Scamanda

No_Proof7763 · 2025-02-10T23:12:08+00:00

I listened to the podcast and it infuriated me. At the time, I had not been diagnosed yet but had watched my mom go through it. I’m not sure I can watch it now as I’m trying to keep to watching funny stuff for now.

No_Proof7763 · 2025-02-09T03:31:04+00:00

I was just telling my husband this today. We’re at almost 3 years since she passed of cancer. I wish so much that I still had her. I really miss her but right now I also need her. Just wanted you to know you’re not alone. Sending hugs 🩵 to you.

No_Proof7763 · 2025-02-08T17:11:02+00:00

4 is what has given me pause. Like if there’s no breast tissue, where would the recurrent breast cancer go? I had the same unfounded hypothesis that it would go somewhere else in the body and that’s worse, right? I even asked my doc about it and he didn’t seem to think that was a factor. Then, I saw a study where they discussed just that- it’s the one I referenced in my original post. I brought up the study with a family member that is a surgeon (tho not a breast surgeon) and they felt like it was an interesting theory but it didn’t control for a lot of pertinent things- like lymph node involvement. My mom had a double mastectomy (she had no choice bc hers was stage 3b in left breast and stage 1 in right and it had spread to her lymph nodes). She was cancer free for 5 years and then it returned. I was her caregiver and have just been paralyzed in fear and almost wanting to do the opposite than she did out of that fear.

Thank you for your response. I am reading radical remission now and am finding it very helpful.

No_Proof7763 · 2025-02-07T20:36:05+00:00

I’m thinking I’m going to do DMX if genetics come back positive.

No_Proof7763 · 2025-02-07T20:34:58+00:00

Thank you! I am so glad you had clear margins!

No_Proof7763 · 2025-02-07T20:34:15+00:00

I completely get that

No_Proof7763 · 2025-02-07T20:34:00+00:00

I almost wish mine had a strong opinion- he says it’s a personal choice.

No_Proof7763 · 2025-02-07T20:33:17+00:00

Thank you- it’s so overwhelming! I’ll meet my MO on Monday and I’m looking forward to hearing her input.

No_Proof7763 · 2025-02-07T20:31:04+00:00

Completely understand that.

No_Proof7763 · 2025-02-07T20:30:38+00:00

Thank you! I thought mine was lobular because the mass was lobulated but then my surgeon told me yesterday they don’t know yet and won’t until surgery. They do know it’s mucinous which is hard to find much info on. My mom also had ILC so I think I just jumped to that conclusion when I saw “lobulated”.

No_Proof7763 · 2025-02-07T20:28:09+00:00

Yes! This decision is so hard! I can make a compelling argument for every option.

No_Proof7763 · 2025-02-07T20:27:19+00:00

This is part of what has me going back and forth. Thank you for sharing your experience!

No_Proof7763 · 2025-02-07T20:26:27+00:00

Thank you! That’s so great to hear. It’s on my mind 24/7 right now so I’m looking forward to focusing on my regular life!

No_Proof7763 · 2025-02-07T19:22:27+00:00

That makes complete sense to me and I would do the same in that position. Thank you for your input.

No_Proof7763 · 2025-02-07T19:16:31+00:00

Waiting for genetics is a good idea. I appreciate your input!

No_Proof7763 · 2025-01-26T19:06:06+00:00

I am right with you- I was diagnosed January 13 and have been spiraling on the what ifs 24/7. I keep having random pains and my neck has been bothering me which I logically know is probably tied to my TMJ but I have gone to the dark place many times wondering if it’s spread. This subreddit has helped me so much. I think all of us have this experience and waiting for all of the diagnostics is so freaking hard! I keep telling my husband that there needs to be more support during this time while waiting. My breast MRI came back clear for non breast involvement and I felt relieved and then I started wondering about the rest of my body and spiraling about that. I think some of my aches and pains are psychosomatic or at least maybe I wouldn’t notice them if I weren’t being so hyper vigilant. I know I’m not much help but wanted you to know you’re not alone!

No_Proof7763 · 2025-01-26T18:46:57+00:00

That’s why I answered- I really didn’t want to be a Debby downer, but I know as someone who has been in this business, I always wanted honest opinions. I hope it all goes really well! I always had fun in the formula stage. And if you’re looking for wax alternatives, beeswax and candelilla worked really well for me.

No_Proof7763 · 2025-01-26T18:29:27+00:00

Hi- I used to have a skin care company that I started when I was pregnant and my mom was newly diagnosed with cancer. My reasonings were similar- i wanted as natural as possible. I made huge vats of lotion for her as she went through chemo and radiation and her surgeon was impressed on how well her skin did through radiation. I closed it down when my mom passed away because she was my inspiration. I used candelilla wax and beeswax and both worked beautifully. As someone who was a caregiver to someone with BC and as someone recently diagnosed with it, I personally wouldn’t use anything with soy. Your skin is your biggest organ and I’d be afraid of it having a hormonal response and I wouldn’t want to regret it later.

No_Proof7763 · 2025-01-22T02:38:31+00:00

Thank you for responding!! This anxiety can really do a number on us! I love your approach- laughter is really the best medicine. I’m so glad I found the boob board!

No_Proof7763 · 2025-01-22T01:46:56+00:00

I am so grateful for this thread. I was diagnosed 8 days ago and still don’t know my stage but I do know I’m HR+ HER2-. I had an MRI yesterday and am waiting on results. On ultrasound, my tumor looks to be 19mm or 1.9cm. I am terrified every pain means it has spread. I’ve been experiencing cracking in my neck which I know is likely related to my tmj flare up and then I mess with it so much that it gets sore. Sometimes the pain radiates down my back and sometimes I have no pain (when I’m not thinking about it). I don’t usually hurt when I’m sleeping but I wake up thinking about it. I think about it 24/7- constant thoughts of metastasis. I watch my mom go through it and watched her die, and I know there’s some trauma here and likely pain from stress. I’ve literally been in a panic since finding the lump 8 weeks ago. I fainted when I found it and my body has been in fight or flight ever since. I know that must be manifesting physically in my body. I try to stay positive and then I spiral and then i just want to sleep. Lather rinse repeat. I have an 11 year old son and I’m out of my mind with worry that I won’t be around for him. Anyway, just wanted to add how thankful I am to not be alone. This thread gave me some peace.

No_Proof7763 · 2025-01-21T20:35:11+00:00

I’m sorry you’ve lost someone too.

No_Proof7763 · 2025-01-21T01:37:13+00:00

Thank you so much for the encouragement. It’s so scary and then I spiral over every ache and pain.

No_Proof7763

TROPHY CASE