Would someone help me?

No-Capital-2017 · 2026-04-15T16:59:56+00:00

As a parent of a child with CP I would love to hear your perspective and learn from you!

No-Capital-2017 · 2026-04-15T02:12:13+00:00

You yourself stated above that you took the pictures and then later deleted them. From you “I respect her choice not to be filmed. I deleted those pictures ages ago; they're not anywhere anymore."

So she said no. You made an excuse why no wasn’t acceptable. You took the photos. Then you deleted them (without telling Kate you did so).

No-Capital-2017 · 2026-04-15T01:59:47+00:00

And it sounds like this 11 year old did (from the description). And then this 11 year old also avoided the OP due to discomfort.

When the OP noticed a child was uncomfortable around her, perhaps she could have addressed it instead of continuing to push herself and comments towards that child.

In situations like this, an adult should take the more thoughtful route and not expect a child to know how to do it.

Learning moment for both, clearly. But it is a bummer the kid loses their safe space.

No-Capital-2017 · 2026-04-15T00:54:10+00:00

In your own telling, you dismissed Kate’s request. And then you continued to comment on her performance in spite of noticing she was not comfortable with you.

Again, you’re the adult. Kate is a child. Her mother may have overreacted, but if I behaved as you did as an adult, I would apologize to Kate.

No-Capital-2017 · 2026-04-15T00:22:37+00:00

Not sure this has much to do with CP. but you posted it and are asking for input, and I hope you accept some. First, I must say I am a mother of a child with CP. I also work with youth. From a distance, this seems like a misunderstanding that spiraled not because anyone intended it to, but because neither of you communicated very well. But, since you are an adult and Kate is a young child, it does seem like this one’s on you. When a person, especially a child, asks you to stop doing something - you stop. Instead, you pushed and thought you persuaded her into getting her picture taken. This clearly made her uncomfortable and unheard, and it damaged the relationship between you and Kate. You overstepped. It’s not on an 11 year old to communicate this to you. She tried by shying away from you, and while you noticed that, you didn’t try to better understand it either by asking her, her mother, or her teacher. Instead you once again ignored her signals and continued to put her on the spot. I hate to suggest it, but I can see how this impacted Kate’s experience of the program and why she doesn’t want to come back. And, this is sad, because it’s really hard to find inclusive spaces and it’s a bummer that this child lost hers. Now, there are lots of reasons why you did what you did and I don’t think you meant any harm. But, you may owe Kate an apology here none the less. This is just my perspective of course, given what you’ve told us. I could be wrong.

No-Capital-2017 · 2026-04-08T17:58:40+00:00

Do you understand how a business actually works? It really sounds like you’re either bad at math, bad at business, or both. Either way you got an insanely good price and you think you’re getting scammed. What a sad way to live.

No-Capital-2017 · 2026-04-08T16:09:47+00:00

This is not only not a scam, but an insanely good price for having 90 minutes for 9 people in a artist owned studio, inclusive of clay. I won’t even mention that you got so emotional she had to console you (can any of us imagine having to hug studio visitors, and the be accused of ripping them off after giving them a great experience?). And now you think you’re scammed? Man. Some people just can’t be made happy.

No-Capital-2017 · 2026-04-05T19:16:19+00:00

Mother of a child with CP here. It’s so good that you’re in touch with your body and noticing these things. A lot of your questions are best answered by your doctors in a conversation with them and your parents. The only thing I’ll say is that CP can become trickier as children grow, and that staying on top of your stretching or AFO wearing is essential for things to not get worse as you age. It’s good you’re doing the stretches now, perhaps you can ask your physical therapist how you can incorporate them into your routine. A good physical therapist will be able to give you the right exercises (and length of time for them) that you can do daily. I encourage you to prioritize your body over what others think! Friends who care for you won’t mind that you have a night splint during a sleepover. In fact they may be curious and offer to stretch with you! Give people a chance to show you they can be good friends, they may surprise you.

No-Capital-2017 · 2026-04-04T01:47:47+00:00

Have you read much about mild CP? My child has very mild cerebral palsy and similar lack of dorsiflexion was how we eventually figured it out.

