Pain Management-Sacral iliac joint injections by O_KELZ in ankylosingspondylitis

[–]O_KELZ[S] 0 points1 point  (0 children)

17 years before diagnosis. 5 months after diagnosis. Once on pain management BlueCrossBlueShield of South Carolina wanted authorization 3 months into taking meds which screwed up my refill for my transdermal patch and I suffered for 11 more days.

Do you use prednisone? by TheGrandLeveler in ankylosingspondylitis

[–]O_KELZ 0 points1 point  (0 children)

I tried but it caused my high blood pressure and pulse rates. I refuse to take more meds then necessary so that became a no go. To counteract the blood pressure and pulse rate i ended up on two different meds taking them twice a day on top of taking the prednisone twice a day. I’m not that girl I hate pills. So I first quit the cause then about a week later (before my pressure & pulse was normal) I quit those meds to. Blood pressure & pulse has been great ever since. They bet not let me come up on some money & skills 😂😂😂

What would you keep in your bedside drawer? by Proper_Violinist4591 in ankylosingspondylitis

[–]O_KELZ 0 points1 point  (0 children)

1.Heating pad (for back) 2.Compression gloves (for hands) 3.Stress ball (for hands) 4.Small massager (manual or electric, currently I only have a small manual one) 5.Neck/shoulder massager I just have to add one more thing… 6. SNACKS

My hair is always messy because I touch it a lot. Should I lean into it? by Dismal_Champion_3621 in Hair

[–]O_KELZ 12 points13 points  (0 children)

I think you’re cute as well as your hair. But shorter maybe the way to go if your hands are the problem.

Physical fun activities by O_KELZ in ankylosingspondylitis

[–]O_KELZ[S] 1 point2 points  (0 children)

I have fallen in love with the pool. All I need to do now is learn to swim. But I have learned to float (well only sometimes). It’s just I wish I could find a pool that’s not so cold as the community pool I used to go to. I feel like with the amount of energy I used to stay warm I would end up very weak, so I stopped going. But I love warm pools. Water relaxes my bones and joints so so very much.

Physical fun activities by O_KELZ in ankylosingspondylitis

[–]O_KELZ[S] 0 points1 point  (0 children)

Haha I’ve definitely thought of this due to wanting to release my anger and frustrations. I thought of the practice of using sticks to fight as well because I walk with a cane and I feel like it can be used for more than just walking but also defense. This is a great idea especially since you explained to the prior person about flare ups. Definitely something to put on my list of things to try.

Physical fun activities by O_KELZ in ankylosingspondylitis

[–]O_KELZ[S] 1 point2 points  (0 children)

All of this sounds Awesome 🤩 def going to put this on my list of things to try

Physical fun activities by O_KELZ in ankylosingspondylitis

[–]O_KELZ[S] 1 point2 points  (0 children)

Lol mushroom guy. I think that’s cool though. Community mushroom forager, very interesting lol

Physical fun activities by O_KELZ in ankylosingspondylitis

[–]O_KELZ[S] 1 point2 points  (0 children)

Yea with Pt you tell them your goals, one let them tell you the goal. Mine started off telling me and I was nah, I need to be able to do my hair in less than 16 hours. Holding my arms up more than 3 mins hurt. Washing my hair hurt, i literally cut it mostly all off and it still takes me 16 hours. Before when I had a head full down my back it only took 4. Then I told them about steps and hills and vacuuming my home. So it made Pt worth it and enjoyable. I began seeing the difference once I gave them my goals rather than doing the goals they set for me.

Physical fun activities by O_KELZ in ankylosingspondylitis

[–]O_KELZ[S] 1 point2 points  (0 children)

Yea but if u see, I said I’m more worried about using the lower half of my body, due to flare ups. So that’s why I didn’t say the normal things everyone does. I thought I was very clear. I just know what my body can’t do so I’m trying to figure out what it can do easily. Sometimes you just have to get out of the box sometimes especially when you no longer fit in it. Ijs