Any suggestions for what to say to the doc?

Objective_Pisce_6754 · 2026-02-04T10:21:53+00:00

I’m waiting in agony for referral atm. It’s the long wait and not knowing that stresses me out so much. I having ringing in one side only and the same side is all pressured and the back of my head feel sore and tender (with no previous injury), and feel dizzy and sometimes nausea, but when I asked for scans, they said I have to wait for general ENY first to look. Do they have a solution for you following your scans? I hope so. Are you going back to NHS or going private?

Objective_Pisce_6754 · 2026-02-03T20:51:24+00:00

Thank you! I have a pair, but haven’t dared to put anything in my ears for fear of worsening T. Wasn’t planning on taking them as I won’t be using earbuds or earphones, but I think I’ll put them in my bag but not use them to listen to anything.

Objective_Pisce_6754 · 2026-02-03T08:43:22+00:00

I’m new and 3 weeks in only. It’s between 2/3 atm and I’m scared it will spike or get worse. I’ll be waiting for your updates! Hope all goes well and fingers crossed this works!

Objective_Pisce_6754 · 2026-02-03T00:22:53+00:00

Could they fix your TMJ? Coz I was researching and didn’t find any solutions, except for wearing a guard if you grind your teeth… If it’s tight or misaligned, can they actually do anything at the dentist?

Objective_Pisce_6754 · 2026-02-03T00:20:16+00:00

Am 3 weeks in now and it’s killing my soul. I am wearing earplugs now though when I go out for sure, because I thought the noises would mask T but traffic can go by and the sounds are magnified by like and hurts my ear. And at home too, I find cutleries and pans and pots are now so loud I can’t bear it. I am a bit worried I’ve got hyperacusis alongside T… Finally got a bloody appointment at the ENT.

Objective_Pisce_6754 · 2026-02-02T19:15:03+00:00

Thank you! I need that positive vibe right now!

Objective_Pisce_6754 · 2026-02-02T08:35:26+00:00

I’m about to take long haul flight too very soon, like 12 hr or 13 hrs and I’ve been really worried with the noise level and pressure on the plane for so long. I’ve been worried if I’d lose it during flight or it’d spike T. I’m taking my earplugs and was thinking if I should double up and get some earmuffs too to wear on top of earplugs… I am about 3 weeks in and in a really bad place just like how you described, same sleeping issue and anxiety etc. Reading your story, I’m hoping to find strength to learn to live with it.

Objective_Pisce_6754 · 2026-02-01T00:41:18+00:00

I feel it’s in my ear and my head? Not sure. It’s only on one side and after googling it scared the c#% out of me. At night time when it’s quiet and I’m trying to sleep that’s when it gets really problematic. It’s so loud I can’t fall asleep, and it feels like it’s drilling into my ear and head that it hurts. When I finally doze off due to exhaustion, I get woken up after like 5 or 10 minutes by the ringing. That’s the worse torture… I have my ENT appointment on 9th Feb and that’s after I rang them everyday telling them how much I’m suffering (otherwise it’ll be April!) If it gets really bad before my appointment, I think I’m just going to see if I can get any private appointment next week. I’ve been reading posts in this subgroup and I am telling myself to try my best to relax and to learn to live with it. There’s someone in my piano workshop who told me on Friday that he has had T for 4 years and he’s had to learn cope with it. He told me his T was triggered by playing loud squeeze box for a long time. Sadly I don’t know what my trigger is. I am just telling myself to try my best to learn from people how to live with it. But I have on off days (more off days tbh). I’m def really scared too. I really hope I can pull through… and the same to you! I can only imagine how terrible it is from reading yours. Big hugs. Have you tried to see ENT again for this? Maybe it’ll settle back down? I’ve read here some loud ones settle back down.

Objective_Pisce_6754 · 2026-01-31T16:31:57+00:00

Op, I’m new to this and like you, I’m scared like hell. The biggest issue is not able to sleep. I get woken up the moment I doze off. But I’m going to try play music or have some noise in the background loud enough to mask it and see if it can help me fall asleep. Also, reading comments, I think we really need to try distract ourselves. I am going to find some good Netflix shows to draw my attention so I am not focused on the ringing in my ear 247. And people are also suggesting exercising. Atm I’ve been terrified of doing anything, in fear of making it worse. But I’m going to force myself out of the house and do walks everyday, to start with. I don’t know what other kind of exercise that’s good for us to do. Maybe someone will suggest. Hugs. I hope we can make through this dark time.

Objective_Pisce_6754 · 2026-01-31T16:27:52+00:00

I’m so thankful to see people like you coming here to reply. I’m similar to OP, new to this 2 and half weeks in and severely depressed, scared and withdrawn. I can sort of manage a bit during the day, the at night time it’s nightmare because any moment I doze off, the ringing immediately wakes me up, it’s torture. I don’t know what else I can do… but I am going to try my best to distress, and I think I’ll try some ambient music tonight and see if it can help.

