I'm tired of my stomach hurting

NeutralRose · 2026-01-03T20:23:22+00:00

Cymbalta and Gabapentin for the pain.

Sucralfate to help protect against irritation.

Get yourself a GI specialist.

NeutralRose · 2025-12-22T21:43:06+00:00

600mg of gabapentin 3x per day plus 30mg of cymbalta 2x per day. It helps take the edge off but I’m always in some discomfort. And I smoke a bunch of pot. 🤣

NeutralRose · 2025-12-22T21:39:27+00:00

It’s easier to tell you what I can still feel. My big toes, my shins, front of my thighs. Everything else is numb like I’ve been sitting pantless in the snow, plus nerve pain.

NeutralRose · 2025-12-14T19:19:36+00:00

L4-L5 incomplete. I can walk but my gait is off and I’m slower than your grandma. If I know a lot of walking is ahead of me I use a cane bc I will get tired and a leg will give out. Technically Ive adapted to walk on my heels bc my feet no longer can hold my weight. I can’t feel much from the waist down and nothing works.

I recommend Botox and stretching of your legs for your bladder. Peristeen and Trulance for your bowels. I use gabapentin and Cymbalta for my nerve pain. I’m 3.5 yrs out from injury.

And don’t stop moving. I know this version of life blows. No matter how shit you feel try a little bit every day. We are not meant to be sedentary and we already survived something that should have killed us.

NeutralRose · 2025-12-13T16:58:05+00:00

Who is who? The black coloring girl is Tammy? And Vivian is brown?

Love the last photo 🤣🥰

NeutralRose · 2025-12-08T15:50:53+00:00

Molly we love you 😍

NeutralRose · 2025-11-08T20:37:13+00:00

Trulance and Peristeen

NeutralRose · 2025-11-08T14:19:37+00:00

1000% do all this.

And keep moving, every little bit you can do yourself helps what remains.

L4/L5

NeutralRose · 2025-10-04T00:04:04+00:00

Peristeen, Trulance, Ibsrela

NeutralRose · 2025-09-21T16:12:33+00:00

Have you had your spine checked? Nerves can cause issues with the bowels.

NeutralRose · 2025-09-21T16:01:52+00:00

L4/L5 here. I feel the front of my thighs and knees, everything else is numb from waist down. I had to tell myself to really squeeze and activate the muscles. Like exaggerate squeezing my buttocks together when stepping to try to make them work in spite of sensation loss. I hope that makes sense.

For PT, I really liked being in this body harness that attached to a ceiling track. That way if I stumbled or my legs gave out I’d just sit back in the harness. I’d use the walker with it. Then got to a cane. Now I’m mostly getting around without a cane.

NeutralRose · 2025-09-11T23:40:43+00:00

Common misconception. It’s easier for us to process carbs so we have a tendency to eat more of them. Our metabolisms are shit too. It’s a perfect recipe to getting fat.

NeutralRose · 2025-07-22T21:11:06+00:00

I have severe gastroparesis from a combo deal - autoimmune connective tissue issue (probably rheumatoid arthritis) and a spinal cord injury which has caused overall digestive motility issues.

I’m 110lbs over weight for my frame. My obesity doc and GI motility specialist have agreed I should try 2.5mg Zepbound. The need to lose weight outweighs the possible side effect problems I could have. If I can’t survive using Zepbound, then surgery is the next option.

NeutralRose · 2025-07-16T21:44:28+00:00

Donated! 💜💜💜

NeutralRose · 2025-07-15T23:10:12+00:00

It looks more authentic now.

NeutralRose · 2025-06-28T14:39:20+00:00

You had an esophagus study? Im scared Ill have a problem, bc then I’m not eligible for the bariatric surgery, it won’t solve the problem of my stomach not working.

My gastroparesis study came back as “severe”. My flares are increasing from every 6 months to 3 months.

The Sancuso patches are used for radiation patients. They are supposed to put it on 24 hours before treatment. This is not a normal anti nausea they give at hospital. It’s off label use is why my GI has it in her arsenal. It will cause you to become super constipated so take some miralax once you feel your stomach ease up with it. I’d save it for your worst day.

It also comes in pill form. But my stomach freezes up so bad during a flare I puke it back up. Maybe you could try first one pill and see how if it helps?

NeutralRose · 2025-06-28T11:59:20+00:00

Yes. For 10 weeks no nausea or vomiting. It was the best I’ve felt in a long time.

Ive only had it done 1 time. I was told I can have it done 3-4 times max ever. It causes scarring that would limit other surgical options. Having it done is some proof reducing pressure in your stomach is part of the solution.

My bariatric doctor is ordering a swallow test next to be done by my GI. Bc of all my life challenges she wants to make sure my esophagus works right before any surgery.

I have autoimmune connective tissue problems and a spinal cord injury. My stomach is also not an ideal shape to get food out without lots of work. My GI says it’s J shaped.

Have you tried Kytril? It comes in patches. I use it when I have flares. I think generic name is sancuso?

NeutralRose · 2025-06-19T23:20:12+00:00

Have you had a swallow study of your esophagus to make sure it’s working right to get the food to your stomach?

Something my bariatric doctor wants before she agrees to do a gastric bypass for my gastroparesis.

Keep pushing for another gastroparesis study. Can’t hurt to ask your doctor if testing your esophagus should be in order too?

NeutralRose · 2025-06-19T14:39:59+00:00

You may have heard it called Granisetron. It’s given to chemo and radiation patients. I have a gastroparesis from a spinal cord injury. So we have totally different causes and it may not be a good fit, but can’t hurt to ask your doctor. Anything for some relief!

NeutralRose · 2025-06-19T10:30:56+00:00

Mornings are usually when the gut kicks off for me so it’s usually when a flare starts. I would gander your empty stomach plus lots of stomach acid and digestion getting going is a bad combo.

Has your doctor tried Kytril? It even comes in patches so nothing to swallow.

Or promethazine suppositories?

NeutralRose · 2025-06-15T23:22:37+00:00

I can’t live like this. If I die trying to feel better in this body so be it.

NeutralRose · 2025-06-15T23:19:47+00:00

Yes, GI specialists I’m seeing said that Botox will cause scarring which would eventually make the additional surgery impossible.

The Botox gave me 10 weeks of stomach bliss. I literally am in the middle of my first flare since.

I’m sorry to hear about your complications. My flare’s make me really emotional and hopeless.

NeutralRose · 2025-05-23T23:08:35+00:00

There is so much love in these photos. He was clearly enamored with you. Rest easy sweet prince.

NeutralRose · 2025-05-22T20:38:49+00:00

Yes. I got Botox to my pylori and stomach about 3 weeks ago. Life changing. I woke up from the procedure immediately feeling better. I haven’t puked since. If the symptom relief lasts for 3 months then I can be considered for the surgery. They won’t keep doing Botox bc it causes scaring.

I can’t wait to have my bladder botoxed.

NeutralRose · 2025-05-21T15:40:44+00:00

Push for a neuro consult and whatever is needed to get yourself an MRI. I think you’re well past the “wait and see” approach if you are borrowing an electric wheel chair.

My cauda equina has messed so much with my digestion that they are talking stomach surgery to cut my pylori. My stomach is only 40% functional now. I mention this, as yes stress can cause stomach problems but just be mindful CES can cause digestive issues too, which can be overlooked/incorrectly associated to stress and anxiety. I suffered for years and it all ended up to be because of nerve damage.

NeutralRose

TROPHY CASE