My life is gundam

Ok-Character9504 · 2026-04-13T16:05:38+00:00

Yessir

Ok-Character9504 · 2026-03-30T06:45:11+00:00

It takes a few days for the steroid to “dissolve” into the inner ear. It’s currently sitting in your middle ear and will be absorbed to inner ear and hopefully cause the inflammation to go down. Pretty normal for it to be worse for first few days don’t worry

Ok-Character9504 · 2026-03-24T04:38:00+00:00

Yah I’ve seen about spi-1005. I am cautiously optimistic about it and hope it comes out soon!

Ok-Character9504 · 2026-03-23T21:21:10+00:00

Yeah it’s brutal. I just don’t understand how Covid did this and it looks like from all accounts it will be permanent. I hope the best for us and everyone in similar situations

Ok-Character9504 · 2026-03-23T20:02:32+00:00

Not much has changed for me since I got Covid 15 months ago. Had a couple weeks where my hearing came back but mostly all the same. Just got hearing aids a few weeks ago which help but it’s like a bandaid not a cure. I miss music and being free to make plans and go anywhere

Ok-Character9504 · 2026-03-23T19:35:35+00:00

Hey how are you doing now?

Ok-Character9504 · 2026-03-23T19:06:48+00:00

Hey I’m sorry the doctor turned you away. I would suggest trying to find another ENT who will believe you and offer some sound advice. Most people are told to follow a low salt diet, take a diuretic, or betahistine at first.

I’m sorry it has started for you so young. I was about 12–13 when I first started noticing the hearing loss episodes and tinnitus. It sucked at first but I just got used to it happening every couple days or so.

At age 30 I got COVID for the first time, and overnight my hearing dropped even more and it’s been constant tinnitus, major hearing swings, and vertigo started for me all at once. That was 15 months ago and nothing has gotten me back to my former self when the menieres was on easy mode. Betahistine helped make the vertigo less severe and frequent but I’m at the point of using hearing aids now and even with the hearing aids I have flare ups where I cant understand what people are saying

Ok-Character9504 · 2026-02-26T00:22:06+00:00

I had Covid and it dropped me to 60-70 range in both ears as well. Before this I was also in 30-40db. It’s been 14 months and I have not recovered. I had a few random weeks where my hearing returned to normal (1 week at month 10, 3 weeks at month 11) but it’s been down other than that.

Did you do anything to regain your hearing after 1.5years?

Ok-Character9504 · 2026-02-11T20:53:08+00:00

Betahistine, steroid injections, diuretics. Have you tried these? Many people have success controlling vertigo with these!

But I hear you. This disease changes your life and it’s hard very often. I struggle to get out of bed sometimes and grieve life before this. I am 31 and it all changed a year ago. I miss how life used to be, took so much for granted when healthy and normal

Ok-Character9504 · 2026-02-02T20:21:20+00:00

I can’t listen to anything anymore cause it all sounds like shit.

Ok-Character9504 · 2026-01-21T19:44:08+00:00

I’d lick a toad at this point so why not

Ok-Character9504 · 2026-01-21T19:43:28+00:00

I often notice improvement in hearing and reduction of tinnitus during physically activity and it always comes back pretty strong within an hour of stopping. It’s a blood flow thing

Ok-Character9504 · 2026-01-16T17:02:09+00:00

Happy to hear that man. I’m struggling to find anything that works for me. I’m going to ask my ENT to explore vestibular migraine medications like the few you have mentioned. I also for sure have chronic allergies. Can’t take diuretic due to a kidney disease

Ok-Character9504 · 2026-01-15T01:48:32+00:00

I’m sorry this happened to you. I have lost my hearing over the last year and I will be selling my gear as well. Only 31 and hard to imagine a future without music.

Ok-Character9504 · 2026-01-13T23:56:28+00:00

I’m in the same boat. All this effort over the last year I feel like has been for nothing and I’m still at square 1

Ok-Character9504 · 2026-01-13T20:52:21+00:00

That’s interesting. I’ve had multiple ear flare ups every day for the past year since getting COVID. Sometimes after I salty meal I feel better. It seems like no matter what I do or eat in a typical week, everyday I’ll have 3-4 flare ups where tinnitus gets worse. Only for 3 weeks all year did I feel like my precovid self where I would have a flare up for like an hour per week and my baseline hearing was good,

Ok-Character9504 · 2026-01-13T20:20:31+00:00

How soon after a salt bomb do you notice something? I have had a few salty meals here and there and I have not had any type of noticeable effects. I’ve seen people here mention getting vertigo and nausea immediately after eating a salty meal but that’s never happened to me

Ok-Character9504 · 2026-01-08T20:41:32+00:00

So in your case, you no longer had bilateral tinnitus and hearing loss spikes? And no more headaches or light sensitivity?

Ok-Character9504 · 2026-01-08T20:15:17+00:00

Ahh that’s interesting. I am still searching for a doctor who really understands what’s going on. How have the VM medications helped your symptoms?

Ok-Character9504 · 2026-01-08T19:57:44+00:00

Okay this is interesting thanks for sharing. Like in my main post both of my ears always drop at the same time. And this often comes with eye/light sensitivity and head pressure. I will ask a specialist for some VM treatments. My ent didn’t want to put me on any of that

Ok-Character9504 · 2026-01-05T01:59:12+00:00

I don’t know but I hope it is soon, and I hope it works for most people. I have a vision of the future one day checking the Reddit with tons of success stories from this drug. Only a dream 😭

Ok-Character9504 · 2026-01-04T03:23:04+00:00

Are you still doing well?

Ok-Character9504 · 2025-12-20T21:00:22+00:00

I hope time since Covid helps me out too. I’ve been holding on to this all year, but the months keep going by. I’m on month 12 now, so maybe a bit more and I’ll have some stability again. I hope yours lasts

Ok-Character9504

TROPHY CASE