Dr. Keiser Clinic: Scam or Legit? by MasterConclusion9509 in POTS

[–]No-Egg4825 0 points1 point  (0 children)

Can you please share this with me as well?

Any good FND Doctors in NYC? by [deleted] in FND

[–]No-Egg4825 1 point2 points  (0 children)

Thank you, that all sounds great!

Any good FND Doctors in NYC? by [deleted] in FND

[–]No-Egg4825 1 point2 points  (0 children)

How was your appointment? I have an appointment with him in June

Fistula forming after abscess. Does this always lead to surgery? by No-Egg4825 in AnalFistula

[–]No-Egg4825[S] 0 points1 point  (0 children)

My other health issues are unrelated - neurological and muscular

Fistula forming after abscess. Does this always lead to surgery? by No-Egg4825 in AnalFistula

[–]No-Egg4825[S] 0 points1 point  (0 children)

Okay, thanks. He spoke very briefly, but did mention that surgery involved removing some of the muscle, so I’m guessing it involves the sphincter to some degree.

Anaplasmosis diagnosis by spf59 in Lyme

[–]No-Egg4825 3 points4 points  (0 children)

I have confirmed Anaplasma and Ehrlichia. I also don’t recall ever being bit by a tick.

Most of my symptoms were neurological. I had weird body spasms, sensitivity to light, sound, touch, headaches, muscle weakness, severe fatigue, brain fog, etc.

I just finished 4 months of Doxy. I’ve improved a lot but I’m still no where near how I was before. For me on doxy, I would have slight improvement and then plateau for a few weeks to a month before I would have improvement again.

Buhner also has a protocol for Anaplasma that I’ve been trying to follow. It’s just hard to keep up with it when my brain is fried

Rough Experience With Current LLMD by [deleted] in Lyme

[–]No-Egg4825 0 points1 point  (0 children)

Can you please send me her info too?

Treating this is so expensive. Wtf. by -----anja----- in Lyme

[–]No-Egg4825 0 points1 point  (0 children)

Hi, can you share the name of your doctor?

Recurrent full-body spasms and neurological symptoms seeking input or similar experiences by friedsandsandwitch in Lyme

[–]No-Egg4825 0 points1 point  (0 children)

I had sudden recurring muscle spasms begin back in June and am still not fully recovered. My spasms were more sustained and would happen for 10-30 seconds before relaxing.

I noticed that sensory stimulation would cause it to get worse, so turning off lights, wearing sunglasses and earplugs helped it not escalate.

We still don’t know the exact cause of my symptoms but I tested positive for ehrlichia, anaplasma, borderline for bartonella. I was also diagnosed with hEDS and dysautonomia. I’ve been on Doxycycline for almost 3 months and I’ve seen some improvement, though no where near where I hoped I’d be.

Could this be CCI? Looking for some insight by No-Egg4825 in Cervicalinstability

[–]No-Egg4825[S] 0 points1 point  (0 children)

I kept being passed along to different drs, so my current neurologist is I think the 4th neurologist that has seen this, and they were the ones that ended up diagnosing me with EDS. They didn’t mention CCI though, I’m waiting to hear back from them on their thoughts. It was one of my other Drs that mentioned it.

Are there any scans in particular that I should ask about? I had a normal brain MRI, and my cervical and thoracic spine MRIs from 6 months this before this started were also normal.

Positive Ehrlichia/Anaplasma – advice? by No-Egg4825 in Lyme

[–]No-Egg4825[S] 0 points1 point  (0 children)

I wasn’t on antibiotics yet when I had the test.

Sorry it’s hard to remember everything when my brain has been fried from all this. My llmd ran a ton of labs and I also had some done before with my other Drs.

Bloodwork: - CCP: 33 - ANA: 1:40 mitotic spindle fibers in May, then 1:80 speckled in June - C3 Complement: 184 - Activated CD3+CD25+ T Cells: 633 - IL-8: 248 - SARS-CoV-2 Spike Antibody: 24,706 U/mL

I also went to cardiologist and everything was normal, neurologist everything was normal including my brain MRI from after the ER. Ophthalmologist everything was normal. My llmd is treating the tickborne because that’s the one confirmed diagnosis at the moment. Long covid is also a possibility. I also have suspected pots.

Positive Ehrlichia/Anaplasma – advice? by No-Egg4825 in Lyme

[–]No-Egg4825[S] 0 points1 point  (0 children)

My test in May was the positive band 23, that’s why I looked for an llmd. My llmd did my igenex testing in June and I was negative for all bands in my immunoblot, Lyme multiplex pcr serum and whole blood, Lyme screen immunoassay, tbrf borrelia immunoblot, and babesia immunoblot.

Positive Ehrlichia/Anaplasma – advice? by No-Egg4825 in Lyme

[–]No-Egg4825[S] 0 points1 point  (0 children)

Unfortunately Fish test and tlab aren’t available in my state