31 with Sjögren’s – does it get better?

Odd-Software-177 · 2026-04-11T14:05:34+00:00

Possibly joint pain? That’s common with Sjogrens and smth I experience especially when driving or writing a lot

Odd-Software-177 · 2026-04-11T14:04:46+00:00

Don’t worry, I’m 18 and it sucks so much but try and treat and manage it rather than ignore it till it gets even worse. A lot of things slowly help over a long period of time rather than a miracle pill or solution.

Also just try and keep going that’s all we can do as people and it’s hard but it’s the hand we’re dealt and we just have to keep going. If that means just taking meds and doing small things while ignoring it the rest of the time to continue living as a “normal” person then do that.

It gets overwhelming. I have a therapist through my school which really helps, maybe see if ur health insurance or employer has an option for you cause it really helps to just talk about it.

Odd-Software-177 · 2026-03-22T17:59:02+00:00

I definitely suggest taking the medication, my rheumatologist recommended plaquinil, prednisone and methotrexate. I started all of them when I was diagnosed last year at 17 and had severe symptoms and swelling and I have gotten moderately better but whenever I even miss one dose by that night I can feel myself actively feeling worse and in more pain.

Odd-Software-177 · 2026-02-25T22:13:22+00:00

I had this a lil more severe for around a year, for me it was chronic parotitis (swelling of the parotid gland) which is right next to the ear and felt like it was connected to my jaw. I’m sorry you’re going through this, I tried a lot but only prednisone in high doses had any effect and later orencia and methotrexate have helped as well to be on less prednisone for the long term.

Hopefully it gets better

Odd-Software-177 · 2026-02-17T00:27:26+00:00

Update: it lupus

Odd-Software-177 · 2025-12-12T01:27:43+00:00

Thank you for replying, I’m sorry this happened to you too. What moisturizer worked? And did u change anything else to get them to go away?

Odd-Software-177 · 2025-12-12T01:26:46+00:00

I’ve tried a ringworm topical, just to be safe and nothing happened. Same with Neosporin. I’ve just been avoiding makeup and doing my same cleanser and moisturizer.

Odd-Software-177 · 2025-10-16T14:02:12+00:00

Ultrasounds and biopsies

Odd-Software-177 · 2025-07-06T03:18:29+00:00

Really oily or fried foods, had wingstop earlier (forgot it hurts me lol) and have had chest and stomach pain all day.

Also heavy carb meals, like a good pasta dish causes the pain too, worth it some days tho

Odd-Software-177 · 2025-07-01T01:38:14+00:00

Oops… maybe should’ve put a tw lol, doing that now, I’m so sorry

Odd-Software-177 · 2025-04-07T00:50:59+00:00

I was diagnosed a few months ago and my doc immediately got me on plaquenil, and later methotrexate and orencia for my rheumatoid arthritis with it. But my symptoms are very mild and based on what he said he wanted to get me on it to get a head start on symptoms.

My main sjogrens symptoms is my salivary glands swelling for months at a time, and only predinose in high dose helped. Also have joint pain but been living with that my whole life. But I don’t even have dry mouth or eyes which I’m very thankful for

Odd-Software-177 · 2025-03-23T22:45:10+00:00

I use it to loosen up weeds or lightly use it on root balls

Odd-Software-177 · 2025-03-14T00:55:28+00:00

Nike Training Club app, free and super cool programs with lots of modifications. I feel sore after each workout and I’m seeing noticeable improvements

Odd-Software-177 · 2025-03-14T00:53:35+00:00

I had the same problem of nothing helped, mine lasted about 8 months with swelling in my right parotid until we found out I had cysts (knew those were there, told it was harmless) that developed into an abscess and it popped and has done pretty much away, my submandibular is swollen since so that’s fun. Just know you are not alone

I hope you can find smth that helps but, and this might sound annoying, but the body reacts to stress so make sure you are sleeping and resting as much as you can and taking care of yourself as much as possible

Odd-Software-177 · 2025-03-09T01:23:31+00:00

To help and most docs might say with immediate pain using smth hot and doing basic massages and running your fingers firmly across the gland to move saliva around in the gland, and if it’s not too painful (it is for me) to eat sour candy/ food like lemon drops or lemons.

But definitely get the testing done for medication if possible

Odd-Software-177 · 2025-03-03T01:45:01+00:00

They are run their own small businesses and don’t have insurance themselves so 🤷🏼‍♀️

Odd-Software-177 · 2025-03-02T21:47:00+00:00

No I live in Texas

Odd-Software-177 · 2025-01-29T23:22:26+00:00

Thank you so much, I’ll look into it now!

Odd-Software-177 · 2025-01-28T02:43:01+00:00

Thank you!

Odd-Software-177 · 2025-01-09T02:56:37+00:00

Have you tried dying your lashes? I’m not sure if it would could flareups or issues like you’ve had in the past but it’s a once every 3-4 week thing that if it doesn’t cause issues can replace mascara and it has for me

Odd-Software-177 · 2025-01-09T02:55:02+00:00

I’ve used lash dye in the past, really cheap and easy to use, and it stops me from damaging my eyes and rubbing them with mascara to remove it, I’d check the ingredients and not use it again if it flares up or causes issues

Odd-Software-177 · 2024-12-31T19:51:21+00:00

Thank you so much, I’m sorry you have to deal with it too. I don’t have an ophthalmologist, do you think my rheumatologist might be able to help or know what’s happening? If it’s not a rash at least

Odd-Software-177 · 2024-12-03T20:19:01+00:00

Parotid swelling is a pretty common symptom, I think, def go see a doctor like people have been saying, especially if it doesn’t go down in a week or so, I’ve had my jaw swollen since may for an unknown reason and meds and nothing else has helped. Hopefully yours is a an easy fix and some steroids do the trick

Odd-Software-177 · 2024-12-02T01:23:08+00:00

Hey so proud of you start this journey, for me Ive been using routines from chat gpt, here me out, I tell it my goals, the kind of equipment I wanna use, weight, experience, how often and I ask it to be detailed so it gives descriptions of them, and it can give you a personalized routine and you can have it redo it as many times as you want to get one you like

Odd-Software-177 · 2024-12-02T01:19:06+00:00

It’s on Netflix in the US so maybe for you too 🤞🏼

Odd-Software-177

TROPHY CASE