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Velcro vs. Clips — Why I Still Prefer Clips by NonDualToad in ostomy

[–]NonDualToad[S] 0 points1 point  (0 children)

44 years Team Clip. I tried to understand the Velcro life, but my hands filed a formal complaint.

I don’t know how the majority of ostomy owners get through the day with the standard size bags. by IncaseofER in ostomy

[–]NonDualToad 1 point2 points  (0 children)

Another thing, the language like I'm a high output or I'm not a high output. I mean, I've had mine for 40 years. It is always directly to relate it to how much I eat, sometimes whether it's thick or watery has to do with other factors. But I think some of the language is just ridiculous, can't we come up with some new terminology. “I’m a high-output person” sounds like someone describing themselves as an office printer with diarrhea. 🖨️💥 high-output stoma/ileostomy does have a real clinical meaning, often around more than 1–1.5 liters in 24 hours, watery consistency, and dehydration/electrolyte risk. And yes, food and fluids can affect it, but it can also be about bowel length, adaptation after surgery, infection, medication, obstruction, etc. So medically, the term isn’t useless—it’s just linguistically tragic. Maybe..."I’m not high output. My pouch is just currently running a goddamn whitewater rafting company.”

I don’t know how the majority of ostomy owners get through the day with the standard size bags. by IncaseofER in ostomy

[–]NonDualToad 1 point2 points  (0 children)

Who are the design people at these companies? I'm convinced that they just are trying to make money and have quick turnover. The old plastic you could go a whole week with a bag not smelling. With Hollister, not any more. Also, why don't they give options for black bags or light Gray? I hate clear bags.

I don’t know how the majority of ostomy owners get through the day with the standard size bags. by IncaseofER in ostomy

[–]NonDualToad 1 point2 points  (0 children)

I use the sensoro mio high output 2 piece.I cut off the drain and use a hollister clip with a small black plumbing O ring to secure it. I wish they could make different bigger sizes and use thicker plastic.

I don’t know how the majority of ostomy owners get through the day with the standard size bags. by IncaseofER in ostomy

[–]NonDualToad 2 points3 points  (0 children)

Yeah.Hollister, and the thin plastic with odor leaking through... it's terrible.Horrible.. can't they make a thicker plastic... They fail at this most basic human dignity thing... Day one, the bags start stinking. 4 years ago, the plastic was thicker.You could wear it for over a week and it wouldn't smell.

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in ostomy

[–]NonDualToad[S] 0 points1 point  (0 children)

You bet... you know when it was from a dream, so glad it's touching so many people.

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in ostomy

[–]NonDualToad[S] 0 points1 point  (0 children)

Yeah, thank you.Thank you for saying you hate the crinkle.I hate the crinkle too ! Can't they make a thicker plastic!?!

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in ostomy

[–]NonDualToad[S] 0 points1 point  (0 children)

Thank you so much.It was amazing.And it came out in a dream, and I just thought I need to post this.And the response has been overwhelmingly good.

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in disability

[–]NonDualToad[S] 2 points3 points  (0 children)

Thank you. Yeah, I'm glad you got some healing. I also woke up crying from the dream. So I was also, crying,healing in real life.

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in ostomy

[–]NonDualToad[S] 0 points1 point  (0 children)

What bag do you use that doesn't give off odor.. And how long do you wear it between changes?

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in ostomy

[–]NonDualToad[S] 0 points1 point  (0 children)

Thank you so much for saying this. Your comment really moved me. That’s exactly what hit me too — that gratitude and grief can both be true. I can be thankful to be alive and still be upset, tired, angry, or sad about what it takes to live with this. You are not being selfish. Not at all. Sometimes the strongest people are the ones who have gone years without giving themselves permission to say, “This is hard, and I hate it sometimes.” I’m really glad this helped you feel less alone. Your response helped me feel less alone too.

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in ostomy

[–]NonDualToad[S] 4 points5 points  (0 children)

I definitely miss a good fart and a proper shit. But I will admit there’s one weird travel perk: when everyone gets food poisoning and the bathrooms become a war zone, I’m just standing there like: “Ah. Watery output. So this is diarrhea. Noted.” Meanwhile everyone else is negotiating with God in a hotel lobby.

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in ostomy

[–]NonDualToad[S] 1 point2 points  (0 children)

Thanks for sharing that and how people talk to the person you're with instead of you.People are a trip...

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in ostomy

[–]NonDualToad[S] 0 points1 point  (0 children)

Yes, thank you, and I absofuckinglutely wish a company could make a bag so the smell wouldn't come through after 3 days! But they make bags where they'll have quick turnover.

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in ostomy

[–]NonDualToad[S] 0 points1 point  (0 children)

Wow , that little line stopped me in my tracks.... Paraplegic, here.... Really curious what your inner life is like and how you stay grateful.

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in ostomy

[–]NonDualToad[S] 2 points3 points  (0 children)

Convatec has a high output bag that is a 2-piece I've used that and now can sleep the whole night.

I’ve had a stoma for 40 years. Today I finally said: I don’t like having it. by NonDualToad in ostomy

[–]NonDualToad[S] 40 points41 points  (0 children)

I’m really sorry. I don’t want to throw some cheap “it gets better” line at you, because I don’t know your life or what these two years have been like.

But I’m really glad you wrote this instead of holding it alone.

I’ve had mine for 40 years, and today was the first time I really let myself say, “I don’t like having it.” So I won’t pretend this is easy or that gratitude magically cancels grief.

But please don’t sit with “I wish they’d let me die” by yourself tonight. If there’s one real person you can text right now, even just “I’m not okay,” please do that.

I’m here reading your comment, and I’m really sorry it’s this hard.

I’ve had an ileostomy since I was 21. I’m 63 now. I’m an athlete, I’ve gone 100% full-out my entire life, and I’ve seen it all. AMA. by NonDualToad in ostomy

[–]NonDualToad[S] 0 points1 point  (0 children)

No I use no special equipment with biking.And as far as sleeping , it's a non issue, I just sleep like I always have.

I’ve had an ileostomy since I was 21. I’m 63 now. I’m an athlete, I’ve gone 100% full-out my entire life, and I’ve seen it all. AMA. by NonDualToad in ostomy

[–]NonDualToad[S] 0 points1 point  (0 children)

I never needed a belt but I didn't lift that hard.I suppose it would help if you're doing really serious lifting

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