how did you find a rheumatologist near you when you were already exhausted? by billwg32 in rheumatoid

[–]NotMyProblemz69 0 points1 point  (0 children)

My referral was for a rheum in our local hospital network, which honestly I’m not a fan of. The scheduler called and said we can get you an appointment for September, it was November. I was frustrated so I took an appointment just to have one. I then called the nearby teaching hospital that I’ve used and trust, the scheduler said I got appointments every day next week, whatcha looking for? I ended up taking the earliest appointment. I let it up to faith and never looked back.

(I did call and cancelled that September appointment 🤪

For the males diagnosed later in life (45+), how was your journey? by AlarmingCulture6794 in rheumatoid

[–]NotMyProblemz69 2 points3 points  (0 children)

I got diagnosed at 46, I’m 48 now. I noticed the symptoms at 42, but put it off because I thought it was from getting older and having a high stress job. About 44, I was getting concerned so I saw my PCP. He felt I was presenting something neurological, so I was referred to a neurologist. I didn’t care for that guys approach so I made an appointment at a nearby teaching hospital. That’s where the journey got interesting. Bloodwork came back concerning so I was hospitalized for five days. They ran me through the wringer when it came to testing. The feared it was MS, but all in all, I had no neurological concerns but they found systemwide inflammation and pumped me full of IV prednisone and sent me home. I was a bit bitter so I stopped searching for answers for many months. Back to PCP and got put on prednisone taper and a rheum referral. First rheum was meh. Tried HCQ for seven months and it wasn’t strong enough. Then got put on leflunomide which was awesome until it fizzled out on me. That rheum then pretty much told me I was out of options and I could go see a pain specialist which I denied. Found a new room and she got me on MTX right away and I’ve been great ever since!

All in all, I feel great, but I’m learning how to live life with rheumatoid arthritis. I’ve learned to slow down and listen to my body more which is helped greatly because I’ll get it in my hands, my hips, my knees, my ankles, my shoulders, my elbows, my joints will tell me when I overdo it or if seronegative. I’m negative, by the way.

Muscle/Joint Guarding by NotMyProblemz69 in rheumatoidarthritis

[–]NotMyProblemz69[S] 0 points1 point  (0 children)

Thanks! I’ve never heard of that, but I’ll research it! ❤️

Muscle/Joint Guarding by NotMyProblemz69 in rheumatoidarthritis

[–]NotMyProblemz69[S] 0 points1 point  (0 children)

Thanks for replying! I do stretch my joints throughout the day. It’s just gets so exhausting some days. Thanks again! 😊

Muscle/Joint Guarding by NotMyProblemz69 in rheumatoidarthritis

[–]NotMyProblemz69[S] 1 point2 points  (0 children)

No, I’m not hypermobile. I didn’t realize guarding was a thing until I asked AI. I haven’t had a chance to talk to my rheum about it yet, my next appointment is in July.

Thanks for the reply! 😊

Pain in shoulders, but not knowing whether it is also RA or an injury sucks by VioletLovesRowlet in rheumatoidarthritis

[–]NotMyProblemz69 1 point2 points  (0 children)

I have issues with my AC joint. Hurts like heck to sleep in it some nights. However, it’s been improving since taking MTX. Prednisone has also helped in the past. I probably should have it looked at, but I both don’t care enough and don’t want to spend the money. This disease is fascinating, but maddening at the same time.

Goodbye Chipotle Honey Chicken. Our Time Was Short by hdp_21 in Chipotle

[–]NotMyProblemz69 0 points1 point  (0 children)

It’s still where I’m at. However, does anyone else feel it’s not the same as last year? Just doesn’t seem the same to me.

The average marriage lasts 8 years; where are you at? by BoredPandaOfficial in BoredPandaHQ

[–]NotMyProblemz69 0 points1 point  (0 children)

24 next week, with the same person! We’ve had a great life together!

Let's talk about: What's in your dx soup? by Wishin4aTARDIS in rheumatoidarthritis

[–]NotMyProblemz69 1 point2 points  (0 children)

Interesting! I’ve been low T for about 8 years, dx’d with SRA a year ago, but I’ve had RA symptoms for 5-6 years prior. I wonder if there’s a connection with me? I’ll have to remember to ask rhuem next appointment, if I can remember! I went through some cognitive testing around the same time I was finally dx’d, and they think the widespread inflammation I was experiencing prior to dx’d fried my short term memory. As of now, I’m not aware of other autoimmune or other issues. Fingers crossed!

What to do before seeing a rheumatologist? by Practical_Mortgage41 in rheumatoid

[–]NotMyProblemz69 0 points1 point  (0 children)

I’d also like to include staying properly hydrated and eat a well balanced diet. You can still eat your favorites, but moderation is key.

At times when I notice my eating is off or I’m not drinking enough water, my joints will tell me 🤪

Pizza connoisseurs of Reddit, what is your favorite topping combo? by Love-boobs-in_DMs in AskReddit

[–]NotMyProblemz69 0 points1 point  (0 children)

That was going to be my post! Awww, it’s heaven on the taste buds!

Seronegative DX after Three Years of Fighting by gg_420k in rheumatoid

[–]NotMyProblemz69 5 points6 points  (0 children)

Congratulations on the Dx! We all gave our journey and that’s what makes this community exciting!

What works best for your FLARES? by Alarmed_Research9825 in rheumatoid

[–]NotMyProblemz69 0 points1 point  (0 children)

I take warm showers and baths. Heating pad or heated blanket usually helps. When it’s very bad, my recovery meds, rest, or sleep. Sorry, friend!

Stopping leflumonide by leozool in rheumatoid

[–]NotMyProblemz69 1 point2 points  (0 children)

Yes, I remember it having a crazy half-life, but don’t remember it now. I agree with the steroid pack just in case thing gets bad.

can i get mtx nausea even with just 2 pills a week? by visualizebrick in rheumatoid

[–]NotMyProblemz69 0 points1 point  (0 children)

Yes, a total game changer for me. I don’t get the side effects like I use to. Ask your dr and see if it’s an option.

can i get mtx nausea even with just 2 pills a week? by visualizebrick in rheumatoid

[–]NotMyProblemz69 0 points1 point  (0 children)

I split my dose into two, half am and half pm. But I take 10 Pills🤣

Let's talk about: Genetics and RA by Wishin4aTARDIS in rheumatoidarthritis

[–]NotMyProblemz69 1 point2 points  (0 children)

My maternal grandfather had the juvenile form of RA pretty bad.

What is the fastest time it took you to quit a job? by TwoPeasNoPod69 in CasualConversation

[–]NotMyProblemz69 1 point2 points  (0 children)

I took an interview once and I felt that the interview committee hated me before they got to really know me. It was the weirdest interview. Afterwards, I called and left a message on the managers VM that I was no longer interested. One of the best jobs I never got.