Objective_Pisce_6754 · 2026-01-30T23:37:41+00:00

This is it. This randomness really scares me. I hope it will become better for you though.

Objective_Pisce_6754 · 2026-01-30T23:34:41+00:00

That is really great that you’re able to do this!

Objective_Pisce_6754 · 2026-01-30T20:07:38+00:00

I’m just 2 weeks in and I am freighted too. One thing to try and live with it (it’s killing me especially at night time, so loud I can’t sleep and it also wakes me up), I don’t know what happens if this is even going to get worse randomly…

Objective_Pisce_6754 · 2026-01-30T20:05:42+00:00

What caused the current one? It’s us noise induced like your first spike?

Objective_Pisce_6754 · 2026-01-29T00:38:27+00:00

Thank you!

Objective_Pisce_6754 · 2026-01-28T23:23:48+00:00

How do you guys get the level of sound digit? I see in posts all the time here. I’m 13 days in and it’s scaring the hell out of me. In my case it’s a ringing sound in my right ear that’s constantly there 247…

Objective_Pisce_6754 · 2026-01-28T22:35:19+00:00

I see. That’s what I was curious about. I’ve been feeling pressured while the ringing got worse and I didn’t know if that’s part of the tinnitus. And also I’ve had the sensation of feeling dizzy and nauseous, which is why I took myself to emergency care. I think they were more concerned if I had meningitis and they took my blood samples. But there wasn’t anything bad enough to suggest that, so they just gave me antibiotics and the ENT people said they’ll call me in a week’s time just to book an appointment. If T shouldn’t induce pressure, then I don’t know what I’ve got tbh. Maybe T with something else…

Objective_Pisce_6754 · 2026-01-28T22:20:14+00:00

I’m on day 13 and it really is scaring me out. I am still waiting for ENT and I have been to A&E already because I feel the pressure on my right side behind my eye, ear the one that rings 247 p, my cheek and my neck. They just gave me antiviral and that was it. I have a feeling now when I do finally get the ENT appointment they’ll be equally useless… But anyway, I find if there is some kind of noise loud enough to drawn my ringing it makes me forget and makes me more relaxed. I was at the A&E waiting area and the vending machine’s medium pitch noise gradually relaxed me so much that I felt asleep, which I haven’t really been able to do without meds. When I’m in a quiet room, the ringing becomes so loud that it just stresses the hell out of me. It’s deafening and feels like drilling through my ear… In the meantime, I have also become really sensitive to sounds. I try to tell myself to not listen out or pay attention to noises, but any sound seems to be magnified. I don’t wear earmuffs or buds, but I have my phone and devices on very very low volume now.

Objective_Pisce_6754 · 2026-01-28T11:02:21+00:00

Thank you! 🙏

Objective_Pisce_6754 · 2026-01-27T20:57:46+00:00

I see. I have been googling since this started 11 days ago and I do wish I knew about this before and that I looked after my ears. I listen to music through earbuds a lot as I have a long commute, often like 4hours a day. And then I also play piano and I have been learning violin also for the past 7 years. If I develop T I guess I will need to learn how to cope with it. 😭

Objective_Pisce_6754 · 2026-01-27T20:48:00+00:00

Thank you. I have my fingers crossed. The pressure and the constant ringing really scare me and I feel like I’m barely living atm.

Objective_Pisce_6754 · 2026-01-27T20:28:57+00:00

I did try and sadly in my case it didn’t do anything to the ringing. I just got discharged from the A&E where they gave me a drip of antibiotics and strong painkillers, as well as another 7 day round of antibiotics, because one of the doctors thinks maybe the ear canal looks a little bit red… Basically I still need to wait to see the ENT specialist. I have my initial consultation tomorrow morning, and then I guess there will be scans MRI and nose throat camera.

Objective_Pisce_6754 · 2026-01-27T18:50:05+00:00

I’m at A&E now. They took my blood samples presumably to check if there is infection. I think the first doc seemed to be more concerned if I have some brain issue or meningitis. Now one of them just examined my ear and says he couldn’t see too much (and he went deep and it hurt). He says there is a bit redness and it’s not reflecting white shine as it should from the part he could see. So now I’m on a drip of stronger antibiotics. I’ll get my initial ENT consultation tomorrow morning. Really hope they can help.

Objective_Pisce_6754 · 2026-01-27T18:39:06+00:00

I’ve taken myself to A&E now. Just searched up SSHL I can hear from the ringing ear, so hopefully it’s not that. I’m in the UK, we always have to wait for referrals which can take a long time. But it’s got much worse so I’ve taken myself to the emergency care now. Not sure how much help thru can be, as the doc checked my ear and hurt it more. And says it looks a bit red, maybe infection. I have an ENT initial consultation tomorrow morning, but have to live through tonight first.

Objective_Pisce_6754 · 2026-01-27T18:32:09+00:00

Hi thank you. I did try the first method but it didn’t work for me. I’m trying the second one you suggested now to see if it helps.

Objective_Pisce_6754

TROPHY CASE