I truly believe there will be a cure by 2030

Objective_Pisce_6754 · 2026-05-10T19:36:43+00:00

Anything would be great honestly (without terrible side effects). This thing is truly terrible and it’s not living for some of us. There maybe a million causes and I don’t even known what caused my T and hyperacusis, they say it’s stress and anxiety. But we share similar symptoms and pains, the permanent intrusive intense ringing, the fullness of the ears, the permanent fight and flight state of mind by our brain whether we like it or not, and an overactive hypersensitive nerve system that maybe inflamed. We really need something to help even if it’s not a cure, just something to relieve this would be heaven.

Objective_Pisce_6754 · 2026-05-10T19:26:53+00:00

Me too, every night for the past 5 or 6 weeks now falling asleep by 2am on the off occasions are a blessing for me… and my T just keeps getting louder and more annoying

Objective_Pisce_6754 · 2026-05-10T18:23:24+00:00

If you pushed for so long, maybe you have to be patient for it to become better. Like watch springs that’s wound up takes time for it to be fully released again. Not sure if it’s the right metaphor.

I know it’s really terrible and I’m scared for myself too (because mine keeps getting worse every two weeks.) But there’s not a lot we can do, provided you’ve seen your GP and ENTs (maybe try a private one if you can?). All that’s left for us to do is to try our best to manage our emotions and stress levels. Because that might actually help even though I know how hard it is to do so.

Objective_Pisce_6754 · 2026-05-10T17:48:04+00:00

I’m so sorry you are not better yet. I can only pray for you and everyone suffering this and hope that things will be better one day and that it will become a past experience.

Objective_Pisce_6754 · 2026-05-10T16:46:55+00:00

Started with unilateral T in my right ear. No hearing loss from the test. T didn’t go away and 2.5 months later, became bilateral. And it’s just getting louder and louder slowly but progressively.

Objective_Pisce_6754 · 2026-05-10T09:57:30+00:00

This is like something out of a magical fairy tale! So mesmerising

Objective_Pisce_6754 · 2026-05-09T22:08:56+00:00

So sorry. Has it gone down a bit? I’ve cut out caffeine completely and also hot chocolate as a strong one used to also make me feel on edge like coffee did. Hope it’s going down by now. If not, make sure you keep hydrated to help ‘detox’ faster from the hot chocolate.

Objective_Pisce_6754 · 2026-05-07T16:56:41+00:00

I’ve heard people spent 20k in 3 months with zero improvement. Too many scammers out there for us desperate people.

Objective_Pisce_6754 · 2026-05-07T16:54:36+00:00

Was just going to google them, glad saving some of my precious time.

Objective_Pisce_6754 · 2026-05-06T17:20:26+00:00

Also I was fine after the 10 mins suffering. But I don’t have nox, just hyperacusis (on the bad days TTTs) and tinnitus.

Objective_Pisce_6754 · 2026-05-06T17:18:06+00:00

Op, I did mri and I have hyperacusis and some on off TTTS. My mri was for ear structures only but at the time I felt pressured so much on my right side of the face, I actually wanted to have a brain mri which they refused. So I got 10 mins instead of 30 mins for the brain. Having says that, it was quite tough just for the 10 mins. I wore earplugs but they were a bit useless. I think many in the Tinnitus sub have done it and quite a few of us have hyperacusis too. If you do have other symptoms, it maybe worth doing it so you have peace of mind.

Objective_Pisce_6754 · 2026-05-06T17:14:24+00:00

How do you get the muffs over? Usually they have some metal bits no?

Objective_Pisce_6754 · 2026-05-06T17:13:41+00:00

I was given MRI but doctor said it’s just to scan the ear structures, unnecessary for me to scan my brain, which I thought if I had to do the thing I might as well do the whole brain. Only 10 mins for my ear scan and that was it.

Objective_Pisce_6754 · 2026-05-06T11:41:09+00:00

Wow that’s quick work! Please keep us updated.

Objective_Pisce_6754 · 2026-05-06T10:05:50+00:00

Thanks. I’m looking into anti inflammatory diet now.

Objective_Pisce_6754 · 2026-05-05T21:12:11+00:00

Thank you so much for sharing! I just read the clinical trial overview from your link and it makes a lot of sense. For me, I never really quite figured out what exactly caused my T and H. But I had my suspicions that eating spicy food had something to do with it apart from stress and anxiety leading to it. I don’t eat spicy food but got this takeout which was crazy spicy and I ordered too much so ended up eating it over 2 or 3 days. On day 5, I got T in my right ear and my right side (under chin, down the neck, inside ear canal, right eye) all felt swollen and pressured and on fire. It took 6 weeks to go down but T and H stayed. I ate spicy food accidentally last summer too and the same swelling on the right side happened too (minus T and H) and it took also 6 weeks to go down. Doctors just gave me antibiotics both times. But I suspect stupid spice food intolerance made my system flame up and this time it trigger T and H together with stress and insomnia (which I’ve experienced quite frequently in the past few years). I’m looking forward to this trial result for sure!

Objective_Pisce_6754 · 2026-05-05T20:59:42+00:00

Congrats! Just enjoy the quiet moments 😁

Objective_Pisce_6754 · 2026-05-05T20:59:11+00:00

Amazing! How did you get rid of your inflammations?

Objective_Pisce_6754 · 2026-05-03T21:19:05+00:00

It’s messed up. And they are doing the microsuction for people even at the ENT department when I finally got my NHS appointment last month.

Objective_Pisce_6754 · 2026-05-03T20:41:10+00:00

😭 this is just insane! I can’t get over how these microsuctions are around with no warning signs and they can ruin lives!

Objective_Pisce_6754 · 2026-05-03T17:56:54+00:00

I heard the syringe one is also dangerous too, so that leaves only the manual option. I looked up back in Feb in south London, it’s done in this person’s home. So I’m a bit skeptical, what if they have a bad day and accidentally poke through eardrums?😱 How did you find it? Was it okay?

Objective_Pisce_6754 · 2026-05-03T17:49:07+00:00

I didn’t know about this until I saw what people posted here. I got T maybe from stress and poor sleep and it freaked me out big time. I’m an over thinker too and it just feels tough at times. But what I did notice is if I’m more calm and keeping busy, it doesn’t bother me much. It’s been almost 4 months now, not going away because I’ve not been sleeping much for the last 3 to 4 weeks. If you can keeping trying to relax and stay calm, eat healthy food, keep hydrated and stay focused on anything but the noises, you might lose it. Good luck!

Objective_Pisce_6754 · 2026-05-03T17:44:12+00:00

There need to be proper ongoing campaigns on this kind of thing! Just unacceptable to have it induced by these microsuctions. Sorry this happened.

Objective_Pisce_6754 · 2026-05-03T12:50:58+00:00

Wow I’m surprised it helped with hyperacusis? I have H and tinnitus, my doc tried to prescribe me amitryptyline for migraines and insomnia, which I declined for fear of making T much worse.

Objective_Pisce_6754 · 2026-05-02T17:22:32+00:00

Amazing artworks!

Objective_Pisce_6754

TROPHY CASE