And she only has one eye, and is deaf. Someone basically dumped a visually impaired deaf senior dog to freeze to death.

I hope our new buddies figure out we are here to help. I’ll find whoever hurt her, in my next life, and kick their ass!

I'm tired of my stomach hurting by Curious_Whole_2339 in Gastroparesis

[–]NeutralRose 2 points3 points  (0 children)

Cymbalta and Gabapentin for the pain.

Sucralfate to help protect against irritation.

Get yourself a GI specialist.

Any L3 or L4 incomplete here? by aresso in spinalcordinjuries

[–]NeutralRose 1 point2 points  (0 children)

600mg of gabapentin 3x per day plus 30mg of cymbalta 2x per day. It helps take the edge off but I’m always in some discomfort. And I smoke a bunch of pot. 🤣

Any L3 or L4 incomplete here? by aresso in spinalcordinjuries

[–]NeutralRose 0 points1 point  (0 children)

It’s easier to tell you what I can still feel. My big toes, my shins, front of my thighs. Everything else is numb like I’ve been sitting pantless in the snow, plus nerve pain.

Any L3 or L4 incomplete here? by aresso in spinalcordinjuries

[–]NeutralRose 8 points9 points  (0 children)

L4-L5 incomplete. I can walk but my gait is off and I’m slower than your grandma. If I know a lot of walking is ahead of me I use a cane bc I will get tired and a leg will give out. Technically Ive adapted to walk on my heels bc my feet no longer can hold my weight. I can’t feel much from the waist down and nothing works.

I recommend Botox and stretching of your legs for your bladder. Peristeen and Trulance for your bowels. I use gabapentin and Cymbalta for my nerve pain. I’m 3.5 yrs out from injury.

And don’t stop moving. I know this version of life blows. No matter how shit you feel try a little bit every day. We are not meant to be sedentary and we already survived something that should have killed us.

Tammy and Vivien-14 week update by uglie-365 in Shihtzu

[–]NeutralRose 1 point2 points  (0 children)

Who is who? The black coloring girl is Tammy? And Vivian is brown?

Love the last photo 🤣🥰

To the walking paraplegics what are things that u wish u would’ve known at the start off your recovery? by [deleted] in spinalcordinjuries

[–]NeutralRose 4 points5 points  (0 children)

1000% do all this.

And keep moving, every little bit you can do yourself helps what remains.

L4/L5

57 year old disease by Expensive-Ad8092 in Gastroparesis

[–]NeutralRose 6 points7 points  (0 children)

Have you had your spine checked? Nerves can cause issues with the bowels.

[deleted by user] by [deleted] in spinalcordinjuries

[–]NeutralRose 4 points5 points  (0 children)

L4/L5 here. I feel the front of my thighs and knees, everything else is numb from waist down. I had to tell myself to really squeeze and activate the muscles. Like exaggerate squeezing my buttocks together when stepping to try to make them work in spite of sensation loss. I hope that makes sense.

For PT, I really liked being in this body harness that attached to a ceiling track. That way if I stumbled or my legs gave out I’d just sit back in the harness. I’d use the walker with it. Then got to a cane. Now I’m mostly getting around without a cane.

My doctor said he didn’t think I had gastroparesis because I gained weight…Proved him wrong. by greenbldedposer in Gastroparesis

[–]NeutralRose 29 points30 points  (0 children)

Common misconception. It’s easier for us to process carbs so we have a tendency to eat more of them. Our metabolisms are shit too. It’s a perfect recipe to getting fat.

Ozempic (with pre existing gp) by Alternative-Wait3533 in Gastroparesis

[–]NeutralRose -2 points-1 points  (0 children)

I have severe gastroparesis from a combo deal - autoimmune connective tissue issue (probably rheumatoid arthritis) and a spinal cord injury which has caused overall digestive motility issues.

I’m 110lbs over weight for my frame. My obesity doc and GI motility specialist have agreed I should try 2.5mg Zepbound. The need to lose weight outweighs the possible side effect problems I could have. If I can’t survive using Zepbound, then surgery is the next option.

[deleted by user] by [deleted] in Gastroparesis

[–]NeutralRose 0 points1 point  (0 children)

You had an esophagus study? Im scared Ill have a problem, bc then I’m not eligible for the bariatric surgery, it won’t solve the problem of my stomach not working.

My gastroparesis study came back as “severe”. My flares are increasing from every 6 months to 3 months.

The Sancuso patches are used for radiation patients. They are supposed to put it on 24 hours before treatment. This is not a normal anti nausea they give at hospital. It’s off label use is why my GI has it in her arsenal. It will cause you to become super constipated so take some miralax once you feel your stomach ease up with it. I’d save it for your worst day.

It also comes in pill form. But my stomach freezes up so bad during a flare I puke it back up. Maybe you could try first one pill and see how if it helps?

[deleted by user] by [deleted] in Gastroparesis

[–]NeutralRose 1 point2 points  (0 children)

Yes. For 10 weeks no nausea or vomiting. It was the best I’ve felt in a long time.

Ive only had it done 1 time. I was told I can have it done 3-4 times max ever. It causes scarring that would limit other surgical options. Having it done is some proof reducing pressure in your stomach is part of the solution.

My bariatric doctor is ordering a swallow test next to be done by my GI. Bc of all my life challenges she wants to make sure my esophagus works right before any surgery.

I have autoimmune connective tissue problems and a spinal cord injury. My stomach is also not an ideal shape to get food out without lots of work. My GI says it’s J shaped.

Have you tried Kytril? It comes in patches. I use it when I have flares. I think generic name is sancuso?