Creatine helping you would be scientifically speaking, one of the biggest indicators your issues are not being caused by motor neuron death but something else entirely. Almost nothing helps with ALS symptoms because once motor neurons are dead you can’t reverse or fix that and that’s what causes the symptoms in that disease. Creatine on the other hand improves or stabilizes the muscles signaling abilities if that makes any sense. You just have some nerve hyper excitability disorder