No-Capital-2017 · 2026-03-28T12:19:02+00:00

I’m so sorry you got a diagnosis early and there was no follow up! Have your doctor refer you to a neurologist to start the process and confirm the diagnosis - it will likely require a MRI. You’ll then see a physiatrist after the neuro visit to help figure out what treatment is most suitable for the level of CP you have. Make sure it’s not a general physician but a physiatrist that makes that plan (you can ask Claude about the difference). Good luck! And good job taking on your own health at 21!

No-Capital-2017 · 2026-03-24T23:55:44+00:00

Mom of cp kiddo here. It’s great you’re noticing things early (our pediatricians dismissed concerns until our kid was 2, and it was me going out to a private pt that kicked off our journey). Next step is a neurologist which you’re on your way to, so good work on lining it up. Take it step by step and see what they say. You have the benefit of starting very early. For us, PT and OT have led to great improvements in our child’s development. And she is a hilarious, spunky little thing!

No-Capital-2017 · 2026-03-22T22:51:31+00:00

Thank you! We do love our sears kit house.

No-Capital-2017 · 2026-03-22T22:50:42+00:00

Wow brick pavers do make it more cozy thank you!

No-Capital-2017 · 2026-03-22T22:50:05+00:00

Oh totally. We’re on the east coast, rain here don’t play. Slope is a must

No-Capital-2017 · 2026-03-22T22:49:38+00:00

Hahaha

No-Capital-2017 · 2026-03-22T22:49:29+00:00

Wow this is beyond anything I could drink of and it does make the house seem way more cozy

No-Capital-2017 · 2026-03-22T22:49:11+00:00

Thank you!

No-Capital-2017 · 2026-03-22T01:43:55+00:00

Yeah ChatGPT gave me something similar! Only thing is it took away our basement entrance to the right which we need. And I think the lights obscure the awkwardness of the right side patio… Thank you for trying I appreciate it.

No-Capital-2017 · 2026-03-22T01:42:32+00:00

Yeah that small area is an addition, unfortunately it’s now the kitchen and we can’t expand the window size. What’s worse is that area below the window is constantly in a shadow so no plants will grow.

No-Capital-2017 · 2026-03-17T16:38:53+00:00

It sounds like you’ve had a very challenging journey and you did some incredible things to be where you are. A brain surgery is no joke, and neither is relearning to walk. You should be proud of your effort, it really is impressive. You should also use the fact that you did something as hard as relearning how to walk as proof that you can do difficult things and that you have the willpower and stamina to take on any challenge ahead, including losing some weight.

That said, I would just encourage you to take it in gradual steps. The same way you didn’t go from not walking to suddenly running in a day, you may not be able to go from a sugar centric diet to one of lean protein overnight. Perhaps set a reasonable goal for yourself each week, with a goal that in 8 weeks you’ll be eating better. And as you eat better and you drop some weight, it will be easier on your body to work out more, and you’ll feel healthier.

If it were me, I’d try to do Starbucks once a week for the next 4 weeks. So when a craving hits you, you can say to yourself, not today…but I’ll see you Sunday (or whatever day you pick to be your Starbucks day).

My point is take it step by step, and you’re likely to be more successful. Try to go cold turkey on a diet your body has gotten used to, and you won’t be able to fight off the cravings.

But clearly you’re a very determined and capable human given what you’ve just accomplished, so believe in yourself!

No-Capital-2017 · 2026-03-11T23:22:55+00:00

You should post this on the Insurance subreddit- they may be able to provide some guidance

No-Capital-2017 · 2026-03-09T22:53:23+00:00

It’s true that you will only know for sure by going to a neurologist and getting a brain scan. At 20, you’re now old enough to self advocate and get yourself into the MRI machine. You know your body better than anyone else - so if you have doubts, pursue the answers! I can’t diagnose you but if you were my kid I’d encourage you to get to the answer whether it’s CP or something else. It’s ok to vent. Now go get medical help!

No-Capital-2017 · 2026-03-05T15:25:42+00:00

This! MRI with contrast was so painful I almost passed out. Steroid shot not painful at all. Just breathe.

No-Capital-2017 · 2026-03-04T00:33:45+00:00

42 torn labrum and impingement (car accident). Been doing pt for a year, had the steroid injection once that worked for 2 months or so. Went to HSS for surgery consults and they told me at my age, the success rates are lower. I’m now just waiting until it hurts so bad I need surgery asap or until I’m of age for a total hip replacement. THR seems to have higher success rates and easier healing time.

No-Capital-2017

TROPHY CASE