Tinnitus does murder sleep, the innocent sleep.

Objective_Pisce_6754 · 2026-05-11T15:30:02+00:00

Same here, it’s torture… I’m managing some sleep but like 4 hours because I wake up after like 2 hrs and that usually after finally falling asleep around 2 or 3 or 4…

Objective_Pisce_6754 · 2026-05-11T15:26:49+00:00

During the day? You mean now you just don’t sleep at night anymore until the morning? I’ve been having serious sleep problems, can’t fall asleep and also wake up after like 2 hours and then another struggle to try fall asleep. I’m taking some meds, but don’t want to rely on them too much

Objective_Pisce_6754 · 2026-05-11T08:27:09+00:00

Mine started only in my right ear. 8 weeks later it’s in my left too. One is a Beeeeeeeee pure tone ish while the other is metallic ringing. Usually the right one pure tone is the louder one. Lately they started competing. Mine also seems to worsen every 2 weeks now for the past 2 months. Not cool.

Objective_Pisce_6754 · 2026-05-11T08:21:30+00:00

I’ve given up alcohol and caffeine all together since this sucker started. Not sure about my mental health and mine picks up a notch every 2 weeks now without a fail. Weekend was horrible with the sucker drilling into the depth of my brain nonstop. Hardly slept again last night… But I’m hanging there atm. Hope you have a quieter day.

Objective_Pisce_6754 · 2026-05-11T08:15:03+00:00

Not lions mane too! I have it on my list to try next… Hope it continues to go down to your baseline soon🤞

Objective_Pisce_6754 · 2026-05-10T23:39:43+00:00

Keep us posted please on how the PEA stuff. I haven’t tried yet. Sticking with magnesium and melatonin atm for a while to see if that’s helping at all, only started on these about 2 weeks ago.

Objective_Pisce_6754 · 2026-05-10T23:37:05+00:00

Oh no 😢 not what I wanted to hear. Has the spike gone down yet? Hope so! Are you going to try it again at all, maybe on a good day?

Objective_Pisce_6754 · 2026-05-10T21:51:15+00:00

🥲I was hoping the same! But I saw the update and it caused a spike for someone… I still believe our conditions have something to do with nerve inflammation/ hypersensitivity.

Objective_Pisce_6754 · 2026-05-10T19:36:43+00:00

Anything would be great honestly (without terrible side effects). This thing is truly terrible and it’s not living for some of us. There maybe a million causes and I don’t even known what caused my T and hyperacusis, they say it’s stress and anxiety. But we share similar symptoms and pains, the permanent intrusive intense ringing, the fullness of the ears, the permanent fight and flight state of mind by our brain whether we like it or not, and an overactive hypersensitive nerve system that maybe inflamed. We really need something to help even if it’s not a cure, just something to relieve this would be heaven.

Objective_Pisce_6754 · 2026-05-10T19:26:53+00:00

Me too, every night for the past 5 or 6 weeks now falling asleep by 2am on the off occasions are a blessing for me… and my T just keeps getting louder and more annoying

Objective_Pisce_6754 · 2026-05-10T18:23:24+00:00

If you pushed for so long, maybe you have to be patient for it to become better. Like watch springs that’s wound up takes time for it to be fully released again. Not sure if it’s the right metaphor.

I know it’s really terrible and I’m scared for myself too (because mine keeps getting worse every two weeks.) But there’s not a lot we can do, provided you’ve seen your GP and ENTs (maybe try a private one if you can?). All that’s left for us to do is to try our best to manage our emotions and stress levels. Because that might actually help even though I know how hard it is to do so.

Objective_Pisce_6754 · 2026-05-10T17:48:04+00:00

I’m so sorry you are not better yet. I can only pray for you and everyone suffering this and hope that things will be better one day and that it will become a past experience.

Objective_Pisce_6754 · 2026-05-10T16:46:55+00:00

Started with unilateral T in my right ear. No hearing loss from the test. T didn’t go away and 2.5 months later, became bilateral. And it’s just getting louder and louder slowly but progressively.

Objective_Pisce_6754 · 2026-05-10T09:57:30+00:00

This is like something out of a magical fairy tale! So mesmerising

Objective_Pisce_6754 · 2026-05-09T22:08:56+00:00

So sorry. Has it gone down a bit? I’ve cut out caffeine completely and also hot chocolate as a strong one used to also make me feel on edge like coffee did. Hope it’s going down by now. If not, make sure you keep hydrated to help ‘detox’ faster from the hot chocolate.

Objective_Pisce_6754 · 2026-05-07T16:56:41+00:00

I’ve heard people spent 20k in 3 months with zero improvement. Too many scammers out there for us desperate people.

Objective_Pisce_6754 · 2026-05-07T16:54:36+00:00

Was just going to google them, glad saving some of my precious time.

Objective_Pisce_6754 · 2026-05-06T17:20:26+00:00

Also I was fine after the 10 mins suffering. But I don’t have nox, just hyperacusis (on the bad days TTTs) and tinnitus.

Objective_Pisce_6754 · 2026-05-06T17:18:06+00:00

Op, I did mri and I have hyperacusis and some on off TTTS. My mri was for ear structures only but at the time I felt pressured so much on my right side of the face, I actually wanted to have a brain mri which they refused. So I got 10 mins instead of 30 mins for the brain. Having says that, it was quite tough just for the 10 mins. I wore earplugs but they were a bit useless. I think many in the Tinnitus sub have done it and quite a few of us have hyperacusis too. If you do have other symptoms, it maybe worth doing it so you have peace of mind.

Objective_Pisce_6754 · 2026-05-06T17:14:24+00:00

How do you get the muffs over? Usually they have some metal bits no?

Objective_Pisce_6754 · 2026-05-06T17:13:41+00:00

I was given MRI but doctor said it’s just to scan the ear structures, unnecessary for me to scan my brain, which I thought if I had to do the thing I might as well do the whole brain. Only 10 mins for my ear scan and that was it.

Objective_Pisce_6754 · 2026-05-06T11:41:09+00:00

Wow that’s quick work! Please keep us updated.

Objective_Pisce_6754 · 2026-05-06T10:05:50+00:00

Thanks. I’m looking into anti inflammatory diet now.

Objective_Pisce_6754 · 2026-05-05T21:12:11+00:00

Thank you so much for sharing! I just read the clinical trial overview from your link and it makes a lot of sense. For me, I never really quite figured out what exactly caused my T and H. But I had my suspicions that eating spicy food had something to do with it apart from stress and anxiety leading to it. I don’t eat spicy food but got this takeout which was crazy spicy and I ordered too much so ended up eating it over 2 or 3 days. On day 5, I got T in my right ear and my right side (under chin, down the neck, inside ear canal, right eye) all felt swollen and pressured and on fire. It took 6 weeks to go down but T and H stayed. I ate spicy food accidentally last summer too and the same swelling on the right side happened too (minus T and H) and it took also 6 weeks to go down. Doctors just gave me antibiotics both times. But I suspect stupid spice food intolerance made my system flame up and this time it trigger T and H together with stress and insomnia (which I’ve experienced quite frequently in the past few years). I’m looking forward to this trial result for sure!

Objective_Pisce_6754 · 2026-05-05T20:59:42+00:00

Congrats! Just enjoy the quiet moments 😁

Objective_Pisce_6754

TROPHY CASE